posted
I have read several older posts about fatigue in the heat and heat intolerance.
Does anyone know what I can take for this? I will try anything! Can't go through another summer like this!!
It's only April and it was 85 out today. I have been miserable all day with severe fatigue and very short of breath Just want to cry!!
Thanks, Amy
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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posted
Amy, sorry you have this too. I have heat intolerance also. It's miserable and I freeze everyone in my home.
When I feel like I'm going to get overheated I put a wet wash cloth in the freezer and when it just starts to ice I lay it over my face and
breath in the coolness w/ deep slow breaths and put the cloth on my pulse points. I hope this helps.
Posts: 65 | From massachussettes | Registered: Mar 2009
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
I am the same way with heat.
I don't know of anything to take, but would suggest staying cool by using the AC or staying in the shade.
Unfortunately you can't avoid being in the heat, but there are little things you can do to help.
What I do is always have a spray bottle with cold water. If I get too hot I spray myself.
Also they have those little mini battery fans, they also help.
These may sound like wierd suggestions, but with this disease you have to think outside the box.
I prefer cold weather although sometimes I am intolerant to that as well.
I would like a constant 68 degree day all year around, but that will never happen!
Well good luck and stay cool!!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
Does anyone know if this symptom gets better or goes away w/ Tx?
Posts: 65 | From massachussettes | Registered: Mar 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yep, suffered horribly with this too today in MI (85 deg). Before I got ill with mono in 1997, I used to LOVE 100+ deg weather in Vegas and laugh at others who complained about it being too hot. I guess I got my payback. I can't tolerate hot or cold anymore - has to be 60-70 deg. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Heat and the sun will natural drain your energy, with lyme and co's it makes it that much worse for many.
Even when I was healthy playing sports, if my friends and I were out in the sun too long before a game, it would drain us.
Posts: 458 | From Miss | Registered: Mar 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
last summer we hit 105 and up to 107 for about two weeks. that's when our a/c went out and we had to buy a room air conditioner and live in the bedroom. the a/c companies were overwhelmed by demands.
the a/c company gave us one for the living room but it was maxed out because of the heat.
thank heavens it was only a week before it was installed.
i couldn't go outside because i got so sick.
those installers and our new trane system were a blessing. it's so quiet i can't even tell it's on and they did a wonderful job of installing it.
we've already hit 90 and it's only april.
if it's another bad summer, i'm going to the ranch in wyoming and staying!!
or else i'm heading to wolfie's house in idaho!!
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
The heat is bothering hubby this year as well. He thinks his heat intolerance is due to Babesia or the mystery protozoa. This symptom was much better last summer when we thought we got rid of the babesia.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
I am very heat sensitive too, but it has gotten some better since I started treatment.
You should see what my poor husband has to wear to bed in the winter because I keep the heat turned down so low. He always teases me that he can see his breath when he gets up in the morning.
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
I wonder if I have Babesia? I also get night sweats. I was only tested at a local lab that isn't accurate.
My LLMD isn't big into the co's. Yes I know that is bad! But he takes my insurance so for now I am just treating Lyme.
I just can't take this heat intolerance. I won't make the mistake of not have the a/c on again when it's going to be hot out.
I just like the windowns open if it's nice out and not too hot. But sometimes it gets hotter then you expected.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I tested negative for babesia but my LLMD felt I had it so treated me for it. My heat intolerance was severe prior to treatment. It is amazing how much better it is now.
Watch for your blood pressure to be dumped with heat. That causes lots of symptoms.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Bb doesn't LIKE IT when you are hot.
Your demand for oxygen goes up.
And many other things...
Think about "hot flashes". What's happening?
DROP in estrogen, right?
Estrogen ACTIVATES PKC.
Bb has a PKC inhibitor. To counter, the body will upregulate things.
Double edge sword!!!
Tamoxifen is also a man-made PKC inhibitor to fight estrogen dependent cancer cells that use glucose, have very few mitochondria left...
Guys...androgen and prostate cancers...
Look at the steroid hormones (esp. aldosterone). What does that do re: Na? Google these words: aldosterone sodium.
The body is trying hard to figure out a way...
This all has to do with Na and Bb's dependence on it.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I too have become very heat intolerant.
I have always been a very heavy sweater, but only when out in the heat. No night sweats or anything like that.
Could this be indicative of one of the tick-borne illnesses?
Is this a symptom, does anyone know? I have already been diagnosed with lyme.
I know lyme doesn't like heat. Could this be the body's way of trying to eliminate the bacteria?
Maybe it's just a family trait, as I've had it long before getting sick. Not sure what to think about it. It's quite embaressing!
Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
Dear Everyone, I am extremely sensitive to heat as well. My overactive Thyroid is some of it. However, it is interesting that you mention the exact temperature range I feel is comfortable. We live in Tornado Alley, so I am going to have to have an emergency plan in the event we lose power. Going without air-conditioning is not an option! Also, I may have NMH or POTS, so being exposed to heat makes you very tired with those conditions.
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I have been extremely heat sensitive since I collapsed with heat exhaustion at an air show when I was 13.
It was one of those 100 degrees in the shade days, and there wasn't any shade, only hot grass and hotter blacktop.
It's been in the upper 80s here already too, and I've been half sick all weekend.
Not looking forward to the summer, and it sucks when you have kids who want to go outside.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
I haven't read all the posts, so this may be a bit redundant.
Air conditioning is very important to reduce risk of heat stress. If you must be outdoors on very hot days, be sure to drink lots of water and spend time indoors resting around an air conditioner.
Do not try to tough it out, especially if you feel dizzy and flushed -- heat stress or stroke is a serious risk!
Posts: 2557 | From home | Registered: Aug 2006
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posted
It's not so much as being dehydrated or feeling fatigued, I feel fine my feet, hands and ankles swell. So horrible it feels like my feet are gonna pop when I walk.
Posts: 65 | From massachussettes | Registered: Mar 2009
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
quote:I would like a constant 68 degree day all year around, but that will never happen!
That's my house - 68 degrees all year long. So my AC is pretty much on from April to November.. Always. Anything more and I'm extremely uncomfortable.
That said, I now can sit out in the sun for hours and love every minute of it. But while I was sick, the heat just made me nauseous.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Jesus, I feel like ****. The AC makes me feel like **** too, giving me a headache from the "chill." I'm sweating in my shirts, and my forehead feels like ice. I lose!
-- ****..........
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I don't think our "internal thermostats" are working properly. Either we're too cold or too hot.
Marnie, one of my first symptoms were hot flashes, the kind that stopped me dead in my tracks (no, am not nor was pre-menopausal) I don't understand the connection bet estrogen and aldosterone. Could someone pls explain?
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Just want to cry!!
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