Mine is really bad, and among one of many symptoms for me, nausea, vomitting, can't eat alot, along with severe abdominal pain.
They just did an Endoscopy and all that showed was my stomach was really inflammed and they said that correlates with someone that is sick as I am?
I am again so confused and don't really know what direction to go?
I am looking for something that will help this go away, something that is also very cheap if possible.
I can't afford to lose alot of weight again!
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i am going through the same thing. i have lost 6 pounds last week and still can't eat.
i have terrible mucous, floating stools, upper abdominal pain, nausea, can't sleep, low blood pressure and high heart rate. i'm tired and that could from not eating.
i tolerate only water and a little apple juice.
i've stopped all antibiotics, vitamins, and supplements as they absolutely tear my stomach up. the pain is almost instantaneous.
i don't have a gallbladder.
i can't get into my doctor until late april.
well i've got about 60 pounds to go but i didn't want to loose it this way!!!
one doctor suggested pancreatitis and another said sphincter of oddi dysfunction.
i guess this could be lyme, but right now i don't think so.
at this point, i truly feel that maybe, just maybe, i don't have a lot of time left.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Are you on a gluten-free diet? If not, that should really help. It's usually the first thing any patient is told when dealing with these problems.
And, yes, lyme + co. cause a lot of G.I. distress - as well as some of the medicines.
Are you being treated by a LLMD?
Slippery Elm made into a gruel may be of help. L-Glutamine also really helps the lining of the stomach. You don't need much (if you start feeling wired, back down as too much can excite the brain).
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
These are all symptoms of PARASITES and WORMS!!! PLEASE Check out the symptom list at www.humaworm.com
Astria
these are very inexpensive herbs, about $30.00 bottle. If you decide to do this or any antiparasitic you have to stay on them so they are effective.
Randi,
have you been able to move things along at all? I feel like this advice could be falling on deaf ears as I have posted this before for the same symptoms for both of you.
Truly, this is a BIG issue affecting the digestive tract. Underlying many other conditions, It almost killed me,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
yes, i took a laxative. i had a small movement however, i did have a ton of mucous and orange colored stuff.
i am still having the pain.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Randi,
One laxative is not enough. It sounds like you have a huge amount of BM in your intestines. Can you get a colonic? Or another enema? Mucus and orange color are signs of infection.
Has your B/P come down. Have you ever been treated for parasites?
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Mucus in stool can be caused by parasites, which are often a co-infection associated with Lyme. I would suggest having the mucus examined by a microbiologist. Microw
-------------------- microw Posts: 129 | From Toronto, ON Canada | Registered: Feb 2008
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
astriapage,
if your stomach is inflamed that could be causing the pain.
I have gastroparesis (delayed stomach emptying) which when it was worse caused nausea, vomitting pain. I also think it is what caused my gastritis (inflamed stomach lining).
With my gastroparesis as bad as it was the food was just sitting and sitting and irritated the stomach lining over time. My gastroparesis was actually diagnosed by endoscopy but the first gastro drs that endoscopied me missed it.
I take reglean(prescription)and an acid blocker(prescription)and digestive enzymes. This did improve it some. I also REALLY had to watch what i ate. The harder to digest foods made it much worse when it was really flared.
Would your dr be open to you trying reglean to see if it helps? I believe it is pretty cheap (generic) even if you dont have insurance and have to pay for it. Also Do you think your dr would reccomend digestive enzymes?
Have you had you gallbladder checked? Pain can radaite from that. My gallbladder attacks were quite painful.
I know that there are other things that cause the same symptoms but these are the ones I expereinced.
While I am sure other things that can cause mucus, the only time I ever had anything mucusy was yeast for me. Do you think you could have yeast?
posted
parasites. I've had this on and off for 16 months afer returning from a trip to the Carribean. Working with ana ART doc and still showing positive for months now. I do believe it takes a long long time to expell these critters.
Could be fungus too.
Posts: 911 | Registered: Mar 2005
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Azure,
I have gastroparesis also which is caused by Bells Palsy of the gut. The underlying cause of Bells Palsy is infection. Inflammation is usually secondary to infection.
As I clear the infections and the parasites and worms it is calming down. An acid blocker leaves us open to infection because we need HCL to conteract bacteria in the stomach.
Yeast/fungus are usually involved also in a weakened immune system.
Tickalert, what are you using to get rid of the parasites?
Gael
Tickalert is right in that it can take a long time to expel these pathogens.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
OK I don't have alot of money and I am now very confused.
I just recently got out of the hospital where I was there for 2 weeks.
They said they were giving me Prilosec, and the problem seemed to get better.
I spoke to my doctor today, who is a cardiologist, and he got really upset that I am not taking the Prilosec. He is the only doctor that I have, and will be for awhile, until something changes.
I don't even have money for food barely, so medicine I told him kind of takes the back burner unfortanately.
Covering this up is not something I no longer want to do. I told him I want to know why I am so sick. My fever is up also, plus undying pain in my lower pelvis.
I am having no pain in my stomach, I just get very sick if I try to eat.
