posted
My 7-ear-old has been on abx since november. he's been diagnosed with ld (master's disease), erlichia, rocky mountain spotted fever...
the only symptom he really has is knee or foot pain every 5 to 7 days at night. I rub it for 10 to 15 minutes, he falls asleep again and wakes up fine.
He was on amox., then zythromas (two months). He's on doxy & amox. right now. He's almost done and would then move to the next abx.
My SPIRIT is telling me to trust that he's better and stop medicating him. I FEEL that I should stop all of a sudden. I just want to finish out this month and just....stop.
What would be the danger in that?
Can't I just watch him and see if he is fine or if symptoms get worse?
Would that be a big mistake?
HELP!!! He's little.
Thanks, jessica
Posts: 43 | From Austin, TX | Registered: Nov 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey there..
Nice to know your little one is doing better.
None of us can make that call for you. It is something you need to discuss with your doctor.
I do know what could happen if you stop treatment too soon.
It can be very ugly. You don't want to go there.
It sounds like you have a doctor who is staying on top of this... so I think if it were me.. I'd do what they said.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
You son is still in the beginning stages of treatment.
He needs treatment for at least 30 weeks to cover the life-cycle of the spirochete. Anything less can make this come back later much, much worse and creating all sorts of neurological problems.
Is your son being treated by an ILADS-educated LLMD?
If the treatment is too hard, there are ways to ease that. But, whatever, the infections must be addressed completely and for the required amount of time. Otherwise, your son could be looking at an entire life-time of illness. Also, it's important to know that each of the infections you list can be fatal if not adequately treated.
Again, there may be other ways to work with this but its best to honor the science of the infection and the need for specific measures. Some of those are in links that I'll post in a few minutes below.
Q: Is your son taking liver supportive supplements? Those are very helpful in making treatment easier and safer. More in Singleton's book about that (link below).
Massage, too, is helpful, for feet as you are doing, and for full body to help the liver and lymph system get out the toxins from infections and metabolize the medicines, too.
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
My daughter had minimal symptoms. When she was symptom-free for two months (no knee pain and no headaches at all), we switched her abx around, put her on stronger ones, and waited to see what happened. When it didn't stir up anything and she remained symptom-free, we took her off abx altogether .... that was one month later.
She's been off abx for about a year now and is doing well. I'm glad we rode out the full treatment so she doesn't get as sick as I did with it. Eight months seems like a long time, but it was worth it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" -(author's details at link)
Excerpt:
. . .
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
. . .
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
She is an ILADS member and a ND (naturopathic physician), so she has knowledge of the unique nature of the spirochete and what is required but also knows all about supportive techniques.
The One Earth Herbal Sourcebook (Tilltotson, et.al.)
While the only reference to lyme is in the chapter about Sarsaparilla, this is an excellent resource book about the forms and functions of herbs. Liver and adrenal support herbs are described in detail here, too.
If you have a LL ND near you, that would be best so that you can have individualized care. Acupuncture is also very helpful as a support - it can help the herbs work better.
=================
While intended as support and not primary therapy, some of the supplements here are essential for lyme patients.
He had pain last night and I just got really scared that the abx were hurting him. My FEELINGS are always right.
So, maybe I just need to learn how to support his little body to handle abx for so long.
So, liver support? I'll read all those links.
But, off the top of your head, What else can support his body to handle all those abx?
Posts: 43 | From Austin, TX | Registered: Nov 2008
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posted
Dr. C said (last month) that possibly after this month of treatment we could call him "normal".
He said he has a 97% cure rate. So, I thought that I MIGHT be able to stop after this month. Then, he still had the pain at night occassionally, so I thought ONE more month.
Now, I seem to be learning that 30 weeks is the big number. Dr. C didn't say that at all. I had NO IDEA!
Posts: 43 | From Austin, TX | Registered: Nov 2008
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posted
I might need to give him ANOTHER month of abx. If so, what can I do to support his little body to handle such abx for so long???
I have a lot of reading to do, but I also have 7 kids in my care & a mentally disabled husband & a full-time AND part time job so ANY QUICK INFO would be MUCH appreciated. --------------------------------------------------------------------------------
Posts: 43 | From Austin, TX | Registered: Nov 2008
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posted
HI My son is 8. He was on abx for about 7 months. Then off for 8 and then he got reinfected.
Started ABX right away and did that for 3 months.
Now off, symptoms have subsided.
We hold him with Enula drops, Samento Drops, glueten and case free diet, low sugar diet. Quercitin, yeast-cleanse, probiotics, and oil of oregano.
He also sees the chiropractor weekly for adjustments.
I've struggled with these descisions too. AFter 3 weeks off abx he had a spike of symptoms. It lasted about a week and now he is ok.
We see an llmd here in nj every month. We are trying to hold him with the supplements only, but will monitor his symptoms to help us make the decision.
Good luck
Posts: 368 | From freehold, nj | Registered: May 2007
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