posted
They just interviewed an "expert" from the CDC and he said that standard treatment is 14 to 28 days. SOME may need another course of 28 days. That's it! GRRRR!!!!
Dr Stark actually mentioned STARI as one of the TBD's.
All in all, the information was inadequate. The dr with the CDC mentioned other symptoms you could get if it wasn't treated immediately, but nothing was said about neuro-Lyme symptoms.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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TadichGrill
Unregistered
posted
It makes me want to pull my hair out. Crazy making for all of us.
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posted
They did mention Lyme was "controversial"...but did not say why. I think they should include both sides, not just the CDC's. One Doc said some are being treated that don't even have Lyme...he said Lymes of course and some are even on abx for a year...this was said with a bit of disgust. Let them know the other side of this disease. www.http://www.thedoctorstv.com
-------------------- This is only my opinion and/or experience with Lyme Disease. I am not a medical professional. Posts: 587 | From usa | Registered: Dec 2000
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posted
When was this? I thought that they were considering airing some of "Under Our Skin"?
Posts: 710 | From West Coast | Registered: May 2008
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posted
It was just on today. You could probably see it on their website or maybe your local tv stations website?
I agree with Mary! They should have given both sides. Then the CDC guys says 2 months for lyme that's caught late!
Then the dr saying people are getting treated if they don't have it. All in all I was very disappointed!!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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bettyg
Unregistered
posted
was this ADVERTISED? i would have watched it had i known!!
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posted
It made me sick to watch this. It was all of 5 minutes and it was the usual brush off. I wrote them so many letters on this BEGGING them to tell both sides of the story and shockingly.. they didn't. PS - did anyone notice that the way Dr. Stork pronounced Borgderferi was wrong? Idiots!
Posts: 34 | From New Hampshire | Registered: Mar 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
This show is strictly for entertainment....I'm sure they would have never put anything on it that could actually scare anyone. Sigh. The producers probably care too much about the "feel good" factor of the info they present.
The one doctor was on the Bachelor for crying out loud!!!!
I'm glad those of you who tried did try, you deserve thanks for that. Too bad they didn't listen. But unfortunately it doesn't surprise me.
Would have been really GREAT exposure though, so worth a shot.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
It would be great if now they had the people from Under Our Skin telling the other side.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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bettyg
Unregistered
posted
under our skin was supposed to be there; andy wilson was waiting for CONFIRMATION of date to tape this around 3-4 wks. ago.
amazing how this fell thru; the woman commentator on cnn....greata, etc.
and how can we forget oprah's deal where the big wigs met in NYC to discuss this!! how disappointing.
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Let's not give up hope. Maybe there's still a show in the works involving Under Our Skin. I'm still going to hold my hopes high since we haven't necessarily heard otherwise yet.
Posts: 710 | From West Coast | Registered: May 2008
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posted
The show may given miss information or inadequate information but it did raise awareness about the disease.
That is how I found this site. I never even considered Lyme until I saw that episode yesterday and now I'm convinced that this has been my problem for 15 years...and I'm excited at the prospect of getting some answers.
I am also excited to think that maybe I don't have the autoimmune disease scleroderma.
Has there ever been anything on Mystery Diagnosis about Lyme?
Posts: 2 | From Florida | Registered: Apr 2009
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posted
Blayer, yes, there was something on mystery diagnosis severla years ago, it involved a teenaged girl who was made better w/ IV, ABX and supplements.
It was, maybe 2004?
Trace
Posts: 65 | From massachussettes | Registered: Mar 2009
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posted
I was initially given 12 friggin days of doxy and amox., after a few days I felt like my old self. Then another round of 12 days of erythimicin. several yrs of taking friends antibiotics for releif here and ther.
here I am 6 yrs later . . . .
the girl on mystery diagnosis was practically on her death bed after being treated for soooo many other things for some time.
It was a nice to see the young girl regain her life. . . .envious. Trace
Posts: 65 | From massachussettes | Registered: Mar 2009
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posted
I knew the "Doctor's" didn't have the right stuff to take on a controversial issue. They always refer to the "official rules" of everything.
I saw where Dr. Lisa disagreed with an endocrinologist on the dx of a woman because this patient was under age 40. I think she was about 36-37 yrs old. I forget what the debated condition was, though.
Point is, they are not willing to look outside the box.
Mystery Diagnosis -- there were 2 Lyme shows that I know of. "Deadly Sore Throat" and "The Stabbing Sensation"
In case anyone wanted to know... :-)
Posts: 175 | From SW PA | Registered: Mar 2008
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posted
Hello everyone, I couldn't find how to start a thread about myself. I think I have Lyme, but I'm sure my grandchld does because I isolated and identified the borrellia burgdorferi from her stool under my microscope. That as well as a few other co-pathogens.
Does anyone know why they don't utilize the obvious physical organisms by matching them as I have done? If nothing else, it could be a contributor to the testing process.
sincerely, Kritters
-------------------- The Fungus Magnet Posts: 10 | From South Jersey | Registered: Apr 2009
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Lymetoo, Where do you watch (listen to?) "The Doctors"? Is this a cable show? A regular radio broadcast?
Was this "expert" refering to treatment of early-stage Lyme"? Did he even SAY?
Most everyone I know in this area dealing w/ disseminated Lyme is dealing Mostly with Neuro issues!
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
"The Doctors" is on mon-fri. on CBS at 10am est. and on at 2:00pm est. on NBC.
Posts: 65 | From massachussettes | Registered: Mar 2009
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The one doctor was on the Bachelor for crying out loud!!!!
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