I know we used to have a great check list for Lyme symptoms. I have searched and cannot find it.
If anyone has it could you please either PM me or post it?
I am teaching a group of high schoolers tommorrow about Lyme disease and I would love to send them each home with the list.
I have them for Bart, Babs and Erlichia. I thought I had one for Lyme, but I cannot find it.
LYME BRAIN strikes again!
Thanks,
Gail
-------------------- Gail Posts: 234 | From Sterling, Ma | Registered: Jan 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
This isn't the one that you're referring to, but it might help, although coinfection symptoms may be on the same list....near the back of this booklet by lymepa.org:
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
The Canadian Lyme Disease Foundation has a list.
posted
Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
The following signs/symptoms may be present in those infected with Babesiosis: Fatigue Arthralgias Myalgia Drenching sweats Headaches Emotional lability Depression Dark urine Splenomegaly Dizziness Nausea and vomiting Cough Dyspnea Fever Chills Hepatosplenomegaly Jaundice Malaise Shortness of breath Bleeding tendencies, bruising Thrombocytopenia Hemoglobinuria Hyperesthesia Pulmonary edema Encephalopathy Low to normal range leukocyte counts Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection. An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients with Bartonella. Note: Approximately 50 percent of patients who develop Encephalopathy can be affected by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches, Cognitive Dysfunction, and CNS Lesions may be evident.
RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the head, and neck. The papules may appear on the skin or mucous membranes. Bartonella may also cause subcutaneous nodules, with some bone involvement possible. The nodules may show some hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.
EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud's Oculoglandular Syndrome, and Papilledema. BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis, Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.
HEART: Endocarditis, Cardiomegaly. Possible lab findings: The following may show up during standard testing: Thrombocytopenia, pancytopenia, anemia, elevated serum alkaline phosphatase level, elevated bilirubin, abnormal liver enzymes. X-ray of the bone may show areas of lysis or poorly-defined areas of cortical destruction with periosteal reaction. Cardiomegaly may show up on a chest X-Ray.
Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis. Reports of biopsies strongly suggestive of lymphoma do occur. Tests occasionally show an enlarged liver with multiple hypodense areas scattered throughout the parenchyma.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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-------------------- Gail Posts: 234 | From Sterling, Ma | Registered: Jan 2008
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bettyg
Unregistered
posted
``CHILDREN'S'' LYME SYMPTOMS compiled by Geneal 6-07 From ``GENEAL'' June 2007
I have been doing some research regarding Lyme and signs/symptoms in small children.
I know many of you have small children that you may be concerned about. I believe my youngest child (4yrs old) may have gotten this disease from me.
For All Children
-dizziness -neck pain and stiffness in almost 90% -sore throats -swollen lymph nodes -excessive thirst, -Chest pains in at least 70%, some have palpatations -Sense of air hunger or shortness of breath, dry cough
-abdominal pain in about 50%, can mimic acute appendicitis -sometimes vomiting, heartburn -rashes that come and go, malar rashes, new psoriasis
-migratory arthralgias, joing pain in 50% to 100% -myalgias in over 80%, back ache, morning stiffness, pain at rest, muscle weakness
-frequent illnessses, dark circles under their eyes -intermittent red, hot pinnae of ears -sleep disturbance in over 80%
-Neurological symptoms are protean and can appear AT ANY TIME during the course of infection *hypersensitivity of skin, scalp and hair *Hypersensitivity to noise, light, smell *Alterations of taste *poor balance and coordination *Uncharacteristic behavior outbursts, mood disturbances, depression *social withdrawal *New onset phobias *Oppositional behaviors *Obsessive compulsive disorders *Deterioration in school performance in over 90% *Difficulty with concentration and attention in school with easily distractibility as well as "brain fog" in over 80% *New onset of ADD
*When measured with formal neuropsychiatric testing, children demonstrate defects in auditory and visual sequential processing
Less Commonly:
*Movement disorders-spaticity, ataxia, motor or vocal tics *Cranial neuropathies, e.g. Bell's Palsy or optic nerve neuritis *Peripheral neuropathies-numbness and tingling, distal parathesias, subtle weakness
Pre-Schoolers and toddlers
- Modd swings, sudden emotional outbursts - Irritabiity - Personality changes - Regression of motor and social skills (developmental milestones) - Changes in play behavior, tire easily, less active
- Trouble falling asleep, frequent awakenings - Nightmares, new phobias, recurrence of seperation anxiety - Diaper rash unresponsive to normal treatment - Frequent URI's, ear and throat infections, bronchitis, pneumonia
Congenital Lyme Disease
* Infants can be infected with Borrelia transpacentally in any stage of pregnancy and/or via mother's breast milk.
