Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Smjkoj,
Wow, he was so young, too young. I have read of Lyme disease victims whom they found the spirochete in the heart or brain. I don't know if they would routinely test for that.
I am 30 and have told my husband many times that if I should die to make sure they check for Lyme Disease. The word needs to be out there that this diesase does kill.
You are right in that he is free now. Out of the misery that is Lyme. You seem like such a courageous, strong woman and you took such good care of him.
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Smj,
I cannot even begin to express in words how sorry I am for your loss. I hope you will take great comfort in the fact that you were all you could be for him while he was here on earth.
Your love, care and concern for him and his health were obvious in all of your posts. He was lucky to have such a strong soul supporting and loving him throughout his journey with Lyme.
God bless you and may angels hold you tight in there arms while you deal with the loss of your beloved husband.
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
Other than stroke or heart attack one other possibility would be sleep apnea. This is a common problem Lymies have and it can kill in some cases.
So sorry for your loss.
It really makes me mad every time I read of another death from Lyme or another tick-borne illness.
Stay strong.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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I am so very sorry to hear about the loss of your Karl. I can't begin to imagine what you must be going through. But please remember that we are here for you and will support you in whatever way we can during this difficult time.
May God bless you and keep you. And may you be surrounded by much love and comfort.
Fuzzy
Posts: 503 | From Maryland | Registered: Oct 2007
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posted
I am so sorry for your loss. My prayers are with you and your family.
Kindly, Barb
Posts: 167 | From USA | Registered: Jul 2008
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
This is soo sad, such a young man.
I hope these guys will find the right cause of death. It's important to know, for his peace and yours.
Bless you and your family. Selma
Posts: 6199 | From Brussels | Registered: Oct 2007
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blaze
Unregistered
posted
You're in my thoughts and prayers <3
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bettyg
Unregistered
posted
smj,
THANK YOU for coming back and updating us about karl! wow, 34 !!! healthy 1 year ago.
this damn disease that takes so many young people who have not begun to enjoy life as i have; i'm 59, and i'm so glad i have treasured what i have to date.
thank you for giving karl's name also so we can be on alert for local newspapers in your state.
wow, your inlaws on vacation and the drive/flight back knowing their son has died.
best wishes; we are praying for you and karl! he's NOW HEALTHY and will come and visit you constantly. LOOK FOR THE PENNIES HE WILL BE DROPPING!!
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posted
I am glad your husband is no longer suffering and angry that the doctors ignored you. He was too young to die. I'm very sorry for your loss.
Posts: 984 | From San Diego | Registered: Nov 2006
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I've written you a song. Music is included. It titled it "Living Is Dying"
I provided the lyrics alone near the bottom.
Acoustic Guitar, Strummed
Fmin-----------Fmin alt E--0----------------0-------- B--1----------------1-------- G--2----------------0-------- D--3----------------3-------- A---------------------------- E----------------------------
Fmin----------------Fmin alt I wish, things were different Fmin----------------Fmin alt I wish, that things wouldn change
Fmin --------------- Fmin alt Like all of the seasons
C Spring welcomes rains
F Summers heat on the pavement
C Falls colors change
First line of second verse Fmin ---------Fmin alt E--0----------------0-------- B--1----------------1-------- G--2----------------0-------- D--3----------------3-------- A---------------------------- E----------------------------
I wish, that I was flying Fmin --------Am7 E--0------------0------------ B--1------------1------------ G--2------------0------------ D--3------------2------------ A---------------------------- E----------------------------
I was free like a dove
C Peaceful and silent Am No suffering anymore F These dreams aren't sufficient
Cadd9 Grace G Won't you visit Am Strengh C--------------F Don't fail me now
Repeat first verse
Fmin------ Fmin Alt If living, is dying Fmin-------Fmin Alt All lovers, loving together
C ------------------------- Fmin Some suffer, their cross hard to bare F Dry your eyes, remember the good times
Cadd9 Faith G Won't you visit Am Love C I'll carry on
Bridge:
None yet.
