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» LymeNet Flash » Questions and Discussion » Medical Questions » Supplements-WHICH ONES TO TAKE??!!

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Author Topic: Supplements-WHICH ONES TO TAKE??!!
sonee123
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I am so confused!!

I went to Vitaminshoppe and was lost!!

I am taking abx and i take B12 and Vitamin C.

I know i am missing alot of them.....which other ones are required that each one of you use?

Please advise.

Thanks

--------------------
May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen.

Posts: 341 | From Columbia, MD | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Keebler
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-

The two very best sources for lyme patients:

-----------------------------------

From:

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano'sTreatment Guidelines (2008)

37 pages


Within that document above, here are the four pages specifically addressing supplements for lyme patients. The essential ones are listed:


http://www.lymepa.org/Nutritional_Supplements.pdf


Nutritional Supplements in Disseminated Lyme Disease

J.J. Burrascano, Jr., MD (2008)

Four pages


============


This book, by an ILADS member LLMD, holds great information about treatments options and vital support measures:


http://tinyurl.com/6lq3pb (through Amazon)


THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com


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Keebler
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-

I don't recall if it is listed in the sources above, but HAWTHORN extract is an excellent supplement that helps the heart.

I have tons of links if you want more about that.


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sonee123
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Thanks keebler!

I went to the shoppe and found ALOT of supplements for detoxification for the liver?

I dont know or have any clue that could help.....any herbs or supplements that can actually help the liver detox with all the abx we take in?

--------------------
May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen.

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Keebler
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-

Oooh, there is that word again. Just a personal preference but I like the word "support" regarding liver supplements. While some "detox" supplements may be just fine, there are many that are harsh and more of an "event" vs. an on-going gentle support so that the liver can do it's own work more easily.


If you first stick to the liver support suggestions by the authors above, that is best. Milk Thistle is the number one. NAC is good, too.

Some of these go a bit beyond simple support and can actually PROTECT the liver from abx (antibiotics) or other strong drugs, as you mentioned your concern.

I am so glad to hear that you are aware because liver support and protection is vital to the success of treatment. The liver is the most important thing to consider with everything that goes into your mouth or even onto your skin.


As well, with lyme being so toxic, there are added measures needed for detox but those involve such things as low heat sauna, gentle exercise, massage. Sweating is good, but the heart needs to not be too stressed.


Some use a powdered product called Cholstryramine . . . see the site for www.chronicneurotoxins.com - Some LLMDs use this. Others do not.


I have to go now but will come back a little later with some more liver links.

--

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lymeinhell
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What brand and doseage is just as important as what you take. There's lots of junk out there that don't really contain what they say they do.

Another important factor is WHEN you take them. Certain supplements interfere with other types of medication.

A good rule of thumb is to take them at least an hour away from when you take antibiotics. Milk Thistle is very key - however, you cannot take it while taking Mepron (for Babesia). Soloray makes a good 175mg doseage, to be taken twice a day, away from your antibiotics.

Vitamin Shoppe does seem to stock quite a bit as of late. I don't have the info to give you a rundown on all, but can say New Chapter products are all top quality. Pure Encapsulations and NOW brands are also quite good.

You also need to take a quality LOW DOSAGE Magnesium (50mg if you can find it), numerous times a day. If you buy one of the 500mg types, you may end up spending your days in the bathroom. Your body can only absorb a tiny bit at a time - excess amounts will cause the runs and be excreted. (sorry so graphic).

In addition to these above, I take a whole set of vitamins from www.bodywise.com. They make it easy as you can buy a kit of stuff and it's delivered once a month. I use their RightChoice 24/7 kit, and also take their immune builder, AG Immune https://www.bodywise.com/corporate/products/#myPage=products:essential_nutrition

Note - I'm not selling anything. I was put on this stuff by my LLMD 5 years ago and did notice quite a difference in my energy levels. I'm also one of the success stories here, so am hoping this helps you too.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
sonee123
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Thank you guys....

Ok so what i need to add on is multivitamin, milk thistle and magnesium.

I have massive huge pills for multivitamins is there a brand that does chewable or less BIG pills?

I do sauna almost everday so thats good. Also i excersise every other day just for like 15 min. I do also do epsom salth baths once in a while.

So what brands are good for milk thistle and magnesium?

--------------------
May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen.

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Keebler
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Sonee,

It's best to first look at the list that Dr. Burrascano has written for lyme patients.


Go from there. See what brands he recommends.

The full Burrascano treatment guidelines (first link above) has detail for exercise.

Epson salt baths are very nice, if they work well for you. Just don't get to hot. A warm bath is best, enough to sweat but not too stressful for the heart.