* The co-infections: Babesia, Bartonella, Mycoplasma and perhaps even the Ehrilichias can be transmitted transpacentally to the developing fetus.
* Gestational Borreliosis can be associated with repeated miscarriages, fetal death in utero, still births, hydrocephalus, cardiovascual anomalies,
intrauterine growth retardation, neonatal respiratory distress, and maternal toxemia of pregnancy.
* Infants either infected congenitally or from breast milk can have
- Floppiness with poor muscle tone - Irritability - Frequent fevers and illness early in life - Joint sensitivities and body pain - Skin sensitivity - Gastro esophageal reflux - Developmental delays -Learning disabilities and psychiatric problems
* Infants bitten very early in life will have many of the same symptoms - loss and decline in developmental milestones.
I found this to be a pretty inclusive list of signs/symptoms for small children, infants, and those suspected of congenital Lyme.
Sadly, my two children do exhibit many of these symptoms and both have positive bands for Lyme via Igenex diagnostic lab in PALO ALTO, CALIFORNIA. Geneal, 2007
**********
Symptom Check List...
The Bite 1. Tick, mosquito, flea, deerfly, or horsefly bite 2. Rash at bite site 3. Rashes at other sites 4. Rash basically circular and spreading 5. Raised rash, disappearing and returning (Note: EM rash appears in less than 50% of lyme patients and MANY never recall a bite)
Head, Face, Neck 12. Unexplained hair loss 13. Scalp rash 14. Headache, mild or severe 15. Migraine 16. Twitching of the face or other muscles 17. Facial paralysis (Bell's Palsy) 18. Tingling or numbness of nose, cheek, or face 19. Facial pain 20. Facial swelling 21. Dental Pain 22. TMJ (jaw pain) 23. Sore throat 24. Hoarseness or weak voice 25. Vocal paralysis 26. Difficulty swallowing 27. Loss of smell or taste 28. Neck Stiffness, pain, or pressure
Eyes/ Vision 29. Swelling around eyes 30. Photophobia or light sensitivity 31. Double or blurry vision 32. Increased floating spots 33. Pain or swelling in eyes 34. Flashing lights 35. Tearing and/ or dry eyes 36. Vision loss or blindness 37. Dilated Pupils 38. Conjunctivitis 39. Uveitis 40. Iritis 41. Decreased perception of light and color 42. Decreased depth perception 43. Wandering or lazy eye 44. Drooping eyelid 45. Foreign body sensation
Ears/ Hearing 46. Ear pain 47. Sound sensitivity 48. Buzzing in one or both ears 49. Ringing in one or both ears 50. Decreased hearing in one or both ears
Digestive and Excretory Systems 51. Constipation 52. Diarrhea 53. Irritable bladder (trouble stopping or starting) 54. Frequent urination 55. Kidney failure 56. Splenitis 57. Nausea or vomiting 58. Gastritis or upset stomach 59. Abdominal cramping, pain 60. Abdominal paralysis 61. Bloating 62. Gastro esophageal reflux 63. Difficulty eating
Musculoskeletal System 64. Joint pain or swelling 65. Stiffness of the joints, neck, or back 66. Tendonitis 67. Muscle pain or cramps 68. Joint creeks and cracks 69. Neck and shoulder pain 70. Heal and foot pain (plantar fasciitis) 71. Spinal sensitivity 72. Herniated disk 73. Back pain 74. Bone pain or erosion 75. Shin splints 76. Cartilage erosion 77. Cervical pain 78. Gangleon Cysts 79. Migrating pain 80. Carpel Tunnel Syndrome
Respiratory and circulatory Systems 81. Shortness of breath 82. Persistent cough 83. Sleep Apnea 84. Chest pain or rib soreness 85. Vasculitis 86. Frequent and easy bruising 87. Unexplained fevers, sweats, chills, or flushing 88. Heart palpitations or extra beats 89. Any history of a heart murmur, heart block, or valve prolapse 90. Heart attack 91. Pulse irregularities
