posted
My husband died Thursday night in his sleep. I would like to set up a fund for people to make donations to. Can someone please tell me the best organization for this - Lyme Disease Assocation? And how I need to do this?
Thank you for your help. I'm sure I could find this, but I'm a mess right now.
Thank you.
Posts: 26 | From Virginia | Registered: Apr 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi smjkoj,
I am so very sorry for the loss of your husband. You must be so overwhelmed right now.
I think the lyme disease association is one of the best from what I can see.
It is very kind of you to think of this at such a difficult time.
God Bless, you will be in my thoughts and prayers.
Take care.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Oh bless your heart, I can't tell you how sorry I am. I know that doesn't make it any easier for you, but please know that we are all here for you. Please use us to lean on and talk too---oh honey I'm sorry.
God bless you for wanting to do this! My guess is this is exactly what he would want and is smiling with pride upon you. May God be with you and yours always, but especially in your time of need.
My response I guess would be the same as Dekrater. I have wanted to start something like this for years, but like you; I'm not sure how to start it also. Ya know, if I remember right and I could be totally mistaken--------but Dr. Jones in CT. started a fund for children with Lyme. The whole office is very sweet and maybe helpful with some suggestions???
I don't know and I'm sorry, but I think these 2 places would be a good place to start. If we can help in anyway, PLEASE let us know by posting of PMing us.
God bless you dear. You and yours will certainly be in my prayers.
Posts: 351 | From Georgia | Registered: Feb 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
How horrible for you, I am so very sorry.
I think Dr. Jones Legal Fund and Turn the Corner Foundation are excellent possibilities as well. I believe the Turn the Corner Foundation funds the Lyme Aid for Kids.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Oh, smijkog, My family and I join together in sending you our deepest sympathies in the loss of your husband. Our hearts are with you and wish you comfort and support in every way possible.
God Bless.
Posts: 677 | From Virginia | Registered: Sep 2002
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I am so sorry about this and offer my deepest condolensces.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i will grieve with you. i am so very sorry for your loss.
if there's anything we can do here, i am sure all of us will be willing to help.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
I am so, so sorry for the loss of your husband. There are just no words to express the sympathy and concern we're all feeling for you.
Please do come here to talk, and lean on us.
My husband and I have discussed making donations to LDA and to ILADS. ILADS is the first choice.
If you need assistance with any of the specifics, many here will be honored to help you in any way we can.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
My deepest sympathy for your loss of your husband. It is very kind of you to think of helping others at this time.
Posts: 2557 | From home | Registered: Aug 2006
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Please consider sending an e-mail to Melanie with information so that your husband can be put on the Lyme memorial pages. Melanie's e-mail address [email protected]
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I sit here with tears rolling down my face at your loss. My sincerest sympathies to you and your family.
When will it end?
Please do consider adding your husbands name to the Lyme Memorial. And from all of us in the Lyme Community, sincerest thanks for the thought of donations at this difficult time.
God Bless, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I'm so sorry for your loss. May God be with you now and always. -peedie
Posts: 641 | From So. CA | Registered: May 2008
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
My condolences for your loss. May you find strength through your faith, family & friends.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I am so sorry for your loss.
As others have said, please come and lean on us as much as you need to.
May God bless you and comfort you now and always.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
smjkoj,
I am so very sorry to hear about your loss.
Others have given you links to the very best options.
My thoughts and prayers go out to you.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
Me too! i am very sorry for your loss, i will keep fighting for all future and past Lymies, that this doesn't have to happen to others.
Posts: 128 | From web | Registered: Dec 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
May you find peace through this difficult time.
I am so sorry that you are having to endure the tragic loss of your husband,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
I am so sorry for your loss.... My thoughts and prayers are with you and your family...
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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i'll enclose my sympathy poem collection to help you thru your deep loss, sorrow, and grieving period; may you find some that really touch your heart as they have me.
i think the I'M FREE AT LAST would be so appropriate for a chronic lyme death for all we've been thru over the years.
posted
even though i dont know you, i am so sorry you are going thru such pain now and i hope you have support during this terrible time, Radha
Posts: 392 | From New York | Registered: Dec 2005
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posted
I too am so sorry for your loss and the pain you are feeling. You are in my thoughts and prayers.
Posts: 561 | From mass | Registered: Jul 2007
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posted
I am so sorry for your loss... my prayers are with you and your family during this extremely difficult time.
Posts: 60 | From WI | Registered: Nov 2008
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posted
I am deeply sorry for the loss of your beloved husband. You are in my thoughts and prayers. God Bless!
Posts: 371 | From CT | Registered: Jun 2008
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
My deepest sympathy for your loss. Thank you for thinking of others at this time.
Keep him in your heart and he will be with you always.
We're all here for you.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
I don't come to Lymenet much, but logged on and first post I saw was yours.......... I'm so very sorry for your loss. Tragic.
Take care of yourself.
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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The flowers cut and brought inside Black cars in a single line Your family in suits and ties And you're free
The ache I feel inside Is where the life has left your eyes I'm alone for our last goodbye But you're free
I remember you like yesterday Yesterday I still can't believe you're gone Oh I remember you like yesterday Yesterday And until I'm with you, I carry on
Adrift on your ocean floor I feel weightless numb and sore A part of you and me is torn You're free
I woke from a dream last night I dreamt that you were by my side Reminding me I still had life In me
I remember you like yesterday Yesterday I still can't believe you're gone Oh I remember you like yesterday Yesterday And until I'm with you, I carry on
I'll carry on, I'll carry on
Every lament is a love song Yesterday, yesterday I still can't believe you're gone
Every lament is a love song Yesterday, yesterday So long my friend, so long
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I'm so sorry for your loss. May you find the strength needed to get you and yours through the next several days.
