posted
I was on antibiotics for three weeks before I had to quit due to a yeast infection that woudln't go away even though I was on anti-fungals and an anti-candida diet.
I had no herx, no difference of feeling.
My igenex results 2 years ago: IGM 34 IND 39 ++ 41 IND 66 + IGG 41 IND 58 ++
If it's not Lyme I'm screwed. I don't want just CFS as I've been getting worse for 5 years and haven't gotten better.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Brian,
Are you being treated by a LLMD? I assume so.
I assume you have had many serious symptoms for you to have even gotten a test for lyme.
I'm no doctor but the tests from 2 years ago are highly suggestive of a positive. I assume that test was for lyme.
Did you also have tests for other tick borne infections? Were you clinically assessed for such?
Were you treated two years ago - after that test?
I would not be concerned that you had no herx in your 3 weeks of Rx. Relax. Many people don't have a "herx" and some LLMDs are working hard to prevent that, actually, with liver support.
You got lucky and you may have a stronger liver than most patients as the herx is mostly from the liver not being able to handle the load. Or your body just handled the Rx well. But you need 30 weeks' treatment, minimum, according to some researchers. (see links at this thread: http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/79007 )
What does your LLMD suggest?
As for being scared this may be CFS, if you've been getting worse for 5 years and have not gotten better you simply do not have the luxury of letting fear stand in your way. CFS - or whatever you might want to call it - is a group of symptoms.
CFS is not the diagnosis. The point being, that: 1. It does not appear that the lyme has been adequately treated if all you have done is 3 weeks' treatment after being ill for 5 years.
And, here are other tick-borne infections that need to be considered - or other chronic stealth infections such as Cpn and HHV-6 that have been mentioned in other recent threads of yours, I think.
First, I'd follow up with detailed treatment for lyme - with stronger anti-candida measures. AND there are other ways to treat lyme but it must be very specific.
Are you taking diflucan ? Sure, the fungal infection must be treated but by ignoring lyme you face a huge risk.
What does your LLMD say about all this? Have you considered alternative treatments based with allicin. Allicin, too, is a wonderful anti-fungal as well as helping against lyme. There is a specific protocol and many LLMD incorporate that.
Even if other stuff is going on, you are not "screwed" as you put it. You just need to find out more and face it head on. Remember that action can replace fear. Rather then afraid of being "screwed" it might be more accurately described as "in a complex situation that requires serious attention."
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And, oh, I just noticed that you appear to sign your full name. That is a security risk for your personal records. You might want to edit if that is your real name. Any time in the future that your name is googled, anything you say here will pop up for all the world to see, even your insurance company (and they love to deny lyme treatment). Prospective employers also google candidates.
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I know this is an upsetting time for you. There is an answer. There will be a plan. I hope you can find a good doctor to guide you.
As for the fear, be sure that your fish oil and magnesium intake it at the top range that Burrascano and Singleton recommend. That will help calm your system.
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[ 03-24-2009, 01:02 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I was just going to create a thread about this. I have been on abx for two weeks now. I started out for 5 days at 200 mg of doxy and increased it to 400 mg after that.
I will say I had the mother of all headaches n Thur and missed work. However, for the most part my sharp pains in my head have subsided and I feel pretty good aside from my neuro symptoms. I knew it wouldnt go away over night. I get the shakes and tremors but not a herxing reaction like alot of people describe. Does this mean the meds arent strong enough oris my body just taking it on a lil better?
Thanks for reading and I hope you feel better ice.
Posts: 171 | From the land of oz | Registered: Feb 2009
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posted
It took awhile before my herxing was bad. Maybe you'll be one of the lucky ones who NEVER herxes.
Your test is highly indicative of LYME!!!! No doubt there.
Band 39 alone means you have it without any doubts.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I've wondered that too.
I started abx (100mg Doxy twice a day) almost 2 weeks ago, and I haven't really had what I would call a herx yet.
I did have a little bit of achiness yesterday or the day before that felt like I was coming down with something, but beyond that, no.
I did have some incidences of panic symptoms right after I started the abx and thought that was a herx,
but my husband's cousin, who also has Lyme, said she didn't think that was a herx.
I keep worrying that I'm not on the right abx or the right strength.
I see the LLMD again next month for a follow up, so I guess we'll see then.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
You may want to research additional ways to treat yeast...people here have good experience with it.
I feel like I always have some yeast on the back of my tongue and in my GI tract, but it's not out of control.
I am taking doxy, plaquenil and zithromax, so I think I'm doing ok, considering.
I take 4 probiotic caps per day, follow a candida diet and take some olive leaf extract.
My LLMD was disabled in a wheelchair for 5 years and said his thrush was really bad during his treatment. He is doing well now.
On the subject of herxing....everyone is different. Mine was not horrible....some headache, increased fatigue, a little increased pain in the tissues surrounding my joints.
I am only 6 weeks into treatment. My LLMD says some people might herx later...like 3 months into treatment...you never know.
Now...about your western blot results...go to Dr B's guidelines...see link below....scroll to page 6-7....read the short explanation about western blots on page 7....
He says that you need to see band 41 and ONE species specific band to be positive. Now look at your + and IND bands.
I hope you are seeing a good LLMD.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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