posted
How long into your first set of antibiotics was it until ..you started seeing symptom improvement? For chronic lyme patients.
[ 04-14-2009, 05:19 PM: Message edited by: adamttt ]
Posts: 33 | From UK | Registered: Mar 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
My first sign of improvement is happening now...I'm 9 weeks into lyme treatment and I have had several nights where I slept 6 or 7 hours....unheard of in my life for the past 21 years.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
significant improvement .. 8 months in.. w/actual treatment for co infections, almost 5 months
Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Same here, about 8 months in all of a sudden felt much better (but not completely well). I gradually felt better from the beginning of treatment .... very gradually .... but at 8 months had a jump.
Later I backslid, and had ups and downs throughout, but the first time I felt good was 8 months in.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymeparfait
Unregistered
posted
I would say about 8 months as well, but saw immediate improvement with alleviated symptoms after 4 days on my initial doxy treatment. Had my first herx three weeks after that, so I was on a 3 - 5 weeks type herx cycle for 8 months. Each herx got significantly better over time until my Ehrlichiosis was gone.
I do want to preface that my symptoms are not as severe as most who post on this site. althuogh I do test very positive for all viruses, bacterias and infections tha most have with lyme. When I was diagnosed I thought I had lyme and co. since my childhood, but my symptoms progressively have gotten worse to me, but would be considered moderate by LLMDs and others here.
Now I realize that along with the lyme, my main symptoms were most likely related to mercury toxicity. Had over 70 mercury metal fillings in my mouth by puberty!
It is hard to compare with others if you do not know where they started.
Now I still have neuro lyme, but have stopped antibiotic treatment.(I have confirmed lesions in the brain and hypoprofusion) This was my choice to stop abx, not my LLMD's.
She wanted me to get IV neuruo lyme type treatment as the final step. I refused, because I was already feeling toxic from all I had been taking and from the die off, but my symptoms were much improved.
When I originally started lyme treatment with her, I was committed mentally to go all the way and do IV if necessary to kick this thing. But as my knowledge progressed as well as my progress, I have switched gears. Time will tell if this was a wise decision. I feel it is.
I still see her when I take my daughter for visits. She is amazed that I am feeling good, and I think she doesn't believe me by the look on her face. She is waiting for me to crash, I believe. She does not want me to do alternative treatments that are experimental. So I have stpped telling her what I am doing. She is a good LLMD, just not what I need now.
But I have learned she does not know about detox protocols, and how to successsfully diagnos and remove mercury and heavy metals. She understands the connection, but is not equipped to help me in this area, so I had to use my own intuition to find a Natural MD to guide me the last step to healing. Which is a new daily healthy lifestyle!
I believe You have to know when it's time to stop a protocol and when it's time to begin the next step. You have to keep track and evaluate how things are working. It appears some can do this easier than others. Those that do this are on their own!
What I call my neuro lyme symptoms may also be mostly due to heavy metals. It's hard to seperate lyme from metals and candida in the brain. They all create that spacey, not being able to organize your thoughts feeling, and word finding,sleeplessness, neuro processor type problems. That's my biggest challenge still.
I do not have any of the flu type symptoms with fevers anymore at this time nor do I have severe muscle fibro type myalgias, which took about a year to see vanish.
The myalgias seemed to clear up with nutritional support (liquid amino acid type supplements, probiotics and juicing) and integrative treatments that I started to incorporate about 6 months into my antibiotic treatment. Included is an ongoing detox.
Lyme is still lurking around, I also have lyme induced lupus, so I'm on guard.
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