Neurological System 92. Tremors or unexplained shaking 93. Burning or stabbing sensations 94. Weakness or partial paralysis 95. Pressure in head 96. Aneurysm 97. Coma 98. Cranial nerve abnormalities 99. Dementia or Alzheimer's-like presentation 100. Multiple sclerosis-like presentation 101. Meningitis 102. Pseudotumor cerebri 103. Tingling, numbness, or shooting pains 104. Dizziness, lightheadedness, wooziness 105. Fainting 106. Difficulty walking 107. Increased motion sickness, vertigo, poor balance 108. Seizure activity 109. Stroke symptoms 110. Restless leg syndrome 111. Diminished Reflexes 112. Gait problems 113. Clumsiness, dropping things or bumping into objects
Psychological/ Well-being 114. Mood swings 115. Irritability or low frustration tolerance 116. Depression 117. Feeling as if you are losing your mind 118. Overemotional reactions, crying or becoming enraged easily 119. Hypersensitivity 120. Inappropriate laughter 121. Poor judgment 122. Restlessness 123. Easily distracted 124. Apathy, listlessness, or lack of motivation 125. Insomnia. Disturbed sleep, early awakening 126. Panic attacks or panic disorder 127. Anxiety 128. Obsessive-compulsive behaviors 129. Bi-Polar presentations 130. Hyperactivity 131. Suicidal thoughts 132. Paranoia 133. Personality changes 134. Hallucinations- auditory, visual, or olfactory 135. Nightmares or night terrors 136. Eating disorders 137. Schizophrenia-like disorder
Mental Capabilities 138. Brain fog 139. Memory loss (short or long term) 140. Confusion 141. Forgetfulness 142. Cognitive overload 143. Loss of creativity 144. Declining school performance 145. ADD 146. Difficulty concentrating, thinking or reading 147. Tendencies to go off on conversational tangents 148. Difficulty with speech (slow, stammering, or slurred) 149. Word reversals when speaking 150. Difficulty with writing (number and letter reversals) 151. Word finding difficulty 152. Facial recognition difficulties 153. Slowed or inconsistent processing skills- planning, prioritizing, sequencing, or tracking 154. Difficulties with calculations and directions 155. Difficulties with multi-tasking 156. Difficulties completing tasks or meeting deadlines 157. Disorientation: getting lost, going to the wrong place, forgetting your destination 158. Forgetting how to perform simple tasks 159. Orientation difficulties (up-down, left-right) 160. Poor spatial judgment
Reproduction and Sexuality 161. Sexual dysfunction or loss of libido 162. Unexplained menstrual irregularity, pelvic pain 163. Unexplained milk production, breast pain 164. Testicular pain/pelvic pain
General Well-being 165. Unexplained weight change-loss or gain 166. Extreme fatigue 167. Swollen glands 168. Cystitis or nodules under the skin 169. Unexplained high or low-grade fever or hypothermia 170. Continual infections (sinus, kidneys, eyes, etc.) 171. Symptoms seem to change, come and go 172. Pain migrates to different parts of body 173. Early flu-like illness from which you have never fully recovered 174. Increased Thirst 175. Profuse Sweating 176. Achiness 177. Lethargy 178. Malaise 179. Itching 180. Autoimmune presentations 181. Increased sensitivity to allergens, chemicals, or odors 182. Difficulties with Sensory overload 183. Exaggerated symptoms or worse hangover from alcohol 184. Fatigue, tiredness, poor stamina 185. autoimmune manifestations 186. Uveitis and Iritis to your list of eye symptoms.
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