Strum first two lines
Fmin ----------------Fmin alt I wish, things were different
Fmin-----------------------Am7 I wish, that things would change
Fmin---------------Fmin alt Like all of the seasons
C Spring welcomes rains
F Summers heat on the pavement
C Falls colors change
Conclusion
Fmin--------------------Fmin alt Your memory, you're dark Winter waters. Fmin -----------------------------Fmin alt It's a bitter end, like salt of the ocean
F It's this bitter end where the sweet begins. C-------------------F Once an illusion, we're one once again.
Am With love lives our purpose,
C I'll carry on, Because love is the motion, the movement is change
------At the word "movement" above pick notes as follows for outro:
----Fmin-C---F--Am--Am7-Cadd9------G------Fmin alt E--0----0----1---0------0----0---------3--------0-------- B--1----1----1---1------1----3---------3--------1-------- G--2----0----2---2------0----0---------0--------0-------- D--3----2----3---2------2----2---------0--------3-------- A-------3-----3----------0----3---------2------------------ E-------0-----0----------0----0---------3------------------
Lyrics Alone:
I wish, things were different I wish, that things would change Like all of the seasons Spring welcomes rains Summers heat on the pavement Falls colors change
I wish, that I was flying I was free like a dove Peaceful and silent No suffering anymore These dreams aren't sufficient
Grace Won't you visit Strengh Don't fail me now
If living, is dying All lovers, loving together Some suffer, their cross hard to bare I dry my eyes, remember the good times
Faith Won't you visit Love I'll carry on
I wish, things were different I wish, that things wouldn't change Like all of the seasons Spring welcomes rains Summers heat on the pavement Falls colors change
Your memory, you're dark Winter waters. It's a bitter end, like salt of the ocean It's this bitter end where the sweet begins. Once an illusion, we're one once again. With love lives our purpose, I'll carry on, because love is the motion, The movement is change.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I am so very sorry to hear of the death of your beloved husband, Karl, at such a heart-breakingly young age.
And so very sorry that you as a young wife have to experience this overwhelming grief.
My thoughts and prayers are with you and your family.
Posts: 345 | From East Coast | Registered: Apr 2008
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
hang in there during this terrible time. I'll light a candle for you. I am so deeply sorry for you and your husband.
Posts: 1173 | From USA | Registered: Nov 2007
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posted
So very sorry for your loss. My thoughts and prayers are with you.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Still praying for you and the tragic loss of your husband.
I just don't have the words to express myself adequately.
Wish I could be there to hold and comfort you.
Sending Angels of Peace and Comfort during this most difficult time.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Dear SMJ,
I'm so very saddened to learn of your terrible loss.
I truly appreciate the musical tributes that have been posted here--they reminded me of someone I knew and cared about deeply who was killed in an accident when he was about 23.
Thank you for taking care of his parents.
Thank you for caring.
Love,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
You are in my heart and in my prayers.
Posts: 636 | From Saratoga County, NY | Registered: Apr 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Words cannot express how we feel for you and yours during this time. The why's to it all have to be overwhelming.
May God give you strength and peace soon.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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bettyg
Unregistered
posted
she will post when things calm down. i'm guessing tonight is visitation; FUNERAL IS SAT.
her earlier post showed on autopsy but perhaps there was something else STILL TO COME, and she will post that whenever she hears and is up to it.
thoughts and healing prayers continue going your way during this stressful time!
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posted
I am so sorry! This must be so hard for you and your family. May God rest his soul. Amen.
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
My continuing condolences....
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
I am so so sorry for your loss. Too young to die and too horrible a disease for all of us to comprehend. The love of everyone here is with you.
Posts: 55 | From New York | Registered: Nov 2008
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posted
Please accept my sincere condolences and my wish for you to have the strength to get through these new few days and weeks I hope you do take some comfort in knowing your beloved husband is free of disease and whole again and at peace. Bless you and your family.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Karl O. Joedicke POSTED: February 27, 2009
Karl Owen Joedicke, 34, died Friday, Feb. 20, 2009, at his residence in Centreville, Va.
He was raised in Falling Waters and attended high school in Hedgesville and attended Shepherd College.
He also had worked for ATF in Martinsburg and was currently employed with the Department of Treasury in Washington, D.C.
