posted
I have Lyme. Both my son's were just tested. Here are their results. My natural dr did the test and says it's positive and also concidered their symptoms. We haven't been to the LLMD yet. What does everyone else think?
My oldest son's results: IGM: 41 ++, 39 IND, 31 IND IGG: 41 ++, 39 IND, 31 IND
My youngest son's results: IGM: 41 +, 39 IND IGG: 41 +
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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Yes the both have symptoms. Weird thing is that my youngest has the most symptoms and his results are weaker.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I'm sorry so many in your family are sick.
Sometimes those who are the sickest have fewer bands because their immune system is not functioning well.
An LLMD may try an abx challenge and then re-test. This will sometimes show more positive bands.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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bettyg
Unregistered
posted
amy, print off dr. c's western blot explanation below. circle those positive and INDetermined...
I believe it too. But my husband and his family are the one's that need proof. So it's going to be interesting!
I just hope their LLMD appt goes well. They are going to see the one that I see right now cause he's close and takes our insurance.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
My two cents is that you don't have enough bands to consider lyme as a reason for your sons illness. You have band 41 only on the IgG and IgM WB test. Lots of people test positive to band 41. Dr. F at Columbia throws out the IND results.
I'd look elsewhere for your son's problems. Consider viral infections, HHV-6, EBV, Parvo, or enterovirus.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Someone else here said it....Lyme is a clinical dx.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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posted
I just noticed something when I read the tests in more detail and compared them to mine. (Mine are CDC positive.) So on the IgM test is says you only need 2 of the following bands to be CDC positive....23-25, 39, 41
So they both have 41++ and both have 39 IND. If the IND was a positive then they both would be CDC positive. Kind of interesting since IND is like a 1/2 positive or at least that band is there but not very strong.
Oh and the both have many Lyme symptoms. Way too many to list here. But many common ones.
Anxious to see what my LLMD says...
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
The problem with relying on a "clinical diagnosis" for lyme is many pathogens can give the same symptoms. You cannot tell the difference between a chronic viral infection and a chronic bacterial infection by symptoms. Hence the need to take a thorough history and run a bunch of lab tests.
If your think lyme is the problem, run the tests again at Stonybrook. Then run the viral pathogens at Focus Diagnostics. Pick what (if anything) looks most obvious, and treat that.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
What lab was used? When my kids were first tested by regular doc through Quest I think or Lab Corp all they had was one or two bands and 41 was always in there. However, when I took them to a LLMD and had Igenex WB done both were CDC positive - my older one for IGM and my younger one for IGG. My younger one was actually more sick because it is believed I did pass it on to him through birth or breast fedding..........they ahd Babesia also which made them even sicker. They are doing excellent in school and sports now but had 3 years of treatment!
Posts: 238 | From Bethlehem, PA | Registered: Oct 2004
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