posted
I have been in treatment for Lyme and co for nearly 3 years. Some symptoms have gotten better, but the dizziness, which i thought was getting better has gotten worse. I have had the dizziness for almost 18 months and it is getting MUCH worse...for the last month it is almost unbearable. So many people on this site say "improved with treatment"...but not me. I have a great LLMD Dr H in Cali and he has me on Doxy,Suprax and Tinadozole. What is happening to me? I have brain lesions and my fear is that they are causing this and it is really MS ( as I was first diagnosed with MS) and that I have seen my last good days...not to be too dramatic...but I gather anyone reading this knows how I feel. Really scared...any thoughts would be greatly appreciated.
Posts: 298 | From los angeles | Registered: Mar 2006
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
What does your LLMD say about this? Maybe it is one of your meds.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Hi lalyme,
Sorry you're so sick. Has your doctor treated you for Parasites and Worms? They are a MAJOR part of Lyme disease check out
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
My LLMD says that it is not MS and that "we will find a way to make this better" but I am losing hope and I have a new symptom I forgot to mention: my eyes are darting around from time to time. Can't control it. And I haven't been tested for parasites or worms.
Posts: 298 | From los angeles | Registered: Mar 2006
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posted
Just for clarification...I have been on many different meds...the combo I mentioned is just in the last few days.
Posts: 298 | From los angeles | Registered: Mar 2006
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adamm
Unregistered
posted
I did abx for 14 mo. and just got worse.
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bettyg
Unregistered
posted
lalyme,
scrolling on by; sorry; many of us have neuro lyme and can't read LONG, solid block text without it being in short paragraphs and double spacing betwen each paragraph so we can comprehend and read it.
to edit, use my guidelines below ok; then you'll get more replies to your post... xox
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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posted
njgirl...will pm you. Thank you
Posts: 298 | From los angeles | Registered: Mar 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I just pm'd you. I have brain lesions, too, but I remember the tick bite so I know it's not MS.
Have you been tested or treated for Babesia?
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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