posted
Ok I've been reading about the difference in Western Blot tests but depending on the site I go to tell me different things. CDC said Igm means a recent infection and you should be retested if that was the only positive. I currently have 2 Elisa tests positive and Western Blot Igm positive but Igg negative. I have been sick for 3 years. My first elisa was positive 3 years ago. I'm so confused! My primary Dr. is treating me for Lyme with Doxy 200 mg a day, which I'm sure is not enough, but she thinks I do have Lyme.... but with no positive Igg CDCsays false positive. I had 3 bands positive on Igm.
Thanks for the input!
Posts: 13 | From nj | Registered: Mar 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi anandididd,
You really need to find a Lyme Literate MD...LLMD.
Go to the Seeking a Doctor board here and create a post asking for a LLMD in NJ. You will receive a private message with names.
You are not getting proper treatment.
A LLMD will treat you following the ILADS guidelines and will also be able to properly decide if you have coinfections which are very common.
The CDC criteria were set up many years ago and are for surveillance purposes only, not for diagnostic purposes.
Lyme is a clinical diagnosis based on history, symptoms and supported by labwork. Do yourself a big favor and find a LLMD fast.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
What bands are present on your IGG? The CDC has left out some very specific lyme bands.
Any test saying you have lyme is better than none. Not that a positive result is necessary, but it sure helps. Most LLMDs treat based on your symptoms.
IGM - means there is an infection right this minute.
IGG - means there is old infection.
However, I know I have had this disease for 20 years and I have CDC positive IGM, but I am one band short from being CDC positive for IGG.
One thing I have read is that maybe the lyme has become active recently. My thought (soley my thought) is that my immune systems is so weak that the bacteria is constantly hitting my immune system.
Plus, if the bacteria is changing forms (cell wall deficient, cyst, L-Form) then your immune system keeps getting hit with a "new" invader; hence the positive IGM.
It is a very tough disease to figure out. What matters the most is getting a good LLMD and support from the people who have "been there" and "done that". So, you are in a good place.
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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posted
IGM and IGG is so confusing. I got dx with the disease in November, but had been suffering acute symptoms since September '06 and have possibly infected since 2000 or maybe even earlier.
But I tested negative on IGG and positive on IGM. So despite the fact that IGG indicates an "older" infection, the IGM is what is raging for me.
So I just wanted to let you know its possible. And I wouldn't base anything on the ELISA. Its highly inaccurate.
Posts: 55 | From New York | Registered: Nov 2008
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
What if you have bands on both IGG andf IGM, Could it mean a new infection on top of an old? Because I was sick for 15 years and then found a tick crawling onme. A couple weeks later I could barely get out of be and have been very sick since. That was three years ago.
posted
Believe me--even if you had a positive ELISA and a CDC pos. WB, there'd still be a good chance you'd be told false positive. What it comes down to is that there's a coverup being directed from the top that's preventing doctors from learning how to effectively diagnose and treat Lyme patients, so there are probably only about 100 physicians nationwide who are able and willing to help us.
To learn more about this, you should check out ILADS.org, lyme-info.net, lymecryme.com, and lyme-rage.info
Read Dr. C's WB explanation at the top of the forum--if you're symptomatic and anything at all is positive, you need to treat.
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