posted
hi all, my blood work came back from my pcp and is negative for lyme
the doctor just tested for antibodies only or titers I guess??
Not a western blot or anything like that. It was positive 5 years ago did 18 mo.
Antibiotics then went off and have been off for 4 years.
Could I still be relapsing even with this negative result?
Do I have to get on the antibiotics if I think I may be relapsing and or will I get worse if I don't?
My pcp set up an appt. with a neurologist for me for the numbness and pin and needles that I am experiencing.
Dr. D called in a prescription which was over $300 and then set an appt. for 3 months from now.
I couldn't pick it up as I cannot afford that!
My head is spinning right now as I still have no idea which direction to go in and certaininly don't want to get worse. Any advice is greatly appreciated.
posted
You are wise not to 'wait and see'. Time is of the essence when it comes to rebounds. I'M NOT A DOCTOR, but in my experience the rebounds have figured out your last treatment so we had to shuffle the treatment around a bit. |
Lyme is quite intelligent. It's PRIME DIRECTIVE is to duplicate and to do so they need to reproduce and to do that they need to eat whatever they eat in our bodies. They are able to sense the attack and are able to adapt.
That's why we are constantly switching my protocols, being more effective than staying on Rocefin for such a long period of time which takes it's own toll on my body. That's another story.
Boils down to if Dr. D is an LLMD, ask him about pulse therapy or switching protocols around ahd see what he thinks. Collaboration is essential, and you must truly be your own advocate, or have somebody close to you be your advocate when you're too sick to explain everything to the doc.
My dad is my advocate, and takes me to every dr. appointment from my GP to my pain psychologist to my naturpath to my LLMD to my neurosurgeon and especially when I end up in the ER or hospital. That's when I'm in bad shape and can hardly talk or think without sinking. Somebody needs to help you fight this battle!
You and everyone else afflicted by Lyme are in my prayers!
In His care, Jenn
-------------------- When given lyme make lymeade! A tick check a day keeps lyme away! [email protected] Raising awareness by creating as many lymebassadors as possible! Posts: 158 | From Northern Wisconsin | Registered: Oct 2005
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posted
Thanks guys for the responses it is 4 am here so as you can see I am losing sleep over this.
I just can't believe after 4 years I am going down this road again.... so frustrating.
Guess the bottom line is I need to see an LLMD and have them tell me what I need to do since I can't figure it out.
My guess is that I never eradicated the Lyme 4 years ago just got it under control enough to function and the fatigue and arthitis never went away even over the last 4 years.I have pretty much lived on advil and aleve for so long now.
I will set up an appt. with the doctor in Western Mass and go from there. Guess if I herx then I will no for sure if it is the Lyme??
Also, does the arthitis ever go away? I did a search and didn't see anything about anyone actually having it completely gone?
Yeah, this numbness thing is scary and you are right Jenn I shouldn't ignore it as much as I would like too.
The other thing that is so odd to me is I never had arthitis in my knee and have that now as well. Who would think after 4 years I would have new symptoms...so strange
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