Rocephin / Zithromax / Supps Posts: 107 | From Plainview, New York | Registered: Sep 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I think that is what prompted the call to action to post on
her site to get Oprah to do a show. I notice there are comments on the right hand side of the page.
Since it seems
that very few are now posting on the Oprah link we were all posting on previously. Why don't we all start posing on this one and flood it with requests.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Well I just got the e-mail today that the Oprah website was featuring the interview. It's just interesting that they put it on the mailing list. Anything could have gone in that spot.
Please, every post here, too. It can't hurt. I think it can only help. It only allows 180 characters.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Rocephin / Zithromax / Supps Posts: 107 | From Plainview, New York | Registered: Sep 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
This is what I posted:
"Dr. Oz & Oprah please do a show on this very serious disease. Help educate the public; the IDSA guidelines are causing needless suffering. 20 years of my life ruined by Lyme."
Don't waste this opportunity to help get Oprah to do a show about Lyme disease.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
I tried 5 abbreviated sentences after a paragraph was bounced. Still won't post even though it's slightly shorter than one already there. ??
180 characters max. OK...
"Asking U folks 2make concerted effort 2RAISE AWARENESS! Serious health risk lingering in backyards ACROSS Northeast $10-20K+ to get child better if not caught early. 2 shows? 1 w/activists patients, 1 w/LLMDs US.Rep IDSA"
I count less than 180. Am I delusional? -'Kete
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
sorry to hear. I had to change what I wanted to say because it was too long. It took me six attempts and resulted in an incomplete sentence.
It is very frustrating. May be you can try again later.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
that's why we have stayed with COMMUNITY PAGE since we are all long-winded and limiting us to a few characters is too hard on our neuro brains!
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
But the numbers posting on the community page have trickled to a few each day so why not post here too if you have already posted one the community.
Even two on point lines will add to our message. I say every one post like crazy. 1200 plus posts here,as well, we'll send a loud message that our story needs to be heard.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
There is still yet another great opportunity to post comments on this pro Lyme article, as well.
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Don't know what to say with 13,000 plus members and over 1,200 posts of Oprah's community board, I'm
not sure why our members can't take a few minutes to
write two or three lines on Dr. Oz's page to flood it as we did Oprah's page. It would only be to our benefit, more proof for Kathy Fowler to show there
is great interest and suffering taking place and that a show on Oprah is more than warranted.
I know we have all been asked to do a lot lately but it's only if we make our voices heard that we will have a good chance of being listening to. And this looks like a very good chance and we have some great backing behind us.
posted
We need spokes-person for sure. As Liz Taylor did for AIDS. Other notables that began funds. Doe`s anyone know the March on Washington??
The Past Lymie Pres. Bush. What he could do, went out worst Pres. could salvage & help millions.????? Yet, so far between the expense & bio-Terrorism part.We have large battle. Not to mention we are sent to wrong labs. My Dr. said all come back positive at Igenex,Bowen JD labs.
My take is most of us are lest to later stage & they know how to find. Other is we all carry, depends if it is activated somehow since can hide for 30+ yrs. Have daughter as example of. Neuro getting worse many other symptoms. She will not talk about seeing her more than active Mom to Blob. Scares her tooo close, as I did denial for 10 yrs. Being stalked for 8 yrs(Yeash) everyone said all stress, sure it pushed over edge. Not sure who is best we did million letter campaign. Requested we quit sending mail. That did not work.Hmmmmmmm Ha!Ha! I guess. Too much,arghhhhh. I did write ti someone yesterday that could help if want to????
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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