posted
I have had the same problem and it has worsened recently. Mine also starts at the elbows and goes into my hands and/or starts at the knees into my feet.
Circulation problems perhaps? I am also interested in possible causes.
-------------------- Lisa D Posts: 103 | From MA | Registered: Jan 2009
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posted
neurapathy. caused from nerve tissue/mylin damage and causes pins/needles or falling asleep sensations. can be painful zaps as well.
look up neuropathy
this is where having good neuro on y our team helps, is common neuro symptom.
as for my neruo- i am "lyme induced MS" as far as his tx of me goes- makes sure to leave all abt up to LLMD though!!
on high does no neurontin, baclon 3xday, cymbalta and all the usually neruo supp.
tx has helped this tremendously!!! now is occasional not constant and at times for hours on end
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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posted
Thanks My3Boys! My neurologist believes that my Lyme is "causing" MS in me but that I do not have it yet as my MRI was normal.
How did you get dx'd with MS?
-------------------- Lisa D Posts: 103 | From MA | Registered: Jan 2009
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Oh no! I have this as well from my elbows to hands and knees to feet. Although I have a clinical dx of Lyme and have been treating for over a year, my neurologist said possible MS as well.
I did have a spinal tap that showed 10 oligoclonal bands and I have a lesion in the right frontal lobe. I'm so scared!
If I don't do anything specifically for the neuropathy is damage being done or is it just an annoying symptom? Is just treating Lyme and co. enough?
Posts: 2541 | From Northeast | Registered: Jan 2008
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
So if it's a circulation problem would something like wobenzym help?
Posts: 2541 | From Northeast | Registered: Jan 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I describe it more as a tingling feeling or sometimes it feels like a burning feeling. Same place, elbows to hands and knees to feet.
I never went to a neurologist. Got a FM diagnosis and finally got a clinical diagnosis for LD.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
I don't think it's ;ikely it's a circulation problem. Probably Lyme has gotten into the nerves and caused "neuropathy". I had this, but it was more like a burning searing sensation rather than tingling.. DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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posted
Hi Erika, I have it sometimes so bad that it actually hurts and was one of my first relapse symptoms. It is neuropathy as Dave mentioned. I am hoping it gets better with treatment.
I also have alot of muscle twitching as well. Has the treatment gotten any better? I know you are a week ahead of me. Mine has been alot better since I switched down to the same dosing as you. Good days and bad but still better.
Not sure how Dr. D will feel about me cutting out that extra 500mg of Biaxin and still don't know why he would have me on that much more. Guess I will have to wait and find out in May when I see him.Hope you are ok I'm thinking of you.
Take Care, Ann
-------------------- If you keep doing nothing...nothing changes!
tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I think it could be a circulation problem as Lymies tend to have "sticky" blood. My albumin/globulin level is high which I just looked it up and it can mean high fibrin levels in the blood (aka sticky blood).
High albumin/globulin and fibrin can mean you body is flooded with toxins from fighting and infection or herx.
I can't explain it in detail but I looked all this stuff up so if you google high albumin/globulin and fibrin you'll get the idea. Apparently people with high fibrin levels are more prone to strokes and circulation problems.
Somehow I also made the connection between my bilirubin being high and the high albumin/globulin. It is connected somehow but my brain won't let me figure it out right now w/out looking it up.
There was also something about how decreased circulation can press on the nerves and cause pins and needles as well. I'll look up more info and put it on here. Anyway, if any of what I said makes sense then that is why something like wobenzym may help b/c it helps with circulation and breaking down fibrin in the blood.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
Its peripheral neuropathy--i have had for 3 years-- it is 1 of my primary symptoms along with muscle twitches & floaters.
I was checked by a neurologist---no muscle weakness or any neurological deficits.
My doc says LD is a disease of the central & peripheral nervous systems---in his experience the burning skin doesn't cause any permanent damage---it goes away when the LD is knocked out or in remission. Same with the muscle twitches.
Btw, you might want to get checked for Bart---it can also cause tingling, burning skin & muscle twitches.
Posts: 213 | From ohio | Registered: Jul 2006
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Leelee
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Member # 19112
posted
I get it on the front top of my thighs. It also feels cold where the prickles are.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
DeafFromLyme _ yes sounds exactly like lyme.... Sorry!
Bv- have you treated bart for your muscle twitches?
Anything making it better?
Best to you all!!
Posts: 347 | From sweden | Registered: Feb 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
This was one of my first unbearable symptoms (there were others, but I could live with them).
It led to my (mis)diagnosis of MS.
Yes, it's peripheral neuropathy.
The things that have helped me:
Abx treatment & Babs treatment Cymbalta B-12 injections (yes, this really helped) Various supplements
All of the above helped to a degree, but didn't knock it out completely.
Just made it livable.
I've now found that additionally I have Addison's Disease (adrenal insufficiency) and I did not know that this was a symptom of that.
Treating that condition has helped a lot as well. That would be a last resort, but if all else fails - it's something to consider as well.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
I was just about to post this same question when I saw this thread. I am tingling all over. The soles of my feet are burning and I have to keep moving around because I notice it even more when I am still.
I have had this before but never this bad or lasting this long. I even asked doc about it today but he said it's not from my amoxy.
I was feeling so alone till I read this. Was going to start a new herbal protocol tonight but I think I should wait till I feel a bit better as I don't want to complicate things if the herbs don't agree with me. Just had a glass of wine instead - at this point what the heck!!!
Posts: 133 | From Far Hills, NJ 07931 | Registered: May 2003
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posted
Silly people, it's from anxiety. That's what two doctors told me. ;-) Even though it was nonstop for over a year--I guess I was really anxious!
