lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
I am so utterly stupid. WHY didn't I research tDap vaccination before getting it?
Two days ago I got a booster shot of tDap and I think I made a terrible, terrible mistake. My body aches so badly that I want to shoot myself. I can't stop crying.
Will this pain ease up or am I in for it for a long time?? My legs feel like a monster is trying to eat them. I have a sick headache and nausea, too. Not to mention that the injection site is extremely sore.
I know it's only been two days but after researching here on Lymenet I could just kick myself. I got the vaccine because it has been ten years since my last one.
I think I've set myself back by months if not permanently. How long has it taken for you to feel better if you've made the same mistake as me? What do you do for pain? I'm reluctantly taking vicodin because I can't stand the misery, but I'm nervous about it.
My husband says it will all die down soon and I'll be okay. I sure hope he's right.
Sadly, Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
What's a tDap vaccine?
Posts: 2675 | From ct, usa | Registered: Jan 2004
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes very bad mistake. But you need to fix it asap. It is a cheap fix. But most dr.s don't understand it.
You can call your Dr. and get him to give you a megadose of vitamin C and A IV
and it will support your system long enough to get over the immune battle.
And it may require multiple IV's.
GBS is well known with the vaccine.
In the book by Archie Kalerkorinos Every Second Child,
he learned in Australia he could save kids who
were vaccinated and immune systems not able to handle it by this approach.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Yes
Posts: 236 | From Illinois | Registered: Feb 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes the p part is supposed to be inactivated.
Most react to this one and as such some doctors opt out of the P part for those individuals, but I have seen total brain damage, in a vegetable state with the DPT.
Fever of over 102 says get to a Dr. or for us lymies I would say 100?
I would be interested in why a doctor would give someone with Lyme a vaccine knowing our immune systems are shot.
They made the mistake not you.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
If your doctor won't report it as a reaction to VAERS you can.
But it needs reported. Very important.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I got the flu-shot and it nearly killed me and I've been sick ever since. It was what started all of my symptoms. The lyme just got an excellent opportunity to do some serious damage to you when you got that shot, don't ever get any vaccine while you're ill. Hate to shred your optimism but it'll will probably take a lot of work to fix it now. I'm just going by my experience and others that have gotten vaccines while ill.
Posts: 499 | From Indiana | Registered: Oct 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Why is it so important that it get reported? Aside from just letting the company know it's not as safe as they'd like to think?
I was one of the people from this site that had a horrible reaction to the DPT.
It was like you describe. I started crying uncontrollably (not because I thought of something sad, but just because), and I was terrified to be alone.
I didn't have pain to the point that I needed pain killers, but I had this horrible heaviness in my legs and arms where it was hard for me to stand up.
I think the IV's are a good idea.
I am not sure if this was caused by an immune reaction, or if this vaccine has a high amount of mercury, or what.....
I don't think you did any permanent damage. After the first couple days I felt more emotionally stable. It took about a 4 days to a week before I was out again doing things, but even then, as I've said, I felt this burden on me.
My LLMD that I had at the time was NOT very agressive with me. He didn't have me on any supplements or detox, except probiotics.
I think if you find ways to support your body, and then don't forget about treating the TBD's, you'll probably come out of it quicker than I did.
Look into anything to support your body, like Vit C, supplements for viruses and bacteria if you think anything like that is acting up, etc.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
PS--- also look into the immune system.
I think what might have happened in my case is that it "messed up" my immune system, and sent it into some kind of chaotic state. I'm not sure if it caused the immune system to be "too good" or "not good enough/compromised," if that makes any sense
So look into supplements that would balance the immune system, and start them SOON. (even though my initial symptoms got better within a week, I did decline in other areas slowly after the vaccine...so that is why I think it's related to the immune system).
For example, I'm taking Low Dose Naltrexone and that is supposed to balance out the immune system. Once you feel a little more stable, it might be something to try. More info is at: www.lowdosenaltrexone.org
Other on this site could better advise you on what else you could try in terms of supplements....I'm no specialist in that area.
Like I said, I took NOTHING to help afterwards, so I bet if you did find some things to take, maybe it would help.
This is NOT your fault.
This isn't permanent and you WILL come back from this. It might take some work though, but hopefully you will end up even better than you were before the vaccine.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes- most get better, over time and with healing the immune system, but there are those few whom it does go to the brain and can cause irreversible damage.
Sadly this is why they developed the DTaP, supposed to be safer.
It is as important to report a reaction as it is important to the future of treating Lyme disease.
Are mothers who have children with Lyme giving their children vaccines.
This is where it can help.
The more reports reflects the need for the information to be out there that indeed it can harm you.
By reporting you are sending information that can help millions.
If your child or yourself went on to develop complications, you can receive compensation and aid.
Damage claims only equal a pittance but if you have a child turned vegetable you can get more.
This too is where it helps. More reports the greater likely hood to win a claim.
Damages does not apply to Doctors who give routine vaccine. You signed a paper stating no foul.
But if there is negligence found by giving when patient was sick there is just cause.
Very complicated. But it is the government who pays out.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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jt345
Unregistered
posted
Hi
My Wife had that on her last yearly checkup. She did get a rash but it went away in about 4 days. Sorry You going through this. Hope it improves soon. appleseed
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
I feel much better today, everyone. I feel a bit foolish but I was in panic mode when I wrote yesterday.
I still feel headachy and flu-ish but the body pain is much better. Perhaps I'll get through this episode after all.
Thank you for your advice and support. - Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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posted
In regards to the question of kids with lyme getting vaccinated...
For my son, his pediatrician felt that it would be best to postpone his vaccination last year, as he had a recent lyme test that showed he was still IgM pos.
I'm not sure what the pedi will want to do this year, but I am concerned about it, as my child is still not 100%. It's kind of tricky for school age children, because the schools require that the vaccinations be up to date, and there is no guarantee that the pedi will see the vaccines as an issue.
Like everything else with this desease, this is a learn as you go process. kp
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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posted
Wow! Thanks for posting this! I wasn't aware of how bad it is to get these shots while sick with Lyme.
Does anyone know if allergy shots are the same?
I sure hope you are able to get something to help counteract this soon!!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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posted
How about a tetanus shot - would that be a problem with lyme? I haven't had one in years and know I am way overdue. Not planning on getting one right now but good to have the info just in case I do need one in the future.
Posts: 133 | From Far Hills, NJ 07931 | Registered: May 2003
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Hi folks,
Please be aware that although schools say a child MUST be vaccinated, you can obtain an immunization exemption from the county health department.
Ask the school secretary or nurse where you obtain this form in your district.
Here the immunization exemption is a half page form. It's signed by someone from the county health department and stamped or marked with an official seal.
You may have to state whether you choose to not vaccinate due to medical, personal, or religious reasons.
Most school officials will not admit you have the right to this option, but will accept it WHEN you know the state law.
School handbooks and registration forms are written to make it appear that every student must be immunized before they will be allowed to attend school.
Educate yourself about your state's legal requirements.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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posted
All states except Mississippi and West Virginia allow for non-medical exemptions to vaccines for school. Mississippi and West Virginia only allow medical exemptions signed by a doctor.
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