posted
Since last july when I woke up one day dizzy with balance issues my life has not been the same. I have so many symptoms that people think I'm a hypochondriac. If someone could relate to my symptoms and at least relate to me I would probably be less upset., I can't tell you how many times I'v e thought about going to the emergency room. I was not diagnosed with lyme until Jan 6 2009, almost 6 months after my first symptom. I had a low grade fever in Sept for 17 days 5 of which I spent in a hospital. I went on doxycyclene for 30 days, twice a day that ended on feb 6. I have no improvement and to be honest I feel worse. Recently I started getting headaches and sometimes I wake up with buzzing in my ears at night. My right foot is partially numb most of the day and I've been getting cold feelings on my head and legs sporadically throughout the day. I have a pain in my ribs on the right side that come and go along with a nauseous feeling. My left hand goes partially numb from time to time as well as my right. Sometimes my left arm is killing me also. Pins and needles on my face, arms and legs. All these symptoms come and go but I never feel 100%. Just recently my feet have muscle twitches on and off throughout the day. I'm scheduled for a spinal tap next week. Anybody else fell at least some of the things I do? What do I do? My infectious disease Dr basically said I was done with him after the doxycyclene, he didn't even schedule me for a follow-up. He said it might take months for the antibiotics to kick in. Any advice or words of comfort would help.
Posts: 14 | From NJ | Registered: Mar 2009
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posted
I have only been in treatment for 9 months and am not an expert like many other people here.
My advise is to get a new doctor that specializes in Lyme. That is your first step on the road to recovery.
The antibiotics you received and the time you were on them was not enough to cure you especially since you were not treated right after contracting it.
Hang in there and good luck!
Posts: 32 | From Pennsylvania | Registered: Mar 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Sounds like you did not take antibiotics long enough. Your symptoms could very well be Lyme Disease.
You need to find a LLMD(Lyme Literate Medical Doctor). I would postpone the spinal tap until seeing one. It is not a useful test in determining Lyme Disease.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
Yes, find an LLMD, and start treating! Yes, agree, spinal tap is not great for diagnosing lyme.
What dose Doxycycline were you on? If it was 200mg twice a day, that's not enough--- you were essentially not treated. The Ilads dose is 400 mg twice a day, for more than 30 days.
Hope you find a lyme doctor soon!
Posts: 1226 | From USA | Registered: May 2007
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posted
I don't remember what the dosage was but the dr had me on it twice a day. Thanks for the support. I'm trying to stay positive but it's not easy at all.
Posts: 14 | From NJ | Registered: Mar 2009
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Yes, it could be Lyme disease. Tingling is quite typical, headache is common, and tinnitus (ringing in the ears) also occurs with Lyme. And the fact that it comes right on the heels of short-term Lyme treatment is very suspect that you were undertreated.
-- Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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