LymeNet Flash: ALS - Borrelia -Patrick O'Brien Foundation

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»	LymeNet Flash » Questions and Discussion » Medical Questions » ALS - Borrelia -Patrick O'Brien Foundation

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Topic: ALS - Borrelia -Patrick O'Brien Foundation

peter j
LymeNet Contributor
Member # 11825

posted

A young man with a ALS diagnosis.

Anyone who's been in contact with him?
It looks bad, and I doubt he's been tested with anything else than an ELISA test. I am not saying that all ALS is borrelia (I suspect it, some form of a spirochette at least, but I am not saying it). There are many people (such as Martz) who have borrelia with ALS symptoms.

http://www.patrickobrienfoundation.org/

Anyone who has seen their own Under Our Skin DVD, and could send him yours? (I have sent mine to Michael J. Fox....)

Posts: 275 | From Home | Registered: May 2007 | IP: Logged |

lakes592
LymeNet Contributor
Member # 18905

posted

Hi,
I saw that we can send him messages. So guessing we should do that as well.

Take Care,
Ann

--------------------
If you keep doing nothing...nothing changes!

www.underourskin.com

Posts: 579 | From NH | Registered: Jan 2009 | IP: Logged |

shelly23
LymeNet Contributor
Member # 16124

posted

I HATE ALS I WISH AND PRAY THAT STEM CELL HELPS CURE THIS DISEASE............

--------------------
Shelly
~ IGM~Positive
CDC Positive
23-25 +
31+++
34++
41+

I am a Dreamer, Believer, and Conquer; I will overcome this disease !!!

Posts: 382 | From Alabama Via PA | Registered: Jun 2008 | IP: Logged |

lou
Frequent Contributor (5K+ posts)
Member # 81

posted

The trouble is that even lyme docs are hesitant to treat lyme that looks like ALS. It is tricky and risky.

Posts: 8430 | From Not available | Registered: Oct 2000 | IP: Logged |

peter j
LymeNet Contributor
Member # 11825

posted

Anyone who has contacted him? Or sent your film? I can't help but feel sorry for this guy.

Posts: 275 | From Home | Registered: May 2007 | IP: Logged |

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