Topic: Who has recovered with antibiotics without relapses?
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi everyone,
I was just wondering how many people here would consider themselves recovered after taking antibiotics and have not really relapsed?
How long were you on the antibiotics until you felt almost/or fully recovered?
Thanks for any input.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hello? Hello? Hello?
Fortunately not many will be responding!
Hopefully they will be out and about.. with Lyme as a thing of the past.
So PLEASE don't get discouraged if you don't see many people still here saying, "I'm cured!"
They were here before and are now gone. Thank goodness!
BTW- Approximately 40 percent of those treating with the standard IDSA garbage guidelines have been shown to relapse.
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks, tincup! Hopefully someday we won't need to be here either....except that someone else may need our help.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
almost everybody here on lymenet has relapsed after stopping treatment, to varying degrees. It's just a matter of restarting treatment each time it happens. But as time goes on the severity of each relapse should diminish and the occurrences should get less frequent. Eventually the relapses should stop, or be very low grade such that the immune system can do it's thing and put it out without the help of abx or herbs. One reaches this stage when quorum sensing mechanisms like biofilm have been cleaned out.
Posts: 655 | From USA | Registered: Sep 2007
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
quote:Originally posted by yanivnaced: But as time goes on the severity of each relapse should diminish and the occurrences should get less frequent. Eventually the relapses should stop, or be very low grade such that the immune system can do it's thing and put it out without the help of abx or herbs.
Yep, yep! My relapses are becoming less and less severe.
The big Dr B is one who recovered using abx, after a few relapses and re-starting abx.
The people who are cured are no longer hanging around here, with the exception of a few dedicated souls who are committed to helping those of us still sick.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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I do not consider myself curred but am in remission. I did take only abxs and supplements. I am 95% up the hill.
I will be wrapping up only two years of treatment next month and feel sure there will be a relapse at some point. My LLMD feels the same way and only has me on Doxy. at present and maybe forever as a maintance.
I live in a epidmic area, had ten bands postive, many other poistive blood test indicators, and had a yes answer for many of the listed symptons.
I belong to two support groups and bring what ever info I can about this life treating epidmic.
I have expressed my deep down thoughts on why I have responded so well to treatment and do not plan on leaving the LYME issue after climbing this long hill. I believe my case was for a reason, to help educate, bring awareness, and a form of better treatment and test for LYME.
The above could become much harder to get done as the LLMD who has made this challenge possible is lying on the tracks and the train has left the station. I can only hope for a derailment.
Posts: 108 | From maryland | Registered: Sep 2007
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-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Good to see you here again Tincup.
I dont know If I should feel good that Im still posting here, but its nice to know that some "never forget" about all those that are still suffering with Lyme and or company!
Posts: 2905 | From New England | Registered: Sep 2004
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adamm
Unregistered
posted
I personally know 3, though they were never members of the forum.
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks everyone for your responses! Never lose faith that we will all recover!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I think it depends on a few issues...
how long you have been ill
how long after you were exposed did you start treatment
if you have other co-infections
what your genetics are
how well you can tolerate long abx courses
whether you can afford the medications & doctors
Some people just can't tolerate the long treatments with abx so they have to find other ways.
Hopefully, the drugs will work & you won't have to look for other means to get well.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
me.
80% on most days now.
went from completely dibilitated.
unable to walk or talk. literally.
it can be done.
high dose multi class oral combos.
IV if necessary. i did one year.
comprehensive treatment is crucial.
EVERYTHING must be addressed.
hang in
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I am recovered from lyme, babs, and bart. Stopped antibiotic treatment almost 4 years ago. Have NEVER relapsed.
I went up the "food chain" of lyme docs until I found one who knew enough to cure me.
Spent 2 years with lesser docs until I found this guy. He cured me in 1 year using the Burrascano protocol.
Total, I took antibiotics for slightly over 3 years continuously.
After about 18 months, I was symptom-free. But, I could not stop antibiotics without getting sick & back to square one within 2 weeks. That's because I had never been tested or treated for co-infections.
Final doc did the Igenex tests, found the coinfections I had, treated the lyme with a cyst-buster (first doc to do that for me) and then treated the bart, then the babs. Case closed.
I hang around to help point others to the good docs. The doc is the key to recovery. And obedience of the patient, of course.
Posts: 9931 | From Maryland | Registered: Dec 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
TF, who was your LLMD? You'll see in the 'Seeking a Doctor' session, I'm looking for the very best.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks sparkle, DJF and TF!
I have real confidence that my LLMD is one of the best and I will get better.
My LLMD was disabled for 5 years, in a wheelchair and unable to work, and now looks very healthy.
His wife was also very sick, as well as his 2 sons. All have recovered. No wonder he is a great LLMD!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
I would say I qualify! I've been off abx for 4 1/2 yrs and do not feel I have relapsed. I've had other health issues, but don't herx when taking abx.
I took abx for 4 yrs.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks Lymetoo....good for you!!!!!!!!!!!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Lymetutu is using Rife to keep symptoms down, if I remember well. Does that mean remission?
I'm off abx for lyme for years. I only took a bit of them, not even a month in all I think...
Am I in remission? No. I've been on and off remission though, but now I'm fighting active infection.
People that need doxy or amoxy forever to be in remission, I wonder, is this REAL remission??
In my opinion, there's a big difference in being symptom free WITH MEDICATION or HERBS or RIFE or whatever treatment you are doing, and being in REMISSION, meaning, in my view, ZERO treatment for lyme bacteria or lyme symptoms and STILL being symptom free for months or years.
I may be wrong, but that is how I see the terms 'remission' and being 'symptom free'.
Both are EXCELLENT because life can go on well, but they are not interchangeable in my opinion.
Posts: 6200 | From Brussels | Registered: Oct 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Brussels,
thanks for your input.
I hope you can get the active infection under control. Maybe it will take just the right combo and dose of meds to help you.
good luck!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
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