LymeNet Flash: POTS website

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»	LymeNet Flash » Questions and Discussion » Medical Questions » POTS website

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Author

Topic: POTS website

blackcat
Member
Member # 9881

posted

I've been reading a lot about pots (postural orthostatic tachycardia) and came across a good website and it also has a chat room.

http://potsdisorder.com

im finding more and more people with lyme and co. have syncope or pots or both. it may be good to document this especially if you are seeking disability.

if you feel dizzy, faint or feel like your heart is racing when you stand you may have one or both of these conditions. a tilt table test can tell you.

anyway, check out this website and chat room if you want info or to talk to others to compare symptoms

Posts: 45 | From ny | Registered: Aug 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

up for others .. thanks, blackcat!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189

posted

I got that sometimes as a kid when I had a bug or something (WAY "pre-Lyme"...in the early '60s.)
I'd stand up & my heart would race, but not before I almost fainted.

By the way, "POTS"- in the radio, telephone & electronics worlds- stands for "Plain Old Telephone Service" (as in a "POTS codec"- an audio encoder that is used with a regular telephone line to send HiFi sound)
We could use more of these POTS... & less cellphones!

Posts: 1233 | From Dover, NH | Registered: Sep 2008 | IP: Logged |

lymetwister
Frequent Contributor (1K+ posts)
Member # 19590

posted

Thanks for the website Blackcat. I've been looking for such a site even though my POTS is Lyme related.

I have the type they talk about on there, the "hyperadranergic" type.

I guess thats why I'm so uncomfortable all of the time as everything is going all of the time on top of my Herxing.

Lymetwister

Posts: 1227 | From District of Columbia | Registered: Mar 2009 | IP: Logged |

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