Posts: 311 | From CA | Registered: Jul 2008
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Here's some info on parasthesia.
Mine has gone away with treatment, returned with relapse, gone with Tx, returned with relapse, gone with Tx & returned with relapse.
It's maddening!! Then again I've been battling quite a few coinfections in addition to Lyme so perhaps once everything's been treated I can stop being a yo-yo.
It seems to be going away with treatment again, hopefully this time it will stay gone!!!!
Sensation is carried to the brain by neurons (nerve cells) running from the outer parts of the body to the spinal cord in bundles called nerves.
In the spinal cord, these neurons make connections with other neurons that run up to the brain.
Paresthesias are caused by disturbances in the function of neurons in the sensory pathway.
This disturbance can occur in the central nervous system (the brain and spinal cord), the nerve roots that are attached to the spinal cord, or the peripheral nervous system (nerves outside the brain and spinal cord).
Peripheral disturbances are the most common cause of paresthesias.
"Falling asleep" occurs when the blood supply to a nerve is cut off--a condition called ischemia.
Ischemia usually occurs when an artery is compressed as it passes through a tightly flexed joint.
Sleeping with the arms above the head or sitting with the legs tightly crossed frequently cause numbness and tingling.
Direct compression of the nerve also causes paresthesias.
Compression can be short-lived, as when a heavy backpack compresses the nerves passing across the shoulders.
Compression may also be chronic. Chronic nerve compression occurs in entrapment syndromes.
The most common example is carpal tunnel syndrome. Carpal tunnel syndrome occurs when the median nerve is compressed as it passes through a narrow channel in the wrist.
Repetitive motion or prolonged vibration can cause the lining of the channel to swell and press on the nerve.
Chronic nerve root compression, or radiculopathy, can occur in disk disease or spinal arthritis.
Other causes of paresthesias related to disorders of the peripheral nerves include:
Metabolic or nutritional disturbances. These disturbances include diabetes, hypothyroidism (a condition caused by too little activity of the thyroid gland), alcoholism, malnutrition, and vitamin B12 deficiency.
Trauma. Trauma includes injuries that crush, sever, or pull on nerves.
Inflammation.
Connective tissue disease. These diseases include arthritis, systemic lupus erythematosus (a chronic inflammatory disease that affects many systems of the body, including the nervous system), polyarteritis nodosa (a vascular disease that causes widespread inflammation and ischemia of small and medium-size arteries), and Sj�gren's syndrome (a disorder marked by insufficient moisture in the tear ducts, salivary glands, and other glands).
Toxins. Toxins include heavy metals (metallic elements such as arsenic, lead, and mercury which can, in large amounts, cause poisoning), certain antibiotics and chemotherapy agents, solvents, and overdose of pyridoxine (vitamin B6).
Malignancy.
Infections. Infections include Lyme disease, human immunodeficiency virus (HIV), and leprosy.
Hereditary disease. These diseases include Charcot-Marie-Tooth disease (a hereditary disorder that causes wasting of the leg muscles, resulting in malformation of the foot), porphyria (a group of inherited disorders in which there is abnormally increased production of substances called porphyrins), and Denny-Brown's syndrome (a hereditary disorder of the nerve root).
Paresthesias can also be caused by central nervous system disturbances, including stroke, TIA (transient ischemic attack), tumor, trauma, multiple sclerosis, or infection.
More information on paresthesia
What is paresthesia? - Paresthesia (paraesthesia) is a sensation of tingling, pricking, or numbness of the skin with no apparent physical cause.
What causes paresthesia? - Paresthesias are caused by disturbances in the function of neurons in the sensory pathway. Peripheral disturbances are the most common cause of paresthesias.
What're the symptoms of paresthesia? - Paresthesia is a burning or prickling sensation. Other symptoms may accompany paresthesias, depending on the type and severity of the nerve disturbance.
How is paresthesia diagnosed? - A careful history of the patient is needed for a diagnosis of paresthesias. Distribution of symptoms may also aid diagnosis of the underlying disease.
What's the treatment for paresthesia? - Treatment of paresthesias depends on the underlying cause. Several alternative treatments are available to help relieve symptoms of paresthesia.
[ 04-04-2009, 09:33 PM: Message edited by: AliG ]
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Typically that is indeed Lyme-induced "peripheral neuropathy". Had it 2 months into treatment, & still sense it to this day, though it's nearly gone now.
The BB gets into the nerve bundles & can cause different symptoms... including numbness, pain surges, pins & needles,hypersensitivity, etc. It will improve w/ treatment.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I believe it could be either circulation or neuropathy depending on what's going on. Probably best to get a professional opinion.
A detailed history will be needed to determine the cause of the neuropathy.
Neurologic examination may reveal abnormalities of movement, sensation, or organ function. (See also entries on the specific nerve dysfunction.) Changes in reflexes and muscle bulk may also be present.
Tests that reveal neuropathy may include:
* EMG (a recording of electrical activity in muscles) * Nerve conduction tests * Nerve biopsy * Blood tests to screen for medical conditions, such as diabetes and vitamin deficiency, among others.
Tests for neuropathy are guided by the suspected cause of the disorder, as suggested by the history, symptoms, and pattern of symptom development. They may include various blood tests, x-rays, scans, or other tests and procedures.
The NYC Neuroborreliosis Support Group has an "ask the experts" link. One of the experts is a Neurologist. That would probably be a good source for more information.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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bettyg
Unregistered
posted
ali, your last 2 posts were full of good info; thanks so much; i learned a lot from them!
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