posted
My LLMD recently put me on Neurontin for neuropathy and Lamictal for my myoclonic seizures. Has anyone ever taken these two drugs together?
I've only been taking them for a few days and I'm really hoping the dizziness and loopy feelings I'm having will eventually go away.
I would appreciate hearing from others who have taken this combo as part of their treatment.
-------------------- My comments on this site are not intended to be taken as medical advice as I'm not a physician. Posts: 206 | From Georgia | Registered: Dec 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I used to take Lamictal on its own. It didn't give me any side effects that I noticed.
So my first instinct would be to say that it may be the Neurontin.
Have you checked the side effects for both of these meds? http://www.drugs.com has an Interactions Checker too that is very useful. Good luck!
Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
PS---my psychiatrist recommended I take a B Complex vitamin with Lamictal because it can interfere with your body's abosorption of some of the B vitamins.
Posts: 4590 | From Midwest | Registered: Jun 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I've been on Lamictal for 5 years. It's a good mood stabilizer as well as an anti-seizure medication.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
Thanks Hoosiers and Metallic Blue for your responses. I did check out both meds on the link provided and they can both cause these symptoms.
The loopiness must be from the combination of the two taken together...just feel a little drunk. I guess that's not always a bad thing
Has anyone else been put on these types of meds by their LLMD or do they usually get prescribed by neurologists?
-------------------- My comments on this site are not intended to be taken as medical advice as I'm not a physician. Posts: 206 | From Georgia | Registered: Dec 2008
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posted
Lamictal was a lifesaver for me - maybe even literally. I have had no side effects from it. It was prescribed by my CFS doc.
Posts: 22 | From Oregon | Registered: Feb 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I've never taken Lamictal. I have tried several anti-seizure drugs but always got so hung-over and dizzy - and weak - that it was unbearable.
Neuroton, clearly, was also a major disaster for me. I tried, many different time, even very tiny doses. I was surprised because, unlike other seizure meds, it does not use the C-P450 liver detox pathway. It uses primarily the kidneys.
This made me nearly pass out, my legs turn to jello, my bladder fail and the vertigo spin even more out of control than usual. I had to hold onto the walls to get to the bathroom. All other activity was impossible - even for days after stopping.
Some seem to do fine with this but in at least 5 tries over 2 years, it always had the same set of debilitating effects. I will never try this again.
To control myoclonic seizures from sensory startles, I find liver support - and B-vitamins fish oil, high magnesium, taurine, glycine, schizandra and Gotu Kola to work MUCH, MUCH better for me.
Weekly massages are nearly a miracle to calm my nervous system for days (when I can manage that).
Once infections are cleared, this part should be much easier, though. In addition to the effect on the mylien sheath around the nerves, the toxins from lyme clearly contribute to seizures.
That is why nerve and liver support is also so vital, even when on seizure meds.
posted
Thanks again for the useful info Keebler. I certainly can relate to the holding onto the walls comment.I'm hoping you are right and I will see my seizures decline as the infection is treated. I'm also going to take your advice about the full body massage....never had one.
-------------------- My comments on this site are not intended to be taken as medical advice as I'm not a physician. Posts: 206 | From Georgia | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Ugagal,
The massage is good for may ways. One is to help move debris out of tissues the other is just to calm the nervous system.
For calming, something like a Tragger technique (gentle rocking ) can help reset the nervous system.
For deeper tissue massage, if you have body pain, be sure to have them start lightly.
Many methods can be combined in the same session.
Some LMT (licensed massage therapists) also are trained in cranial-sacral. That does require extra training and certification but you'd still want to be sure they do GENTLE techniques. NEVER let anyone snap or quickly twist.
Many D. O.s (doctor of osteopathy) are trained in techniques of cranial sacral by UPLEDGER INSTITUTE. You can search for their site and for a doctor near you. Some D.C.s also are trained in Upledger.
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