posted
Hi everyone - I just saw that Melanie brought this thread back up.
Reporting in - the noni juice/grape seed extract capsule combo still works for me - completely shrinks my few lipomas. If I don't do this, the lipomas return.
Both of these remedies are anti-inflams.
My thinking is, if any of you who have just recently posted would like to email Dr Herbst (I think we can say her name here - she's not a Lyme doctor) and ask her for any updates on any possible easy ways to treat, and post back here, that could be most helpful...
Posts: 13171 | From San Francisco | Registered: May 2006
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Hey Robin, I tried contacting Dr Herbst recently... unfortunately there has been no reply. I imagine she gets many requests for information and at times is just as overwhelmed as we can be.
I asked specifically if she had linked this to any patients with Tickborne diseases and/or specicially Bart h. (mine always flare when I relapse hard with CSD)
I'll post back if I ever get a response. Or if I make any headway in my upcoming LLMD apt.
I just feel certain that there MUST be a connection here... as TC stated above - the similarities are just too obvious NOT to connect the dots!
Posts: 7052 | From Colorado | Registered: Mar 2003
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Bumping this back up to re-read... because it is really progressing for me... and I am still searching for answers.
In the last 2 weeks, I have developed a rather annoying and very inconvenient lump on the bottom of my left foot, between the ball and arch. At first I kept thinking that I had a rock in my shoe. Kept checking my shoes, my socks, etc., because I could not understand what the hell was annoying me so much.
It took awhile to come to my senses and realize that this was indeed yet another mysterious subcutaneous nodule and no matter how many times I re-checked my shoes... it wasn't going away!
Posts: 7052 | From Colorado | Registered: Mar 2003
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posted
Mel .. Did you try the noni and grape seed extract?
I found out my second cousin has Dercum's and is in a lot of pain from it. He also has MCAS like I do.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Hello Miss Toots,
Actually, no, I did not try that combination. I think at the time I was on so many things that I just couldn't comprehend adding anything else into the mix.
Wow, that is rather surprising about your cousin. Does he also have TBDs by chance? Sorry, but you are going to have to spell out what MCAS means for me.
Posts: 7052 | From Colorado | Registered: Mar 2003
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
OMGosh, I am convinced that I MUST have been re-infected while on a holiday break trip to Seattle in 2002. I was doing just fine(ish), and then all of a sudden, I came down with a flu-type illness on the trip, and then... well, everything just went to hell in a hand-basket after that.
*editing to add- while on that trip, I spent a few days roaming the area botanic gardens, including the arboretums. Yeah, big surprise there, right?
Thanks, I'm going to have to read up on MCAS, as I have seen that acronym thrown around a LOT, but have been too preoccupied with my own known issues to even want to consider yet another thing. Posts: 7052 | From Colorado | Registered: Mar 2003
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