--


You said you sauna every day. Low heat or regular sauna? Did you tell your LLMD this? Low heat is generally the type recommended for lyme patients. Sweating is good, of course, but the low heat will still do that. Far infrared (one type of low heat sauna) is great but not everyone can afford that.

Some lyme patients have heart issues and that is one reason they are instructed to avoid aerobic exercise and other activity that may stress the heart. High heat can be a major stress on the heart.

Low heat can be very helpful.


--

Source Naturals is one good brand of supplements. Eclectic Institute is another. With herbs, you want to get standardized and, if possible, organic. With supplements, avoid those that might be warehoused for long periods of time or exposed to high heat.


You can also find some good ones here that are made fairly fresh, rather than stockpiled for a long time:

www.vrp.com

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One other good place to buy is www.vitacost.com - they carry many good brands.


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unshakeable333
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Douglas Laboratories makes a very good multivitamin and a good magnesium, it's magnesium Glycinate rather than oxide, 100mg each pill. Not sure what makes this difference between the sources but my LLMD seems to know her suppliments.

The multivitamin I take is their Ultra Preventive D, where you take 6 a day and not just a huge one each day so it's broken up over the whole day and has a lot higher levels of the things we need, look up the brand, they are more expensive but they use very good sources.

I'd also think to add in a good fish oil for your good fats - EPA and DHA. High quality is important for a fish oil though so you don't get any heavy metals, I use Orthomega right now, but have also used Nordic Naturals. Both are molecularly distilled and tested to have no levels of heavy metals.

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sonee123
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Keebler,

OMG now that you say that about stressing the heart too much with heat!

Well first time in whirlpool and it was 104 degrees temp and i was in there for 25 mintutes just fine and i came out so dizzy heart about to pound out of chest and about to faint. Everyone said it must be chlorine!!

Ok i use the sauna at my gym at ballys. Not sure which one is it but i know they use rocks to heat it up. Its quiet hot. i have to find out what temp it is.

It says not to exceed 10 min and i follow that and i check my heart beat and it seems fine each time. Is that ok?

My llmd is BS!! sorry but seriously i dont like him and waiting to get in with a new one. whenever i ask him something he tells me to go to ER!

--------------------
May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen.

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Keebler
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-

The rock sauna (that you say is quite hot) at your gym is a regular sauna. Probably dry heat - unless it's also the kind that someone can add a scoop of water.


Your heart beat is not the only thing that would indicate if the heat were too much for your heart. And the high heat can also be very hard on the lungs, nasal passages, throat, etc.


But there are still things you can do. If no one else is around, can you crack the door and sit near that? You can take a wet towel and keep it over your head, protecting your nasal passages.

You can go in for 5 minutes, out for 5, etc. for a couple times.

Can you do a search and see if there are an Far Infrared Saunas in gyms in your area. I know that the Edgar Cayce Institute in in your city - call them and ask.

-

I'd stay out of the whirlpool if you get dizzy. The chlorine gas is higher there because they have to use so much more in the hot water. So, yes, that is a concern, but the heat, too, can really wring you out.


I know - I used to LOVE that. But then I'd be nearly paralyzed for a week or longer just from the heat of a whirlpool or a regular sauna.


If you get dizzy, that can be sign that your heart is way overworked.


With some changes, you can still enjoy some of this so don't feel too bad. The thing is that if you can locate a far infrared sauna, that heat goes much deeper, but at a lower temperature so that your heart is safe.

You say your LMD is B.S. - then all the more reason to be sure to read Burranscano and Singleton's links posted either above or at another link of yours today.

Oh, as for going to the ER. I would not count on that helping. Of course, if you think your life is at risk, go. And, not everything is lyme related. It's important to remember that.


However, most lyme patients have had horrible experiences and certainly most ER doctors not only know nothing about lyme, they really put down lyme patients. You would never go to the ER for any kind of lyme problem, but if you have lyme and that is part of the deal, it can make any trip to the ER more harrowing.


By reading Burrascano's guidelines - and all about self-care - AND Singleton's book, you can avoid many trips to the ER.


Good luck.

-

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sonee123
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Hey keebler,

I will search on far infared sauna. Thank you so much for all that info.

Do you know where i can find DR Singletons guidelines?

I know going to a regular doctor makes me wanna through up. They do not know anything about lyme! Its horrible. I am actually scared to go to these docs or hospitals cause they make me feel worst, your right.

Keebler how are you doing as of now? Are you somewhat stable....and how long have u been on treatment?

--------------------
May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen.

Posts: 341 | From Columbia, MD | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
   

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