He is survived by his loving and devoted wife, Stacey M. Joedicke; his parents, Ingo and Donna Joedicke, of Falling Waters; his sister, Jenine Gardner and Doug, of Hedgesville; his grandparents, Esther and Robert McCarthy and Gisela and Erwin Joedicke; and several nieces.
Funeral services will be held at noon Saturday, Feb. 28, at Church of the Holy Comforter, Vienna, Va.
The family will receive friends one hour prior to the service at the church.
Entombment will follow at Stonewall Memory Gardens in Manassas, Va.
In lieu of flowers, donations may be made in his memory to the Lyme Disease Association Inc., P.O. Box 1438, Jackson, NJ 08527 or Church of the Holy Comforter, 543 Beulah Road, Vienna, VA 22180.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
thanks tracy for posting his obituary.
now we have a chance to go online and send stacey our condolences, etc.
LDA, NJ ... great; i wandered who in lyme community she would have memorials to go to!
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I just signed the guestbook. I agree Betty, I think it will be a nice gesture for us all to do that.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
tracy, saw yours there; i could NOT get mine down to 1000 characters!! worked 20 minutes on that.
yes, then she can print out or even have BOOK BOUND all comments on karl!
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Just beautiful, Betty.
I didnt' want to seem like we are using this for a "soap box" but I do think it's incredibly important that we are, in addition to leaving our caring messages of sympathy, also bringing light to the fact that this poor man died of Lyme Disease.
It isn't mentioned anywhere else except in the donations area.
I think we can both offer some support and spread some awareness; this guy worked for the US Treasury Dept in Washington, DC!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
My heartfelt sympathy to you in the loss of your husband.
I understand because I lost my husband four years ago. My LymeNet friends were so supportive and helped me through the difficult days. We are here for you, too.
It's wonderful that memorials will be given to help others with this dreadful disease.
May you be blessed with peace and be surrounded by love and support.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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bettyg
Unregistered
posted
tracy,
i read many of the posts left by co-workers! he had 2 different jobs, and i'm forgotten what they were but important since he also was a SUPERVISOR!
i'm going to copy karl's obituary and post it on DR. OZ/OPRAH request for LYME SHOW in MEMORY OF KARL!
IN MEMORY OF KARL Joedicke
Wife Stacy wrote, "Karl was only 34. Way to young to die. He started with this in January 2008. Never did we think he would be dead a year later.
I'm going to keep fighting this fight for him because no one deserves this. They did an autopsy and found no cause. They are now doing toxicology. It's such a nightmare because I want to scream at them what the cause is, but they will never listen.
Karl O. Joedicke POSTED: February 27, 2009
Karl Owen Joedicke, 34, died Friday, Feb. 20, 2009, at his residence in Centreville, Va.
He was raised in Falling Waters and attended high school in Hedgesville and attended Shepherd College.
He also had worked for ATF in Martinsburg and was currently employed with the Department of Treasury in Washington, D.C.
He is survived by his loving and devoted wife, Stacey M. Joedicke; his parents, Ingo and Donna Joedicke, of Falling Waters; his sister, Jenine Gardner and Doug, of Hedgesville; his grandparents, Esther and Robert McCarthy and Gisela and Erwin Joedicke; and several nieces.
Funeral services will be held at noon Saturday, Feb. 28, at Church of the Holy Comforter, Vienna, Va.
The family will receive friends one hour prior to the service at the church.
Entombment will follow at Stonewall Memory Gardens in Manassas, Va.
In lieu of flowers, donations may be made in his memory to the Lyme Disease Association Inc., P.O. Box 1438, Jackson, NJ 08527 or Church of the Holy Comforter, 543 Beulah Road, Vienna, VA 22180.
posted
I was just on memory book, and 2 others w/lyme commented also including robin123 and another one!! very nicely done ladies!
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Yes, I see Lymie Lauren commented too. I think we need to support Stacey by showing her our support coming from the Lyme community on his memorial page.
Wonderful idea Betty to send this to Oprah/Oz. Way to go!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i am so very sorry to hear this. my love and thoughts are with you and your family.
posted
tracy, i don't know if oprah's moderators approved it or not. i checked several times, and it had not showed up then.
when i get done here, i'm going back to oprah's site to read folks comments to see IF it does appear or not.
that's telling it like it is; if it does show up, i'll look for the other 2 people, 47, who committed suicide also and post there obits as well in MEMORY OF THEM.
