posted
I am about to start Rifampin (300mgx2 p.d) and Zithromax (250mg daily).
I would love to hear from patients who have successfully treated Bart (no more symptoms) and what protocol you used to get well.
I know some of you use Levaquin, some Rifampin and Doxy or Rifampin and Zith. Some pulse the Doxy or Zith MWF. What combos at what dosages did you/do you take?
Thanks!
Posts: 770 | From USA | Registered: Jul 2006
| IP: Logged |
I am not sure I can help you. I am not better after 25 weeks of treatment. Here is what I have done so far.
I took 600 rifampin and 250 zith plus 400 doxy for about 4 1/2 months with marginal improvement.
My doctor then had me pulsing M, W, F high doses of mycobutin 300 (like rifampin), zith 600, and omnicef 1200. All hell broke lose. I think that I was herxing every day. Then my wbc count went low and he took me off the myco and the zith. I had my blood retested and I am waiting to hear from him on what to do next.
I am going to ask for levaquin as the rifampin doesn't seem to be touching my derealizaiton, cognitive, memory, anxiety stuff too much. Don't know what he will say to that, but I thought I would give it a try.
Good luck. We all react differently. Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
| IP: Logged |
posted
Sorry. Don't know where all the bart people are today. I will bump you.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
| IP: Logged |
posted
More?
Posts: 770 | From USA | Registered: Jul 2006
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I took levaquin 500 mg once per day for 30 days. Then Bactrim DS for about 11 months. (Bactrim was to treat babs, but doc said it also hits bart.)
It's been nearly 4 years since I finished treatment and am still symptom free, enjoying my life.
Drugs are just part of the success story. Read Burrascano for the supplements, exercise, things not to do (alcohol, smoking, etc.), diet, etc.
I followed the Burrascano protocol to a T.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
TF-How long had you been ill? How long did you treat and what thigs did you use? Did you have babs?
thanks and congratulations on having your life back.
Posts: 1104 | From N.California | Registered: Jan 2008
| IP: Logged |
posted
Unfortunately, I can't say I "successfully" treated my Bartonella if I follow your definition ("no more symptoms") because it came back.
However, Levaquin hit my Bart hard (strong herxes) and took away all symptoms while I was on it. I was on 500 mg/day for 6 months.
Bicillin also worked well for me to suppress Bart. (1.2 mu 2x/week) Rifampin works well for some, but not for me.
As far as alternatives to abx, the rizol "My" also worked well. (www.biopureus.com)
Posts: 443 | From The Wild West | Registered: Jan 2002
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic