I still have body pain,head noise(doesn't hurt),bad shoulder that migrates up and down to my elbow. Therapy doesn't seem to be helping.
I can raise my arm 90 degrees out and 45 degrees to the side. The pain is sometimes so bad I have to take a pain pill (which doesn't really work).
Very weak all over my body at times and can't seem to get my blood pressure up. Also,slight low temp,
My otho Dr want to do Arthroscopy of the shoulder.
The thing is my blood results just came back,and I am within range on everything but Hematocrit (34.5) slightly low.
NO INFLAMMATION.
I thought all this Lyme pain was due to inflammation.
Can someone explain all this to me.
Thanks,
Atheana Posts: 196 | From from a far | Registered: Jan 2008
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I have right shoulder and arm pain. My labs also show no inflammation. Not sure you can go by the labs until the inflammation is really bad.
For my shoulder, heat helps the most. And not over using it.
I hope that you are in contact with your Lyme physician. Please avoid a steroid injection, if your orthopedist is suggestion it.
Best, Karen
Posts: 1691 | From Maine | Registered: Jun 2004
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Have you tried using a trampoline? (a mini aka rebounder?) I had mystery arm/shoulder pain that specialists couldn't figure out.
When my LLMD suggested the rebounder for detox and balance, I figured what the heck. It felt so good to have all my muscles loosen up, I started doing 'punches' - AND MY SHOULDER PAIN WAS GONE. FIRST USE OF THE REBOUNDER... Incredible..
Maybe it would help you too.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I was diagnosed with FM and frozen shoulders and sent to a physical therapist before Lyme diagnosis. He couldn't get them to budge. I had lost all my range of motion. Couldn't even put my hands on my hips. I had no inflammation show up in any test.
After 10 months of Lyme treatment they are almost normal again.
I think I would like a rebounder!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Interesting Julie.
For several years prior to lyme treatment I had to almost stop using my right arm to reach for anything because it was so painful.
After the first year of treatment I had to stop for a short time and during that time my arm pain went away completely. I think treating the infection and allowing the toxins to drain is why my arm pain left.
Recently I noticed that my arm started to hurt again while on IM generic rocephin shots. Now that I've stopped the shots, the arm is clearing up again. I think I was getting a buildup of toxins.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
I starting having similar shoulder problems once on IV Rocephin and flagyl. It is hard to reach or lift my left arm above my head. It will give out and drop, then the pain comes on for the next minute. It kinda feels like when someone puts your arms behind your back. It goes dead.
Dr. said there was no inflammation in my blood test. Had me stop all abx for the next 2 weeks.
What is the name of this blood inflamation test?
Posts: 111 | From Mid Michigan | Registered: Feb 2008
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posted
As near as I can figure it out, the SED rate and the C-Reactive Protein would both show inflammation. They can be done on a routine blood draw, it's nothing special.
My daughter has constant pain and normal blood labs, so her PCP calls her pain a "subjective" symptom, as if maybe an objective symptom would be more valuable?
I don't know why this is. I was just about to start a new thread on this topic when I found your post.
It seems that the spirochete irritates the tissues, which causes inflammation, which causes pain. So, why doesn't the inflamation show up on the blood test??
Anybody know about this?
Posts: 228 | From Mass. | Registered: Feb 2009
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
quote:Recently I noticed that my arm started to hurt again while on IM generic rocephin shots. Now that I've stopped the shots, the arm is clearing up again. I think I was getting a buildup of toxins.
The rebounder does help with detox, so perhaps it would help while you continued the shots. I'm no longer on meds, but nothing replaces the rebounder for me.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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I, too, get severe shoulder and elbow pain at times. While sitting, I usually have to rest my arms on pillows to ease some of the pain.
Sometimes I use arnica topical cream or heat for pain relief.
As far as labs, all of my blood work is within normal range. Nothing shows up as far as inflammation but docs keep saying my pain is caused by inflammation in my tissues.
JT
Posts: 72 | From Massachusetts | Registered: Feb 2009
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I suppose I will stop therapy,as it doesn't seem to help.
The upper part of my body is always so tense for no reason,I'm sure that doesn't help.
I'm hoping Dr. W in Germany will help. It's going to be hard traveling with the use of only one arm I will try and put a blog together. I am not that handy on the computer and don't like the EMF's.
Atheana
Posts: 196 | From from a far | Registered: Jan 2008
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posted
Atheana, I just asked our chiropractor about your question re inflammation. He is very knowledgeable about Lyme
He says the inflammation is pervasive, especially in the gut, but everywhere. He says it is low-grade, and our standard blood tests are just not sensitive enough to pick it up.
He says a physician who goes in with a scope and looks can see the evidence of inflammation. Of course that is not so often done in the Lyme population, which is just as well come to think of it.
Posts: 228 | From Mass. | Registered: Feb 2009
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