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posted
I had tears when I read this. Im so very sorry for your loss (((Stacy))). My heart is with you and your family.
Posts: 56 | From SouthWest | Registered: Jul 2008
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I am so sorry about your husband. Both of you have been in my prayers. Stay strong and know that we are here if you need to vent or talk. I hope you can find some peace.
Teresa
-------------------- Powerful Women's Motto: Live your life in such a way that When your feet hit the floor In the morning, Satan shudders & says� 'Oh ****!...She's Awake!!
posted
i'm going to post this again, and hopefully, it will be POSTED without the link to memory book since NO WEB SITES CAN BE MENTIONED! I forgot 1st time!
tracy,
i read many of the posts left by co-workers! he had 2 different jobs, and i'm forgotten what they were but important since he also was a SUPERVISOR!
i'm going to copy karl's obituary and post it on DR. OZ/OPRAH request for LYME SHOW in MEMORY OF KARL!
this would be post 725 **************************
IN MEMORY OF KARL Joedicke
Wife Stacy wrote, "Karl was only 34. Way to young to die. He started with this in January 2008. Never did we think he would be dead a year later.
I'm going to keep fighting this fight for him because no one deserves this. They did an autopsy and found no cause. They are now doing toxicology. It's such a nightmare because I want to scream at them what the cause is, but they will never listen.
Karl O. Joedicke POSTED: February 27, 2009
Karl Owen Joedicke, 34, died Friday, Feb. 20, 2009, at his residence in Centreville, Va.
He was raised in Falling Waters and attended high school in Hedgesville and attended Shepherd College.
He also had worked for ATF in Martinsburg and was currently employed with the Department of Treasury in Washington, D.C.
He is survived by his loving and devoted wife, Stacey M. Joedicke; his parents, Ingo and Donna Joedicke, of Falling Waters; his sister, Jenine Gardner and Doug, of Hedgesville; his grandparents, Esther and Robert McCarthy and Gisela and Erwin Joedicke; and several nieces.
Funeral services will be held at noon Saturday, Feb. 28, at Church of the Holy Comforter, Vienna, Va.
The family will receive friends one hour prior to the service at the church.
Entombment will follow at Stonewall Memory Gardens in Manassas, Va.
In lieu of flowers, donations may be made in his memory to the Lyme Disease Association Inc., P.O. Box 1438, Jackson, NJ 08527 or Church of the Holy Comforter, 543 Beulah Road, Vienna, VA 22180.
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posted
Thank you for posting the obituary notice for me.
Someone asked about the autopsy. From what I've been told the autopsy didn't reveal anything and the toxicology is still pending (that will takes months to get).
Bea - it's funny (in the ironic way) that you bring up sleep apnea. He just had the sleep study done the night before and did have it. His shortness of breath was worse that day, so it may have been a combination of factors.
I'm going to speak with the medical examiner to review Karl's illness over the past year. This is a sensitive subject, but if the examiner still has tissue/organ samples (I have no idea if they would or not), I would like for them to be sent to a lab for lyme testing. Do you know a lab I can contact about this?
Again, I really appreciate all the kind words on here.
Peace,
Stacey
Posts: 26 | From Virginia | Registered: Apr 2008
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bettyg
Unregistered
posted
STACEY, so good to see you post again, and i'm glad i had your blessings to post karl's obituary!
i haven't been to oprah's site this afternoon yet to see if they allowed it this time w/out memory book link!!
fyi, i recently had colonoscopy done, and 3 polyps were removed. i wanted to know if hospital lab still had them; took me 7-10 days. no one would outright say, YES OR NO, WE HAVE THEM!
i was going to have 1 sent somewhere for testing of something i learned about here, but my new PCP DECLINED to have it done! what will you learn, etc. so i gave up.
so based upon my conversation w/women in lab who finally said, WE KEEP ALL TISSUE SAMPLES! my guess is yes.
yes, i'd want them sent somewhere; sorry i have NO KNOWLEDGE WHERE! others will come on like TINCUP.
or send a note to ILADS contact me!! www.ilads.org ... i received an email back same day from executive elizabeth there! SHE WOULD KNOW!!
stacey, you and karl have been in our thoughts and prayers daily; now karl is looking down on you and thanking you for being an OUTSTANDING, SUPPORTIVE, AND LOVING WIFE who took on his lyme journey as a companion!
