posted
Hi All Please DO not forget Lou Dobbs, he had 2 programs why we fight treatment do to cost. Though they forget the yrs. & tests of Mis-DX`s. The time en-gerny,cost, if they did right test to begin would save the 10 to 15 yrs. we have all these massive amounts money`s in tests,Dr. wasted Dr. visits, all wrong Dr. sent to& on & on.
They had such high response they followed up with another Program on Lyme costs & waste not getting well. I would not even like to add up bill all yrs. of not getting well yet all tests & costs. I am having really bad day so best go try to do some surveys if able. Even TRYING TO EAT HURTS. YEASH., that was after finally getting picc line for 2 mo. Few of ALS or MS symptoms might be less, this is 20+ yrs of battling for help.
Lou Dobbs & his co-partner if still on were quite upset about finding Lyme treatment & cost should not factor if job done right to begin.
Write him, he was on our side. Appalled by yrs. of battling for help & those costs. Huggggsss, to all in need.Kerry
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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no word limit so i sent the below just now~ *******************************************
I understand you have had LYME DISEASE shows before, but missed them since I didn't know they were scheduled.
Please put me on your list for future notification of LYME shows; big thanks! *************************
I've had chronic lyme for 39 yrs; 34.5 yrs. MISDIAGNOSED by 40-50 drs. UNACCEPTABLE.
We've had 2 lyme bills in congress for 10 years; they never got off the pile to be put on the SCHEDULE to be discussed due to NJ'S FRANK PALLONE, HOUSE REP chair of that sub-committee.
Pallone's medical lobbyists contributed almost 1/2 million $$; who is he going to listen to; INFECTIOUS DRS. ruining our lives or us, chronic lyme patients who are PAYING OUT OF POCKET for:
appointments, treatments, meds/supplements, blood labs, xrays, EXPENSIVE IV ANTIBIOTICS, etc.
plus traveling out of state since 15-18 states do NOT have full-time LLMDS, lyme literate mds, there so that includes: GAS, lodging, and food.
We didn't ask to be in this LYME WAR:
IDSA, infectious disease society of america/infectious drs., who UNDERTREAT up to 3 wks. only and some give out NOW "ONE PILL" YOU ARE CURED !! BS
also, they don't believe in chronic lyme disease but they cause us to be since they give only 3 wks. max antibiotics!
vs. ILADS, international lyme associated disease society, our GOOD LLMDS who treat long-term antiobiotics and other alternative therapies to try to get us into REMISSION.
If you have any links for past shows or script, I'd love to be sent them please. thanks. *******************************
Conn. Attorney General, Richard Blumenthal filed an antitrust claim on them and found IDSA's 06 lyme treatment guidelines full of "conflicts of interest".
So he chose an ombudsman to select a new committee of 14 people NOT on previous committees without conflicts of interest.
NONE OF OUR LLMDS are on that panel since they added no one can earn more than $10,000/yr. for treating lyme patients. So that leaves out even a llmd who sees 1 lyme patient/week for 1 year!!
Those selected, there are conflicts of interest in more than 3.
So our health insurance companies REFUSE TO PAY LYME/CO-INFECTION bills and have used the CDC's web site as their guide in order to NOT reimburse us for our fair share of expenses.
Cancer, hiv, and aids patients receive fair share reimbursements; why are we discriminated against?
I could go on and on; I don't know if you have a word limit, and hope you don't since I've typed this much.
Thank you; WE NEED MORE CHRONIC LYME DISEASE SHOWS; A SERIES OF THEM TO GET THE WORD OUT.
Lou, also, please buy the UNDEROURSKIN.org lyme disease dvd released 1 yr. ago at this time. VIEW THE TRAILOR AT THEIR SITE!
You will be appauled at how we are treated and what we go thru to find a dr. and the indignant, stupid comments they make. Thanks!
posted
Have taken your advise and sent my two cents to Lou.
No doubt will get a form letter back, but there is always that slim chance.
Sometimes a drip turns into a stream and stream into a river. Maybe this will happen with the miss understanding of the LYME epidimic and how life treatening and debilitating this disease is to one.
The book The Bakers Dozen & Lunatic Fridge is well worth reading.
Posts: 108 | From maryland | Registered: Sep 2007
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bettyg
Unregistered
posted
musroomman,
please show your feedback comments on my post about her book ok! you're 1st one besides me reading it that i'm aware of. thanks!
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Huggggsss, to all in need.Kerry
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thanks.
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