posted
has anyone been diagnosed wtih pots (postural orthostatic tachycardia) with a tilt table test?
i was told i didnt have syncope but did have pots. i read about this and usually occurs after some stressor like an infection.
i think most of my disabling symptoms may be related to this condition.
if you have it what are you doing to treat it and does anyone know of a specialist for the condition in the new york tristate area.
the main symptom i have is my heart rate is high usually in the 90s at rest and goes to 120-130 when i stand. it feels like my heart is constantly racing.
let me know about your experiences with pots.
Posts: 45 | From ny | Registered: Aug 2006
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A cardiologist is the type of doctor who can treat this.
Best Wishes,
Lymepool
Posts: 170 | From New Jersey | Registered: Jun 2008
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I had POTS really badly. Notice I said had,it was one of my first symptoms after I got bit. I saw a specialist, who wouldn't put me on anything..just told me to stay hydrated and increase my salt.
Fortunately, it went away with treatment, and supporting my adrenals..took a good year, but it gradually got better over time.
Wishing you the same...Beth
Posts: 1276 | From maryland | Registered: Jan 2009
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lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Blackcat,
I just tested pos. for POTS from a tilt table test. I didn't pass out with the Isuprel injection, but I was damn close. I told them to turn it off as either I was about to pass out or I was just scared to death from my heart pounding from that drug. I had BP changes from lying to standing, but they weren't that bad. My body definitely felt something terrible when they stood me up with that Isuprel infusing. Not a test I would want to repeat.
Kind of funny, because at home, my BP actually goes up sometimes from standing. Like you, my HR is like 90-100 at rest and shoots up to 120-150 while standing. Sometimes I get short of breath, other times, I can just feel my carotid arteries pounding away like they are going to explode.
The extra salt and hydration does nothing for me. Funny, as I started that Salt/C protocol a few weeks before the diagnosis, so I am hydrated, no question about that. Of course I never told them that. The Beta Blocker they put me on didn't help either. I actually stopped the beta blocker as it gave me terrible acid reflux and terrible headaches. Now I'm paying more as I'm getting rebound tachycardia and even worse headaches coming off the Beta Blockers.
I'm also very shaky, I don't know if you have this symptom and I don't know if it's related to POTS.
I knew I had this for a while before the actual diagnosis. Your right in that the POTS is disabling in itself. It seems to have raised my anxiety as well, so I've gone up on my Klonopin to compensate.
Lastly, my POTS seems to be worse at times than at others. Sometimes I stand up and the HR doesn't go up so bad as it does at other times. I have noticed that loud noised, bright lights etc. seem to exacerbate it. Not sure what to make of that.
Feel free to PM me.
Lymetwister
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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