posted
I was DX w/ Partial seizures last year, my neuro thinks it's from the Lyme.
I don't feel these so called seizures....
Any thoughts?? Posts: 85 | From Staten Island, NY | Registered: Nov 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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A seizure can be ANY neurological function going a bit awry - or beyond. Actually, for a neurologist to be aware of this is a very good thing. Most are not. Certainly, none whom I've seen.
A seizure disorder is not always the same as epilepsy. Seizures can be caused by toxins (and there's part of the lyme connection), and many other factors. When those factors are fixed, often, the seizures become a thing of the past.
I've been dealing with seizures of various kinds for years. Most likely, they are related to lyme that went untreated for so long and now I have to pretty much figure out how to treat on my own -- but my inner ear also play a part.
Can you describe these events - what happens?
Are there triggers?
How do you feel the next day?
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Have you been tested for heavy metals?
Do you consume ANY - even a trace - of aspartame/Equal/Nutrasweet - even in gum, mints, etc.?
And MSG (google for all the names it can hide under)?
Do you eat regular meals and an afternoon snack of nuts or a fruit?
Is your blood glucose level within normal range?
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When you reply, it will be helpful if you can make paragraphs just 3-4 line, finished and then double the white space breaks between. You'll get more answers that way. Thanks.
I cannot tolerate the seizure meds.
Posts: 85 | From Staten Island, NY | Registered: Nov 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I think many of us here have partial seizures.
I know many of us, me included smell things that are not there which is a symptom. Others may hear something that is not there. There are many symptoms that can manifest that can be considered a partial seizure.
You should look up "symptoms of partial seizures" and see if you recognize any of the symptoms. Since Lyme is neurological it makes sense that we would have this.
You do not lose conciensness(sp) with partial seizures.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
who can do testing for metal toxins?
Posts: 85 | From Staten Island, NY | Registered: Nov 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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[edited to add: I see that you have posted in "Seeking a Doctor" so that answers some of the questions asked below. And, if your neuro thinks this is from lyme, would he help or does he think it's a short term treatment?]
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Metals - Doctor's Data Lab is one. You can google them. A challenge test with one DMSA pill might be the way to start.
I do fine with DMSA. Keep in mind that EDTA causes me to have more seizures.
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You said: "I cannot tolerate the seizure meds." --
I cannot either. There are other ways to work with this. I think there are two basic things going on that some lyme patients simply get worse with seizure meds.
1. The seizures are caused from toxic infections and
2. the liver is overloads with that and then adding seizure meds which are usually very hard on the liver adds to the load, even increasing seizures.
This is just my take and from some that I've read. Some lyme patients do okay with low dose klonipin but that just makes me more dizzy and weaker.
Most important: are you being treated for the lyme, bart and mycoplasma? AND are you taking magnesium supplements and B-6? Those are excellent help.
I'll post some links/articles from my file and will check back tomorrow. Many here have gone through this. Treatment for infections is the best thing to address.
Low blood sugar is best avoided as that can trigger seizures and a load of buldging disc problems in neck can also contribute.
Can you consult a D.O. who practices the Upledger cranial-sacral therapy and see if that would be safe for your neck? that is a very gentle approach.
Be sure NOT to take steroids as that can make infections worse.
Well, I'll post a few things and check back. Remember, this can get better. Be sure to let us know if you are being treated for the infections as that matters in how we respond further.
The B vitamins are water soluable. They don't stay in our system long...about 2 hours. We do store a little though.
Personally, I would apply a 50% dilution of Mg Chloride on my skin a couple of times daily and I would take the sublingual B6 then too.
Mg chloride can be purchased over the internet. It isn't cheap.
Our stomach acids are so strong, they destroy the B supplements we swallow.
Which is why the sublingual form is so important. It works immediately.
Sub B6 stopped a seizure my son was about to have (he knows the warning signs). He does not have lyme, but his doc. said he cannot hold onto Na (perhaps a genetic problem re: adrenals).
To compensate, his aldosterone level is very high (helps control Na too) and his testosterone level (which is protective in many respects).
Our bodies try to figure out back-ups to help us!
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Marnie how would this apply to someone who already has high,not elevated blood Chloride? Sodium norm. even after tablespoon of salt in OJ for a poison pull to the bowels every day= sodium still norm? Would the sub lingual B6 still be a benefit?
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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[ 11-19-2021, 05:08 PM: Message edited by: Lover11 ]
Posts: 48 | From San Francisco, CA | Registered: Mar 2009
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
I found the article on the nutritional approach to handling seizures to be exceptionally helpful!!! I was already taking many of the suppliments listed for various reasons--many of them Lyme related. So, this doubly made sense to me, as my seizures are so infrequent and seem to be precipitated most commonly by treatments--drugs or even herbs.
My LLMD says I have temporal lobe seizures. I've also had the full-on type, including extended unconsciousness following! And, hospitalization. UGH!!!
At any rate, when I feel the precursor to a seizure now, I take 100 mg of B 6 right away, and it cools off very fast!
Personally, I wouldn't take psychotropic meds like Xanax, as they have terrible adverse effect profiles and can be physiologically addicting, meaning that you can't get off them once you start without horrific adverse effects.
B Complex and B 1 would provide the mental stability without these problems.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Cass,
thanks so much for the B-6 advice.
I have to go to the dentist on Wed. and this may help. Any office setting has so many potential seizure triggers (lights, sound, movement) but the dentist's office is about double from all the sharp and sudden noise - and all that metal being tossed about.
I just hope to get out of there without brain injury. It's always a gamble. I can't take anything too relaxing as then I can't stand up or maintain bladder control.
B-6 may - in advance - may be the ticket to success.
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