posted
I'm not sure what to do next. My latest lab work showed only band
41 and negative for all co infections. Labs were done a quest based
on insurance reasons. Not sure how accurate they are but thats all
he could do. Any comments on 41. My last one was 23,28. He's a
llmd but takes insurance and without a positive cdc result,
treatment would be hard.
Posts: 64 | From New Jersey | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Need more information on what you want to know exactly?
Sorry, wish I could help but I'm confused on how to answer the question.
And he IS or isn't a LLMD? That didn't make sense to ME... the whole last sentence. And keep in mind it is late and I am tired. Maybe others do understand it.
posted
can't read it as is so reformatting it into COMPLETE sentences...betty
quote:Originally posted by Mountaineer:
I'm not sure what to do next. My latest lab work showed only band 41 and negative for all co infections. ****************************************************
Labs were done a quest based on insurance reasons. Not sure how accurate they are but thats all he could do.
Any comments on 41. My last one was 23,28.
He's a llmd but takes insurance and without a positive cdc result, treatment would be hard.
tincup, you are not alone; i don't understand last sentence either ??
treatment would be hard to get; NOT PAID FOR?? we can't follow your train of thought. please clarify; thanks.
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bettyg
Unregistered
posted
mountainer just sent me this additional info so i'm going to post it here for us trying to decipher what he was talking about.
"I was a little tired last night when writing that post from yesterday.
I meant to say that he takes hmo. ****************************************
Hes on the board of directors of the lyme disease foundation. a scientific advisior to the ldf and maintains the web site
His office is a family practiciners office; Not sure if that qualifies him as a llmd.
I took that route for money reasons hoping find answers. again my results were band only 41 and neg for co- infec. "
sorry, i need to leave for awhile getting some bugs worked out on my pc...
hope someone else might be able to answer him; i'm to neuro fogged today... betty; thx xox
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I had only band 23 (IgM) via Quest and my insurance company
Has been paying for all my meds (minus co-pay) for
The last 2.5 years. I've taken some very expensive orals too.
Malarone, mepron, valcyte (4000.00 for 30 pills), etc.
So, as Lyme is a "clincal" diagnosis and you had band 23 already,
And have a LLMD who will diagnose and treat you,
What are you waiting for?
Many here on the board have gotten well without IV's.
Many here on the board have gotten better with IV's.
Sometimes you just do what you gotta' do.
Hope that answered your question.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Quest is just about worthless when it comes to lyme and coinfection testing.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Dawnee
Unregistered
posted
Pay the money for it to be sent to different labs. Quest came back completely neg. for my daughter, but she is CDC positive from two other labs. Quest IS absolutely worthless.
Husband's Quest came back neg also. We will get his results from the other two labs in a couple weeks.
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
You might as well get blood work done at your corner gas station as rely on Quest for lyme tests. Sorry.
Can you see an ILADS-member LLMD for an assessment?
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
My western blot through Quest showed only band 41.
One month later, my Igenex western blot lit up like a Christmas tree.
If you need real lab results pay for an Igenex western blot...test #188 and #189....$200.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Mountaineer.
The problem is that he's not an LLMD. He may be a nice fellow, but he's a quack, with a capital D for 'duck.'
Him only testing at Quest is bad enough. But to say he can't treat without a CDC positive result? Rubbish.
He knows that lyme is a CLINICAL diagnosis. That means, based on your symptoms, not your tests. B. burgdorferi is a stealth pathogen, often cloaking itself with your own cell membranes so your body won't mount an antibody response. Thus, many people with lyme have negative tests.
This is a doctor who is out to defeat you, not treat you.
You have simply got to find a way to locate a REAL doctor.
A few people have gotten lucky with Quest, but it's unlikely. I was negative with Quest but CDC positive with IGenex. Like, screamin positive, with some triple-starred key bands. That's how bad Quest can be.
Please post in 'seeking a doctor' and try and find a real LLMD. It's that important!
Posts: 3193 | From Northern California | Registered: Apr 2005
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