I don't have my gallbladder or appendix, and have had hysterectomy and open heart surgery because of whatever is wrong with me.
Like Gael said, she has addressed this before with me and someone else. It is just so hard when you can't afford to buy supplements or medicine.
I have about Ten Dollars to spend and want to get something that will allow me to keep food down.
This is getting serious again. When I was admitted to hospital I was in very bad shape, and I know that is where I am headed.
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Astriapage,
I feel so bad for you. I wish I could help you some way, but I don't know how. If I had the money, I would send you supplements, but I am on a very limited fixed income.
If the prilosec helps you and you can find a way to get it, you should listen to your doctor. Ask him if he has any samples. Does this allow you to keep your food down? Isn't there anyone there who can help you?
I am truly sorry you are going through this.
Sending you lots of good thoughts,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I've used Paragon A which ART Doc recommended. Just got Hummaworm that I ordered last week. I did Hummaworm initially when I first got ill 16 months ago. It didn't relieve all symptoms.
My ART Doc also put me on a supplement for Fungus called Morrinda Supreme.
Alinia I believe kills parasites..prescription required I beleive.
Posts: 911 | Registered: Mar 2005
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posted
One other thing...rife machine. Been using since 10/08.
Posts: 911 | Registered: Mar 2005
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I'm sorry you're feeling so awful. The gastrointestinal stuff is the pits.
If it were me....
I would try eating the large Miradol papayas & raw pumpkin seeds.
I'd also try adding some ginger and garlic, individually & slowly to see how I tolerate them.
These are foods that also act against parasites, so you can count them in your food budget.
Yogurt, preferably plain, (you can add a little pure organic honey or pure organic maple syrup, just before eating, if you'd prefer to change the taste) is helpful for dealing with yeast. Try to avoid eating sugar, corn syrup, artificial sweeteners, bread, pasta, crackers.
I find that shot of Apple Cider Vinegar, chased down with water; salad with a lot of vinegar & salt; salt & vinegar potato chips and salty chicken broth have all seemed helpful to me when I have had problems with nausea.
I would spend any extra money on probiotics. Relatively speaking, Culturelle seems to be a fairly reasonable one & it's available in Supermarkets & most pharmacies.
The shot of Apple Cider Vinegar causes the body to produce base digestive enzymes, thereby reducing the acidity in the stomach. I think that lemon juice may have a similar effect.
I hope that might provide you some relief.
Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
The papayas can be expensive in the supermarket, but I have found them MUCH cheaper in Asian markets and Wholesale clubs.
I would cut one in half and consume half throughout the course of a day.
I would also eat about a tablespoon of the raw pumpkin seeds several times, through the course of the day & before bedtime.
After a couple of days, I would start adding ginger & then have a serving of linguini with garlic & oil.
I would use an entire bulb (all the cloves) of garlic, lightly browned in pure olive oil and add salt.
I would add the firm-cooked pasta with a few tablespoons of the water to the pan with the garlic to cook a little bit more so it would thicken a little bit & the sauce would stick.
Don't overcook the pasta, the more it's cooked, the worse it is for you & whole wheat is better than refined. I know we're not supposed to eat pasta, but I believe that the garlic counteracts the evil, when eaten this way.
I would herx like heck & have to sleep for an entire day, but I would feel a lot better the day after.
Hmmmmm....maybe I should have some linguini with garlic & oil........
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
AliG..
.Excellent antiparasitic recipes...I also cook with lots of crushed garlic, ginger, jalepeno peppers. I haven't eaten any papayas or pumpkin seeds, but I think I will give it a shot.
Astria,
I hope you are okay..let us know,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
astriapage, the number one reason for mucous in the stool of someone on abx tx is bacterial dieoff. this is likely a very good sign, however, it shouldn't be chronic. it might stop completely or cycle. if any it presents any other ways on an ongoing basis, then, have it checked.
ping "We are more than containers for Lyme"
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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posted
I am currently not on any abx treatment. The one doctor that I have says it would not pay off right now for me to be on Doxy.
He says I am so chronic that it will not cure me at this point. It makes me so deathly ill if I do try to take it, that he does not want to make me any worse than I already am.
I got the Prilosec yesterday, and cross my fingers it seems to be helping....
I used to have a papaya tree in my backyard-sure wish I had it now.
Thanks AliG for your good recipes-I will try these maybe tonight if feel like it...
Thank you guys for all of your replies!
Still having Mucous though-I have had this now for over a year with every bowel movement.
That is why it is so disturbing?
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
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posted
Great Smokies Labs has a comprehensive stool sample test for parasites and other infections. You can google and learn about it.
Posts: 805 | From Utopia | Registered: Feb 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I couldnt read all t he replies, but you should be checked for c-diff.
All your doc has to do is fax and rx to the lab for stool samples... easy peasy
Posts: 3905 | From USA | Registered: May 2007
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
c. diff test can come back neg and you still have it though.
this happened to me. they kept testing me and it did come back pos i think about test 2 or 3. (i was hospitalized and they started treating me despite the inital neg.
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