posted
I've been reading the boards a lot trying to gather as much information as I can so that I can properly support my wife. She is very hopeless and from reading many posts it hard to gather just how much progress anyone is making with their treatment.
I think it would be useful to gather some basic information to help assess or develop examples of what people have done and how much progress they have made. We are 1 year into treatment and it can get very discouraging when you are not getting the results you are expecting or hoped for.
Date Diagnosed: How long had you had Lyme: Treatment protocol to date: Percent better:
Also it would be a good way to lay out different protocols that people are doing so you can compare and stay aware of all the options out there so that you can stay informed as much as possible.
Here is our story to date....
Date Diagnosed: Fall 2007
How long had you had Lyme: 10 years estimated
Treatment protocol to date: Tindamax 500 mg 2x/day - Jan 08 to June 08 June08 - Dec 08 - Artemeisan(sp) and cats claw and other supplements December 08 - Feb 09 Doxycycline 400mg 2x/day and Ceftin 500mg 2x/day Right now just on Doxy.
My wife also does 2-3 Far-infared sauna treaments per week along with at least 1 salt bath. She also speed walks 9-12 miles per week (very determined). She also takes a whole host of other supplements, eats mostly organic and doesn't consumer very much sugar.
Percent better: 10% (maybe) it really depends on what day you ask this question.
Thanks for all your help and I look forward to your responses.
Jason in GA
-------------------- Here for my wife who was diagnosed with Lyme in the Fall of 2007. Diagnosed after numerous visits to the dr and a Igenex positive test for chronic Lyme. Posts: 34 | From North Georgia | Registered: Jan 2008
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Son's blog born at 24 weeks. Posts: 356 | From massachusetts | Registered: Jan 2009
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bettyg
Unregistered
posted
jason, i understand where you are coming from.
however, our enemies, idsa, monitor our boards also so it's best NOT TO GIVE TREATMENTS of which meds and DOSAGES they recommend as they will use the state info where you are from to narrow it down to this llmd does this and this md does that.
then someone will file CHARGES using that state's health dept. like the charges being held on conn. dr. jones, kids llmd; 3rd year of hearings at $100,000 a month for him to pay his lawyer for all their services!
so please don't list the meds here, etc. you can do this by PRIVATE MESSAGE with the sender but NOT ON PUBLIC board.
go to your profile; on right side read down thru the 6 choices; read AGREEMENT provisions; i believe it is covered in there stating what i mentioned above. can't remember due to neuro lyme.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Jason, sending you a private message. -Paul
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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What sort of specific treatment would a person do for that? She has taken so much stuff over the past few years it's hard to keep up.
-------------------- Here for my wife who was diagnosed with Lyme in the Fall of 2007. Diagnosed after numerous visits to the dr and a Igenex positive test for chronic Lyme. Posts: 34 | From North Georgia | Registered: Jan 2008
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-------------------- Here for my wife who was diagnosed with Lyme in the Fall of 2007. Diagnosed after numerous visits to the dr and a Igenex positive test for chronic Lyme. Posts: 34 | From North Georgia | Registered: Jan 2008
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Jason, I used Humaworm. Also oregano oil, uva ursi, and plant tannins. Enula by Nutramedix also helped.
Has she been tested for heavy metals?
I have had Lyme for 35 years. Treated for 2 on abx/herbs/antimalarials. I did combinations of abx, usually several at a time. Felt good as long as I was taking them, crashed when I went off them twice.
Went to Germany for Bionic 880 treatment last Oct and have been using it ever since.
95% better.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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