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I think IgeneX would be the best place to get testing. I called them to see if I could get info and they wondered if he had been tested before and were asking me questions that I didn't know the answers for. They said it would be good if you could call them.
800.832.3200
There was a post somewhere on lymenet about this kind of situation. I'll look for it and post it if I can find it.
Yes, I also thought of sleep apnea because I have it and I know it can be deadly.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Stacey, I would use both Igenex and Clongen -- Clongen has a much more thorough panel for babesia and bartonella than Igenex, but Igenex does seem the gold standard for Lyme.
You mentioned shortness of breath -- that could certainly be a cardiac issue. It could point to myocarditis or microvascular cardiac dysfunction. I hope you are able to get some answers and I hope they give some peace.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
From a message in October of 2007
"Dr. Paul Duray will still examine tissues for Lyme spirochetes free of charge if your family can get slices to him!!! Phyllis- pmerv- has the info on it!!!!!!!!"
i was posting on our oprah thread about a dr. oz, oprah, and under our skin andy wilson show, and when i went to private message someone whose comments were outstanding; something blinked there showing I HAD PMS ON OPRAH SITE!
i never see this type of thing; invisible to me.
bottom line: i submitted karl's obituary twice; BOTH WERE REJECTED!
1st had the memorybook link on; a NO NO!
i remembered that later, so reposted it again with NO LINKS ON; again it was rejected ... protecting privacy.
so since this did not say what violation i made, i wrote harpo board, and awaiting their comments.
if you feel like it or have the time, would you write your feelings to oprah about a LYME TV SHOW since you've gone the entire route: it being diagnosed, treated, going downhill, and the sudden death.
big thanks; but DO NOT FEEL OBLIGATED ok! -----------------------------------------
posted
It has been one month since my precious son died. I am so grateful for all your support to my dearest daughter-in-law. It is only through your prayers that we can survive this tragedy. My husband and I loved the peom by David Harkins and have posted at work. I would like to share another peom written by my very dear friend:
O shattered heart, Let time and tears become the glue of mending, Let jagged fragments once again become the shape of love.
O injured mind, Sweet memories bind the open wounds of loss, Let fine recall become the salve to heal.
O battered soul, Dwell shortly in the darkness of the night, Be not tempted by the promise of its friendship.
O valiant heart, Defend your grief with honor, Let life's joy be monument to your loss.
O weakened stride, Regain your strength to walk anew with wisdom The trodden path awaits the journey of the traveler.
C.M. HIXON 3/2/09
Posts: 1 | From Falling Waters, West Virginia | Registered: Mar 2009
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bettyg
Unregistered
posted
to karl's mom,
thank you for joining our board today in memory of your beloved son, karl, who was taken way too early in life by chronic lyme disease!
our hearts go out to each of you during your deep loss, sorrow, grieving, and resentment that a dr. did NOT correctly diagnose and treat him promptly.
i'm pretty sure i attached my link to my online sympathy collection, and may you find comfort in those there!!
i'm sorry i/we didn't know him personally, but we got to know him thru stacey.
we each share your deep loss; the world is better for karl's having been here on earth. he leaves a big step for others to step into.
if you would feel like doing some active lyme activism in what lyme disease has taken from you, please do these current things going on IF you are up to it in memory of karl
calling congress; your house reps and your 2 senators about our lyme disease bills being HELD up by the awful IDSA, infectious disease society aka infectious drs. who want to KILL OUR BILLS AGAIN!!
writing oprah asking for a lyme disease show in regards to UNDER OUR SKIN lyme dvd documentary and other shows bringing out more of this huge lyme war controversy and in your case ... the loss of one so young in life and many others who commit suicide since nothing is left; they have lost everything!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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This must be so hard for you and your family. May God rest his soul. Amen.
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