posted
All of you who are so better informed than me about this stuff, is light sensitivity more correlated with lyme or one of the co-infections?
It was a major symptom for me during many years. My one year state of being "recovered" is marked by this symptom being almost completely gone. (Among other things.)
Posts: 76 | From tolland county, ct | Registered: Jul 2008
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bettyg
Unregistered
posted
yes, BOTH! see my newbie package link for SYMPTOMS and go thru lyme/co-infection symptoms to see where it's stated ok. use table of contents.
also look in there for my post on EYE SENSITIVITIES and there is 1 post where feedback and tips are shown by us if that might help you; logging off until late tonight!
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posted
Thank you, Betty, I was wondering if it was all of them or more one than the others. I guess I should have gone back and reviewed your post. Will do!
Posts: 76 | From tolland county, ct | Registered: Jul 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
I have very bad light sensitivity.
It's sad because on a sunny day I have to close all the blinds and the curtains.
It's extremely bad after it snows and the sun comes out and hits the snow... I feel like I'm gonna heel over!
One "Cyst Buster" to stay away from if you are having eye problems is Plaquenil. I learned that the hard way!
Good Luck!!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
yep me too. worst symptom of all by a long way. Not looking forward to a 3rd summer hiding in the dark.
I have been on plaquinel 7 months but my eyes were a mess to start with. I am going to change it out for tini soon.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
NMN:
I had 15/20 vision before this illness, God knows what it is now...
I currently switched from Plaquenil to Tindamax, much easier to tolerate.
Doesn't bother my eyes like the Plaquenil did.
Good Luck!!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
I've had bad light sensitivity for a long time, though sometimes it's hard to sort out from the migraines.
My LLMD said before I go on plaquinil I have to see an opthamologist to get my "field of vision" tested -- baseline -- in case it changes on plaquinil. (She said for that means eye dr. wld chk peripherial vision.)
This seems scary to me. Vision is one of few things that hasn't been affected (aside from light sensitivity).
Have others actually lost vision due to this rx? does it come back if you go off it?
If you would be able to PM me instead or in addition to posting here, I wld appreciate it, as I'm having throuble keeping the threads straight and following them all.
Thanks. -Sharon
Posts: 223 | From Western Mass. | Registered: Nov 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Swaschler:
I went for a baseline eye exam before the Plaquenil. It was hell...
Everything went fine except they dialated my pupils and I couldn't see at all for hours.
I have heard that you can lose your vision on this drug, but I never met anyone that did.
I think the biggest risk is the fact that it makes your vision worse when your vision is already bad.
I stay clear from Plaquenil.... There are other "Cyst Busters" out there that do the same job and won't effect your eyes.
I was on it for 2 months and noticed a huge change in my eyesight.. I told the doc I wanted off of it and he put me on Tindamax.
Good Luck!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
| IP: Logged |
posted
I also went for a baseline opthamology appointment before starting Plaquenil. My vision was blurry for awhile but it wasn't too bad. With all that I'm going through, a little blurry vision is just a drop in the bucket! LOL
-------------------- Lisa D Posts: 103 | From MA | Registered: Jan 2009
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