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» LymeNet Flash » Questions and Discussion » Medical Questions » Would you also call this "Neuro" Lyme?

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Author Topic: Would you also call this "Neuro" Lyme?
earprints
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Hi,

Three weeks ago I was diagnosed with Lyme Disease as well as the co-infection Ehrlichiosis and I'm now being treated by an LLMD. I am, however, starting to doubt whether the symptom I suffer from the most could be caused by Lyme or if it's something else entirely such as depression and/or anxiety.

The primary symptom I speak of is this chronic "head" problem which I've had since August/September 2008. Basically, my head always feels very "drugged," "woozy," and "drunk-like" and also "heavy," "full" and "cloudy." It's a really horrible feeling which rarely lets up. So far the Doxy I'm taking hasn't changed anything but I know that the treatment takes time.

Based on what I've read, this symptom doesn't really sound like "neuro" Lyme since my cognitive abilities seem okay (e.g., no slurring of words, no disorientation etc.) Rather what I experience is much more of a debilitating physical illness. Have you heard of or known any Lyme patients who have these particular head symptoms instead of the more common cognitive-related ones? I know that Lyme can cause dozens upon dozens of different symptoms but I've been hard-pressed to find anyone who has my exact symptoms.

The other symptoms I have seem more in line with common Lyme Disease maladies, namely sporadic muscle twitching and occasional muscle/joint pain.

After spending several months trying to find out what was wrong with me (i.e., seeing several doctors, having many tests done), I'm happy to finally get a diagnosis. However, I'm still not convinced that this particular head symptom could be caused by Lyme and/or Ehrlichiosis. Any insight you might have into this matter would be greatly appreciated.

Many thanks, Ami

Posts: 57 | From Florida | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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It certainly can be from Lyme, but I would look into treating YEAST. The words you used to describe how you feel really sound like it could be from yeast. [drunk, woozy, heavy, drugged ,etc]

I hope your LLMD has you on the no sugar, low carb diet and yeast preventatives such as Nystatin.

PS I'm NOT telling you that you don't have Lyme. Many of us have both and both need to be treated. Lyme treatment makes yeast worse as the abx kill off the good bacteria in our guts.

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--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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candida .. yeast


http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/80199?

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--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
nenet
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It could be due to Neuro-Lyme, absolutely.

What you are experiencing could be from swelling or intracranial pressure, or Lyme causing inflammation in your middle ear or other areas which when affected could cause wooziness or dizziness.

I would recommend that you start a thread here asking for any Lyme Literate Neurologists in your area, and see if you can get any tests to see if there might be a detectable visual abnormality (from Lyme or something else).

Many times NeuroLyme is not detectable in imaging tests, but sometimes one can find swelling, inflammation, hypoperfusion (SPECT) or white matter lesions.


You might want to spend some time searching the forum here, looking for posts on dizzy, dizziness, foggy, cloudy, stuffed with cotton, wooly, heavy, woozy, etc., as that is a very common symptom I have seen posted about here often.

ALSO, I have seen many people post that Doxy causes them mild to extreme dizziness and wooziness, so you might want to consider switching to a different antibiotic regimen for a while, to see if it abates. Your med might be compounding your symptoms, from herx or side effect.

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Leelee
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Gosh, I have those symptoms too, but figured it was Lyme and Barts. Now I wonder if it's yeast.

Is there a test they can do for yeast? I have my next LLMD appointment mid-May.

Also, can you have a yeast infection that is in your stomach only? I ask because I am pretty sure I don't have it in my mouth or a vaginal infection. These are the place I usually here about. But my stomach is extra puffy so I wonder.

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The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

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dguy
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Those symptoms can also be described as a form of migraine, and it can be from lyme. Do a web search for keywords "vestibular migraine", "migraine associated vertigo", and "MAV" to check if the details fit for you.
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