LymeNet Flash: daughters possible jaundice from mepron

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»	LymeNet Flash » Questions and Discussion » Medical Questions » daughters possible jaundice from mepron

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Topic: daughters possible jaundice from mepron

rosebuds mom
LymeNet Contributor
Member # 17435

posted

Today my daughter looks a little yellow around

the edges and for the past week she has had

stomach upset more than usual. Dr. has not

called back yet and its Friday. Has nay one

else had these symptoms? I read the cautions

about mepron (this is her 6th month on it) and

jaundice and stomach upset are listed in the

toxic catagory so we are not going to give her

her next dose until we hear from her Dr.

I'm thinking liver detox for now.

Any thoughts?

Thanks you

Posts: 118 | From Here | Registered: Sep 2008 | IP: Logged |

Ocean
Frequent Contributor (1K+ posts)
Member # 3496

posted

Good job mom for waiting for Mepron! How are her eye whites??

It sounds highly suspect for jaundice, Dr. will probably want to take some liver enzyme tests.

Hang in there =)

Take care,
Ocean

--------------------
http://www.healingfromlymedisease.blogspot.com/

Sick since 1996...Diagnosed 10/2008

IgM:23-25 IND, 31+++, 39 IND, 41 +++
IgG: 31 IND, 41++, 58+

Posts: 1623 | From Ohio | Registered: Jan 2003 | IP: Logged |

rosebuds mom
LymeNet Contributor
Member # 17435

posted

Thank you Ocean

Her whites seem ok but I am still on the same track.

Every day is a new adventure in medication!

Posts: 118 | From Here | Registered: Sep 2008 | IP: Logged |

aMomWithHope
LymeNet Contributor
Member # 19255

posted

How's rosebud this morning? Did LLMD call you back?

We are trekking down to see Dr. J, but I will call you this week to see how you are doing.

My thoughts and prayers are with you.

Stay strong!

Hugs,
aMomWithHope

Posts: 648 | From northeast | Registered: Feb 2009 | IP: Logged |

blinkie
Frequent Contributor (1K+ posts)
Member # 14470

posted

I think mepron can cause yellowing of the skin. I had it bad when I was taking tsp 2x day.

I went and took family photos with my newborn. Yikes! That is how I could really tell. Wish I would have waited to take those pics! LOL!

Posts: 1104 | From N.California | Registered: Jan 2008 | IP: Logged |

hcconn22
LymeNet Contributor
Member # 5263

posted

This is a MAJOR WARNING SIGN of Kidney problems.

Please get this checked ASAP. Mepron will ruin or kill your Kidney's.

I would stop the Mepron until you get tested for Kidney problems. Being off for a few days will not cause any problems, but too much Mepron will.

--------------------
Positive 10 bands WB IGG & IGM
+ Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest

And still positive ELISA and WB two years after IV treatment
http://www.lymefriends.org/profile/blake

Posts: 607 | From Tick Town, Connecticut | Registered: Feb 2004 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

up

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

posted

My son was just diagnosed at 13 with Gilbert's Disease, just something to mention. It is a genetic disease where you have high bilirubin. I just wanted to mention it; we never knew he had it.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005 | IP: Logged |

rosebuds mom
LymeNet Contributor
Member # 17435

posted

Her llmd is going to test her liver before deciding what to do...
I'll post back.
thanks all

Posts: 118 | From Here | Registered: Sep 2008 | IP: Logged |

rosebuds mom
LymeNet Contributor
Member # 17435

posted

Well it took a while, but it turns out my

daughter did have liver issues that were

probebly from the Mepron. Her blood tests did

not show much but our Dr. is pretty sure that

her liver was taxed because she also had dark

urine as another symptom. So she has been off

of the Mepron for about 18 days now and is doing

great. The good news is that because she has

been doing so well off of it the Dr. feels we

can stay off whilst staying on the zithro. We

are to keep an eye on the jaundice situation

because the Dr said zithro could still effect

her liver as well. Dr. said she thinks we may

only have a couple of months left on the zithro.

My daughter has been on Mepron/zith since Sept

08 and it really has cleared up her Lyme and co -

so it seems it was a necessary evil. Now we are

crossing our fingers, detoxing and hoping

nothing else emerges.

Thanks friends!

Posts: 118 | From Here | Registered: Sep 2008 | IP: Logged |

rosebuds mom
LymeNet Contributor
Member # 17435

posted

I just realized in my original post I had mis counted how long my daughter was on Mepron. It has been almost eight months

Posts: 118 | From Here | Registered: Sep 2008 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Nice to know you found answers and things are getting better.

[Big Grin]

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www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Jane2904
Frequent Contributor (1K+ posts)
Member # 15917

posted

Glad she is doing better. [Smile]

Posts: 1357 | From Massachusetts | Registered: Jun 2008 | IP: Logged |

Lymepool
LymeNet Contributor
Member # 15827

posted

Greetings!

I am so happy to hear that your child is doing well. My kid was taking mepron from Sept 08 to Jan 09, then switched to malarone. So it has been 8 months for us as well with slow and steady improvement. Our LLMD appointment is next week, so we will see how much longer treatment will be needed.

Best Wishes,

Lymepool

Posts: 170 | From New Jersey | Registered: Jun 2008 | IP: Logged |

rosebuds mom
LymeNet Contributor
Member # 17435

posted

Thank your Tincup

Hi Jane and thanks, sorry I haven't gotten back to you..I'll pm you.

Oh good luck Lymepool. Please let us know how it goes.

Will keep my fingers crossed for everyone.

One step at a time!

Healthy healing thoughts.

rosebuds mom

Posts: 118 | From Here | Registered: Sep 2008 | IP: Logged |

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