posted
Hi all, I am writing this as I speak with Tracy while she is in the hospital...
There is irony as well as tragedy in this situation.
Tracy went to the hospital today for routine bloodwork. However, the lab at her regular hospital was closed and so she went to a nearby hospital... while she was waiting she fell sort of breath and bent over the counter.
She said not to worry - that she just felt a little bit breathless... and she was immediately thrown into a wheelchair which they carted into a room.
They think that she could have had a small heart attack but they are investigating further. They are aware of the clot history (and present).
While they were scanning her lungs for embolism etc, they, instead of finding a clot, found a 9 mm nodule in the right anterior lobe of her lungs with a crushed glass appearance.
So, they are going to have more information on this suspicious nodule tomorrow, when it can be read more thoroughly by another doctor. They plan on keeping her there until at least Monday.
You see, the irony in all of this is that she needed to be taken into the hospital every day over the past few weeks and the docs kept turning her away... And voila, somehow she landed herself there via a routine bloodwork visit!
Ok, so I wrote what she wanted me to write - but now for my input.... If anybody can go visit her, I will get more info on where she is later or somebody can track Black down. I am not sure what hospital she is in as of now.
Please everybody say prayers or send good vibes or whatever you do for our friend who has been through hell and back as of late. She helps so many, and yet gets her butt kicked in every which way by this disease, the doctors, and clots from hell, etc. Let's help her to get well however we can! We miss Tracy and want her well and happy and hope that there will be an end to this chain of bad luck that will now transpire into good health and fortune in the immediate future!
Thanks everybody... This is for Tracy
I will keep you posted.
Posts: 588 | From Rhode Island | Registered: Jun 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Tracy,
You are in my prayers!
Hugs, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
OMG. get an address or something and i'll send something...card anything.
man, these docs are unbelivable.....
praying for her.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
We have enough or flowers,
thanks everyone.
keep you posted.
melissa
Posts: 3905 | From USA | Registered: May 2007
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bettyg
Unregistered
posted
dogs, thanks for the update on tracy.
we all told her to get to ER, but she had her own original way of doing this in style, and thank god another hospital who was MORE THOROUGH to find what they did.
posted
prayers for her healing and may she have been placed in the hands of these doctors by divine intervention.
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I hope you get though this soon, Tracy!
All the best!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
She'll definitely be in my thoughts and prayers tonight. May God guide the hands and minds of her doctors and staff to really listen and care for her as she needs right now.
Posts: 236 | From Washington | Registered: Jul 2008
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posted
She'll definitely be in my thoughts and prayers tonight. May God guide the hands and minds of her doctors and staff to really listen and care for her as she needs right now.
Posts: 236 | From Washington | Registered: Jul 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I send my best wishes to Tracy... and sorry she is stuck there.
But I do have to add...
You all might want to say a prayer for the ducks she will be coming in contact with in the duck motel.
My bet is she will have a mouthful of tail feathers when she leaves that place!
And some ducks will be looking around for months after she leaves to be sure she isn't sneaking up on them as they are walking down the halls.... and biting at their web feet!
Not sure what the term "crushed glass appearance" means regarding the pulmonary nodule.
Hubby has at least 6 or 8 of these -- think there is one almost as large as yours. Depending on the location of the nodule -- if possible do a bronchoscopy rather than a surgical biopsy.
I think Luvs said you had a CT scan and not just an x-ray. I would also ask for a SPECT or PET scan before doing either the brochoscopy or sugical biopsy.
Hubby is pretty sure his nodules are from bart but we don't really know. They have been there at least 5 years. Hubby's biopsy just showed inflammation with unknown etiology. Did not have tissue tested for tick-borne diseases. We did a follow-up CT scan every 6 months for first 3 years to rule out cancer and then every year since.
Other things to rule out besides cancer (SPECT or PET might answer that) are sarcoidosis and histoplasmosis. Bloodtests for these 2.
Get better soon.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Poor Tracy - hope you can get out on Monday and let us know what's going on...yeah, I agree how we can end up in the hospital ironically for other reasons they readily accept.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
Our prayers are for you Tracy...so sorry for all you are going through.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Tracy, here's prayers for good care and feeling better. And tell those other doctors who refused to listen to you, "I told you so!"
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
Tracy, praying for you and your family during this difficult time! I hope everything turns out well.
Posts: 581 | From CT | Registered: May 2008
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Love and best wishes to Tracy and her family for a quick recovery and good treatment in the hospital. Keeping you in my thoughts.
Sounds like Bea has some great advice on the nodule, which sounds like another manifestation of lyme & company.
Posts: 2557 | From home | Registered: Aug 2006
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If anybody hears from her, could you please post an update here? I have to go to the Under Our Skin showing now and will not be back until eve... But I want to know how she is.
Thank you.
Posts: 588 | From Rhode Island | Registered: Jun 2006
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Hugs, Stacy
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
You have my prayers Tracy and my hopes for you coming back to us soon.