May this be a foot prints in the sand experience.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Ouch
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I am so sorry to hear about the loss of your husband. I will be keeping you and your family in my thoughts.
Posts: 67 | From SF Bay Area | Registered: Jun 2008
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
My condolences! Sorry for your loss.
Take care of yourself; and if you need to talk to someone don't forget, were always here for you!!!
You can PM me anytime if you'd like too.
Take Care, Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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posted
I'm so terribly sorry for your loss on your husband. We will keep you in our prayers and thoughts daily. God's Blessings!
Posts: 6 | From Ingleside, IL | Registered: Jun 2008
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posted
I just don't have any words to convey my deepest sympathies. I'm so terribly sorry. TS
Posts: 566 | From West Coast | Registered: May 2008
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
So sorry for your loss at this time. We'll keep you in our prayers
Posts: 1276 | From maryland | Registered: Jan 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I hope in time your heart will heal. I'm so sorry for your loss. My condolences...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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bettyg
Unregistered
posted
mike, those were beautiful words in the song above you posted. xox
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
So sorry to hear this.
We prey for your peace and strength at this trying time.
Thank-you for thinking of our Lyme community in honor and remembrance of your husband.
God Bless You-
Greta
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
I am so sorry for your loss of your husband. This disease is terrible. You are courageous to want to do something positive so soon to honor him. You are in my thoughts and prayers.
Posts: 262 | From nj | Registered: Dec 2007
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I'm so, so sorry. :-( This breaks my heart. You and your family will be in my prayers.
I would like to post this. It's beautiful and reading it made me tear up:
You can shed tears that he is gone, or you can smile because he has lived. You can close your eyes and pray that he'll come back, or you can open your eyes and see all he's left. Your heart can be empty because you can't see him, or you can be full of the love you shared. You can turn your back on tomorrow and live yesterday, or you can be happy for tomorrow because of yesterday. You can remember him, only that he is gone, or you can cherish his memory and let it live on. You can cry and close your mind, be empty and turn your back Or you can do what he'd want: smile, open your eyes, love, and go on. ~ David Harkins
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
So sorry to hear of your loss. May God Bless you and your family.
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
Has anyone heard from SMJ???? I have come back to this tread at least 10 times since last night. It is really worring me and I don't know why (other than the obvious)???!!!!
Mettalic Blue----beautiful!!!!!
Disturbedme---very nice.
If anyone has had contact with her, please PM me or post it??? If anyone hears about a fund, or if the is a memorial site posted for him; would you mind PMing me please????
I just remembered that this is my last night on my week break from tx and have to start all abx. back tomorrow. So I'm afraid of not be able to look at the comp. for a while, but I can see PM's from my phone as it is not as bright.
God Bless
Posts: 351 | From Georgia | Registered: Feb 2008
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bettyg
Unregistered
posted
i figure tonight was perhaps visitation and tomorrow funeral, etc.
i'm sure she will post as soon as she feels up to it unloading all the grief/stress she has been going thru since this happened suddenly.
come back when YOU FEEL UP TO IT; we're always here for you.
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It's been about two hours since I posted and I can't sleep. I keep getting angry, then crying. I then go to all of the sites posted to reads about yhe IDSA guidelines and all suggestions on how and what to address in a letter.
Them I try to compswe a letter and I CAN'T!!!!!!!!! I can't seem to put my thoghts, my words,-----can't even strat it!!!!!!!!!!! WHY???!!!
I'm sorry its just that I;m so upset right now, but i know complaining doesn't help any. It's just that there was a time that I cuold write a porfessional letter, abfter staying up all night doing research to back the letter. Now----I'ts hard to post right now.
I hate waht is happening to people. And most want to uren their heads to it all untill they have a faimly member orf them themselves are infected. Why!!!!??????? I honestly don't understa nd!
Some say money-----------sorry, cant' except that one. There is no amount of mon ey can replace a lost life ofr quility of life.
Polotics-----Nope, I can't except that either!!! Bavere has there been a time when all agree on any one issuse.
Oh I'm sorry, i can see all of the mistakes im making but i can't correct them right now.
Betty----Please pray that the Lord will opens the eves of so many woh are responsa ble or have a pert in patients not being diagnosed right, having correct treatment,---yhou know.
God bless you all
Posts: 351 | From Georgia | Registered: Feb 2008
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posted
Sorry for your great loss. Wishing you lots of support in the days to come.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
I am so very sorry, what a tragic loss. Please accept my heartfelt condolences.
How kind of you to think of others at this time. You are in our prayers.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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posted
I am thinking of you and your family. This is just so very sad and we are all thinking of you and lifting you up in prayer.
I pray your pain will ease with time and you will forever be filled with only the good memories of you and your husbands life together.
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
So sorry for your lose. I am praying for you and your family during this very hard time.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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You all are such a blessing. Thank you for these words. I will read them again later on because everything is just a haze for me. I'm still in disbelief and the heartache is unimaginable. You know what Karl was going through, though. I know he is free of his messed up body and is healthy and whole again.
Karl was only 34. Way to young to die. He started with this in January 2008. Never did we think he would be dead a year later.
I'm going to keep fighting this fight for him because no one deserves this. They did an autopsy and found no cause. They are now doing toxicology. It's such a nightmare because I want to scream at them what the cause is, but they will never listen.
I will post the obituary notice. His funeral is scheduled for this Saturday. His parents were on vacation and I had to wait until they could get flights back to plan anything.
Peace be with you.
In Memory of Karl Joedicke July 30, 1974 - February 20, 2009
Posts: 26 | From Virginia | Registered: Apr 2008
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