posted
It's kinda worrisome. Anyone else have this?
There is one section of my brain (not my head, my brain) where it feels like someone's tickling my brain, or there's a prolonged chill in that area, or - the best way I can describe it is that it feels like "creepy crawlies".
It starts in my very stiff neck (on one side), feels like it's in the spinal fluid or something.
It only started after I began treatment with antibiotics.
I changed from doxy & zith to ceftin & levaquin. It stopped for a week or so after the med. change, then started again.
Thoughts? Should I be worried about seizures/ passing out? I know there's a "lesion" in that approximate area of my brain.
Any input is much appreciated.
Posts: 797 | From New York | Registered: Feb 2008
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posted
I had the same thing when I started treatment.. it really creeped me out! It got much better and only happens occasionally now
Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008
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posted
I have that all the time and gets really bad when i have lyme flare. So ya your not alone for sure.....but for this used to happen before treatment as well. It's not getting any better but more or less on certain days.
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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posted
I remember lying down in bed a few months ago and it felt like a hundred bugs were crawling in my head.. gross.. usually, if i itch my head, it would go away... sometimes i have little tingling for a few seconds but nothing like that rush i got..
i only had it in my head.. not neck
Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008
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posted
Yep. I have the same thing. Before it would only show up about 3 months into treatment (Zith & Mino).
Brain tingling, tickling, like ants crawling around inside.
Off of treatment, before I knew I was not supposed to be drinking liquor, I would have it the day after during a hangover.
Currently I am having it after eating anything with sugar in it.
Weird. Good to hear others have it, but I would feel a lot better if I knew other's got it based on their diet.
P.S. I've had both a CAT Scan and MRI done in the last two months. Everything looks normal (hope that helps calm you)Posts: 101 | From Living in the Now | Registered: Mar 2009
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I don't know if I slipped thru the cracks at my LLMD's office when it came time for the "briefing" on what we could and could not have, but at least we figured it out.
Will PM you in a week or so and see how you are doing. Hopefully it will be for the positive!
Posts: 101 | From Living in the Now | Registered: Mar 2009
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posted
Well, I'm not on a sugar-free, gluten -free diet. That's for sure.
The foods i eat contain very little sugar, though.
I don't eat candy or soda. Desserts very rarely, and that's more to be "polite" and blend in with the crowd, if you know what I mean.
...But, we did just have Easter and my kids did just have candy - and I KNOW I shared some of that. I wonder if that has contributed?
Thanks for the input, everyone! While I'm not happy you're experiencing this too, it does make me feel better to know I'm not alone.
I think I'll take this "no-sugar" thing more seriously.
Fly & Cathy- my llmd never had that discussion with me either. He asked about the specifics of my diet, but didn't put limits on anything.
Posts: 797 | From New York | Registered: Feb 2008
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posted
I have had many sensations in my head and face that feel very much like bugs moving around inside of me.
I think it is really interesting that so many of us can feel a connection to this "tingling" brain sensation and sugar or simple carb consumption.
I get it then too sometimes, but I REALLY get a bad and disturbing reaction in high stress conditions.
I can feel what I would best describe as like little "streams" of wiggly, tingly, sensations in my head, (brain) and sometimes eye or cheek ticks and sometimes loud ringing in the ears.
I eat really super HOT large amounts of chili peppers with sea salt and cilantro because I think it's therapeutic for me.
when I eat the chili, I can tell if they are hot enough because those same streams, and a pretty wide line, down the center of my head, (forehead, to base of skull) down in my brain, start to super tingle and kind of "Buzz" like they really don't like the chili.
Hours later I will have a herx reaction. Especially in my head, sinus, neck and bowels.
My body will expel allot of mucous, then it will feel better for a while.
this happens every time I eat very hot Chili.
But the reaction is quite a bit different from the one from sugars.
the sugars make me feel like I made a bad mistake and gave the "enemy" ammunition and made them stronger and the chili makes me feel like I took out a bunch of them with a super weapon.
there is definitely a die off reaction after the chili.
Posts: 6 | From Memphis, Tn. | Registered: Apr 2009
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posted
I'm so glad to hear others have put a connection to the sugar=tingling thing.
I've actually been hunting the forum and internet looking for a confirmation or an explaination but wasn't having a whole lot of luck.
I'll sleep better tonight knowing at least other "lymies" have the same thing. At first I was thinking this was strictly a yeast thing, but if it was truly overgrowth I would think I'd have the tingling every once and awhile while I was not consuming sugary substances or "herxing".
I just received the book "The Lyme Disease Solution" in the mail today. A friend of a friend was treated successfully by the doctor who wrote it and highly recommended it. It also comes highly recommended on Amazon.
Anyway there is a whole chapter in there dedicated to what he calls "The Lyme Inflammation Diet". Spends a lot of time talking about how some of the things we eat are doing nothing but fueling low-grade inflammation which paired with Lyme spells trouble for us. Might be worth checking out.
I just "upped" the thread below so it is easier to find, but someone typed out the basic idea:
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Don't want to scare anyone, but they are parasites. Lyme disease has a MAJOR poarasite/worm connection.
It is VERY important to take antiparasitics. Burgdorfer found Filarial Worms in the ticks as well as spirochetes. Hot chili and sea salt are antiparasitic and cilantro is great for inflammation.
This is EXACTLY what came pouring out of me into the toilet when I went after the parasites/worms.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Well, after some thinking and checking my symptom diary, I realize it has nothing to do with sugar - for me.
It may have to do with abx, so maybe a herx. (?) Just like with your chili peppers, asiasnana. I'd like to experiment more, but I can't take hot foods.
Not scared by the idea of parasites, gael. I find your info very informative.
That's another possibility, for sure.
I'm seeing my llmd next week and this is something to discuss.
Posts: 797 | From New York | Registered: Feb 2008
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posted
This is my third (and hopefully last since I intend to follow through) time starting treatment.
The two times before after about two months of abx (mino & zith) I started the "tingling". Each time I'd stop taking the abx and the tingling would go away.
The sugar thing just started within the last month. Either way the feeling is exactly the same so I'm hoping it's lyme related in one way or another and not something that I created by taking the meds I'm on.
Posts: 101 | From Living in the Now | Registered: Mar 2009
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