Bob
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Tracy,
I am praying that you get excellent care and good results from testing related to the lung nodule.
I also am praying that God will lay his healing hands upon you and give you improved health and peace of mind.
We hope to get a good update on you soon!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I hope your visit is short lived in duckland. Sending prayers your way to get you home with some answers to your questions.
This illness sucks.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Tracy,
Thinking of you and praying for a good outcome.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Do you feel the love?
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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posted
I just talked to Tracy, she's o.k. No heart attack, she thinks maybe it was a babs flare. She's in a room now, possibly for a couple of more days, while they try to determine what's going on in her lung.
Coincidentally, her new hematologist was available at the alternate hospital to her own. She had a nice experience with her, and feels 100% better about the new doctor. Who will probably prescribe a anti-coagulant that won't interfere with the IVs. And the heplock situation is in order.
She misses everybody very much; can't wait to get back online, , and sends love and to all!
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Tracy >>>>> Prayers going up for you honey!
May your recovery be swift,w/ answers to help you on the path to better health!
Love from Silverwolf
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Oh Tracy, get well soon! You are in my thoughts and prayers Posts: 5237 | From here | Registered: Nov 2007
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bettyg
Unregistered
posted
good ruling out the heart attack.
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The harder you work the luckier you get! Posts: 965 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Computer problems...just getting back to reading this thread.
Tracy,
I am sending you lots of healing and light so that you can put this behind you. Very glad you are finally getting the help you need,
keep us posted,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Tracy thankfully you are where you need to be for now. Stay positive and know we are here for you.
Posts: 142 | From Sturbridge, MA | Registered: Jul 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
So glad to hear that your new hematologist seems like she is going to be good!!! Nice to get a break.
Love to you Tracy.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Tracy,
May God open the floodgates of heaven and shower down His blessing upon you and the docs treating you.
I hope and pray your visit is short and productive.
Blessings, love!!!
Starfall (Deb)
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Sending you big hugs and well-wishes......hope tomorrow is a better day.
You are in all of our hearts and prayers.
Greta
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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Tracy is still in the hospital as of Sun Pm. Tomorrow Monday she will have some more tests to decide if she can be released, as well if they want to treat her DVT in the hospital. She will be having a stress test, EKG, more blood work and another ultrasound on her arm. She is in good spirits and under good care. I think she feels relieved to finally be getting care for her arm.
Her new hematologist that she had an appt w. on Tues just happened to be the dr on call and recalled her name from her new patient list. She brought all Tracy's records to the hospital. This was a pleasant surprise and will finally solve the end-old blood clot dilemma--- as no one else wanted to treat her. So in the end this will be treated either in the hospital with heparin or outpatient and they will monitor the meds.
I brought her all kids of stuff including a couple of Hershey bars with Almonds. I printed the posts about her on Lyme Friends. She was so happy to hear from everyone.... it made her night. She misses all of you so much.....
The nurses and Dr's have all been Lyme friendly and she has encountered no hassles about her Lyme whatsoever.
Anyway I will let all know more after I go over tomorrow--- we will see if she will be released or will stay.
Take Care
Blake
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
is the DVT in her ARM since she will have an ultrasound on it?
mine they tried ultrasound on me from groin starting downward, but the pain was so intense and pushing down on me was just pure hell .. i told them to STOP!
i'll take my chances as is vs. them killing me there on the bed!
did i know how serious it was? yes .. my father-in-law died of one that went from his leg from RR train accident to his heart killing him.
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posted
glad to hear teh updates seem positive that
her tx is moving in the right direction...finally.
still sending prayers her
way but, seems like GOD has this undercontrol..
that is too much "coincedence" but i feel was
absolute divine intervention and glad for her
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
((((Tracy))))
Sending healing thoughtsyour way. So glad you finally got a good dr to deal with your blood clot.
So sorry you have to go through this--but glad that you are getting good, Lyme-friendly care. Hang in there and know that we are all thinking about you and wishing you the very best.
Viva
Posts: 532 | From southeast US | Registered: Oct 2005
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Tracy, I am so glad you finally are getting good care at this hospital. I was too sick to post the last many days and was so worried about you with your clot and everything. I am glad you are now in good hands and finally have a good Hematologist!
You have my best wishes for a speedy recovery and that everything is ok with that nodule - that it dissipates never to be heard from or bother you again.
posted
Still thinking of you Tracy.... Come home soon!!! Posts: 588 | From Rhode Island | Registered: Jun 2006
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
My computer has been down for a week - I just saw this today. Tracy praying for you and so glad that they're taking this seriously and thoroughly checking everything out!
You are one tough chic - an inspiration to so many. You've got my number and do call if you need anything!!!
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Glad your home Tracy-I don't get a chance to post on here a lot, but I've been following this thread and checking your progress. I'm anxious to read your new thread to see how you made out-take care!
Dawn
Posts: 64 | From rock tavern ,new york | Registered: Aug 2008
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