posted
He's been on antibiotics for lyme for about 8 months. Recently the following symptoms put him in the hospital. They've been doing a lot of tests (tomorrow they're doing a heart catheter) so far everything comes back negative.
These are the symptoms when he has an episode roughly every 24 to 48 hours:
Begins to feel burning inside Heart rate jumps from normal to around 115 within seconds Blood pressure spikes Heart rate drops so low that paramedics almost couldn't detect Feels faint/delirious Heart rate normalizes Blood pressure normalizes Takes a couple of hours to recover and feel normal again Feels burning for awhile afterwards Has also felt chest pain (but not always) during episode
I've read about people experiencing palp/tach but I haven't read about the burning and other symptoms happening during an episode.
Posts: 35 | From Litchfield County | Registered: Mar 2006
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posted
That's too bad. I hope that they can stabilize him soon. Does you cousin have a LLMD who can collaborate with the hospital cardiologists? Actually I think that more and more cardiologists know what Lyme can do. Best Wishes.
Posts: 156 | From MA | Registered: Jul 2003
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
I'm sorry to hear about your cousin's situation.
I am NOT a Doctor or Medical prfessional, but I just wanted to mention a couple of things that sprang to mind while reading your post.
It could be Neurally Mediated Hypotension (NMH), or it could be POTS. NMH would be more likely as it sounds like it occurs randomly (not brought on by standing or moving from a horizontal resting state, or vice versa.
As for the burning sensation and then sudden heart rate increase/tachycardia and pounding heart (and also the pain and faintness), I think I know what you are describing, and it sounds like something I have been through several times.
I don't have a Dx for this symptom for myself, other than an inverted T-wave on my ECGs that wasn't there before, and possible SVTs (ifI recall coprrectly, I will try to find out tomorrow).
Not many Doctors will think to look for NMH or POTS, so beyond them checking his heart and lungs, he should definitely folow up with the proper Doctor/Specialist for those conditions, and possibly have his hormone levels checked.
One thing he might want to do is make sure he is getting proper D3 levels, magnesium, calcium, and potassium. These can all have a large effect on the processes of the heart and neural system.
Again, these are just my opinions.
I'll try to post more tomorrow as it is very late.
I wish you and your cousin good luck - I hope he is feeling much better very soon.
One thing I failed to speak to is this is happening awfully frequently - so he definitely needs to let his LLMD or following physician know about this and go over his regimen to see if he needs to adjust or drop for a while to see if the symptom resolves.
Just a suggestion, but he def needs to discuss w/his main prescribing doctor ASAP, as he probably already is.
I had these episodes out of the blue last June. Thats what landed me in several specialist's rooms but with no answer. I had numbness and burning (hot flushing) throughout my body during the episode not just one side. Sometimes, I would be in it for 15-20 min sometimes 2 hours. It would take me awhile to feel "normal" again. I usually would be very tired afterwards as well. Mine happened before abx.
I am sorry to hear abouyt your cousin and hope he finds an answer. I know those episodes are VERY SCARY!
Posts: 171 | From the land of oz | Registered: Feb 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Delo5, there is enormous amount of literature on the net how Lyme can effect the heart,
especially with nonconvertible rhythms.
Caused by the nerves miss communication or effects from Lyme.
The same thing happens with the MS symptoms, numbness, tingleing, dizzyness. etc.
And what this sounds like here.
I believe a temporary pacemaker could save a lot of patients from permanent damage if the doctors had this information available to them.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Do a google search with (uses for temporary pacemaker in lyme disease).
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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