posted
Ok, I am sure this has been touched several times. So if it has, if someone could send the link so I dont have my fellow lyme friends repeat themselves using the little engegy we have.
As you all know I am positive for Lyme and I go see my doc Wednesday. I want to treat this as aggresivly as possible. Is the iv a more aggressive treatment? I am convinced I have neuro lyme with the spots on my brain and all the other neuro probs I have. I mean do I have a say in the matter or does the doc?
Posts: 171 | From the land of oz | Registered: Feb 2009
| IP: Logged |
bettyg
Unregistered
posted
anyone? bottom of page 2 and i'm going to bed.
use treepattrol's newbie archive at top of medical ok
IP: Logged |
posted
I mean do I have a say in the matter or does the doc?
Depends upon the doc.
Is the iv a more aggressive treatment?
Not necessarily.
My experience is most doctors will start you on orals. If you plateau on them, or stomach cant tolerate them, they may move to IV. IV is probably better absorbed.
While far from healed, IV rocephin saved my life.
However, after 5 years of treatment, I think tx should be aggressive but not cause terrible herxes. The stress to the body and the needness pain aren't worth it. Some of these herxes (paralysis, seizure-like jerks, sudden suicidal depressions) are very scary.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
| IP: Logged |
posted
Thank you all for responding. I called insurance yesterday to see what they would cover. So far so good. I am eager to start my long road to recovery.
Another question, can docs guesstimate how long I have had it based on my WB results?
I hope everyone is having a great day!
Posts: 171 | From the land of oz | Registered: Feb 2009
| IP: Logged |
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Hi JamieB!
I was away from the board, too sick to post for a long while, so I haven't talked with you since you first came here and were looking into all this, and now you almost have more posts than me - good job getting informed!
I'm so glad to hear you are on the path to treatment and recovery now.
As for if your doctors can tell from your blood tests how long you have had Lyme, I don't think it's possible. If you read Dr. C's Western Blot explanation again, it might help you understand why that is.
Past its acute phase (right after infection), the Lyme anitbodies don't really reflect the usual understanding of IgG and IgM. The infection goes chonic, and it is cyclical, therefore your immune system will respond to it as if it is a new infection (IgM) off and on throughout the chronic infection, as the pathogen lifecycle progresses and your body's response changes.
At least that's how I understand it - sorry if it's not very clear. Probably best to read Dr. C's explanation.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic