posted
Because they just cause the spirochetes to turn into cyst form.
It also said amoxicillin did that, and that's what my kids are on.
The book also says that the same drug shouldn't be taken for more than 1 1/2 months because the bacteria become resistant. I've been on the same drugs for 4 1/2 months now.
Posts: 311 | From CA | Registered: Jul 2008
| IP: Logged |
Alv
Unregistered
posted
I never used any of the drugs of that category .THIS WAS MY NONO TO MY LLMD since in the begining.
I have read a lot before I made my aproach to kill the spirochetes.
IP: Logged |
posted
I think the whole thing is a guess. Dr. B's guidelines say amoxi is effective. I'm on it in combo with zith and doxy. I trust my LLD, books are written to be sold and make money.
Posts: 199 | From utah | Registered: Jan 2009
| IP: Logged |
posted
I am just starting to do a lot of reading myself. Don't get yourself too worked up.
Continue to educate yourself and don't resolve to make everything you read fact as with everything else with this disease.
Do continue to take notes and fill your notebook up with questions. When you get answers look for confirmation of those answers.
My appointments have been a billion times more productive now that I've been spending the majority of my free time researching/reading.
I am by no means a "seasoned" lyme patient, but as a relative "newbie" this is how I've been approaching things to stay sane.
In my opinion I wasted 2 years by not doing the homework.
I hope you get the answers and resolution you are looking for to get you well.
Posts: 101 | From Living in the Now | Registered: Mar 2009
| IP: Logged |
posted
if you're taking a cyst buster along with them... shouldn't that help? Then you're killing both forms.
At least I hope so, b/c I'm taking amoxy and bicillin along with flagyl (and mino and levaquin).
Posts: 453 | From TX | Registered: Aug 2008
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
ANYTHING that you take to kill borrelia threatens it and when it feels threatened, it goes into cystic form.
I'd listen to our LLMD's who have plenty of experience treating many lyme patients. No offense to the person who wrote the book but he is not a doctor and does not treat patients so does not have the clinical experience that our LLMD's have.
I'm sure some of his info is valuable but I'll follow my LLMD's advice on this one.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by TerryK: I'd listen to our LLMD's who have plenty of experience treating many lyme patients. No offense to the person who wrote the book but he is not a doctor and does not treat patients so does not have the clinical experience that our LLMD's have.
Ditto.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
quote:Originally posted by TerryK: I'd listen to our LLMD's who have plenty of experience treating many lyme patients. No offense to the person who wrote the book but he is not a doctor and does not treat patients so does not have the clinical experience that our LLMD's have.
Ditto.
Double ditto.
The author often mixes up his own opinions for facts.
Posts: 845 | From Eastern USA | Registered: Jul 2006
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Ditto, thrice.
It is important to read a variety of LLMDs' work and listen to their years of combined experience.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
posted
You can't get around creating cyst forms, but you can break them with Flagyl or Tindamax. It doesn't mean you should shy away from drugs that attack the lyme so well, it puts it on the defensive!
Posts: 691 | From East coast, USA | Registered: Jun 2006
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by sixgoofykids:
quote:Originally posted by TerryK: I'd listen to our LLMD's who have plenty of experience treating many lyme patients. No offense to the person who wrote the book but he is not a doctor and does not treat patients so does not have the clinical experience that our LLMD's have.
Ditto.
Quadruple ditto.
I got well using those drugs. With a chaser of Flagyl.
Rosner is in the business of writing and publishing books for a living. He is not a doctor. It's hard to imagine why anyone would consider his advice gospel over that of their lyme-literate medical doctor.
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
posted
He went from being a real estate agent to a "medical journalist" overnight. I am not sure he has any qualifications for the job.
On the other hand, look at what supposedly qualified people like Steere and Wormser and that gang of thieves has done.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
Are you talking about "Top Ten Treatments" by Brian Rosner? If so, you have to realize that he's against antibiotics in general, I think because he didn't do well on them. And as Lou said, he's not a scientist or MD. He's a Lyme patient who became a "journalist" writing about his experiences with what worked for him and what his personal research discovered.
Bicillin helped me tremendously. agree w/others that you need to take cyst busters.
Posts: 975 | From California | Registered: Apr 2007
| IP: Logged |
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I read that excerpt of that book. Which makes me question the author's source of this information.
Bb under the microscope is nearly identical to syphillis, that being said, the best and most used treatment of syphyllis are the penicillin's. It just makes sense to me the two being so much alike, it could be one of the best Lyme killers.
I agree w/Wildcondor..it is not true, they both work well. Amoxi was my first drug, I have returned to several times and it stops the numbness and tingling I have. Bicillin permanently cleared a few symptoms as well.
Recently I was told by a friend in treatment w/one of the nations best LLMD's that he told her that most abx can push LD into Cyst form, including Rocephin...if taken alone.
I would think mono-therapy has the potential of causing cyst form, with the exception of the macrolides, which according to a Pubmed abstract reads they stop L-form and the way I understand it L-form occurs first then cystic form. Now, according to Dr. Burrascano's updated guidelines L-form and cystic form may be the same thing.
To me it would make sense if worried, to take a combo of the macrolides w/the penicillin's, i.e, Bicillin/Biaxin, Amoxi/Biaxin, etc. Who knows, it may help prevent cystic form.
Another penicillin, Augmentin they believe can might be a bio-film buster, more study is needed.
posted
I have that book and disagree with a lot of it but he says he is just a patient and not a doctor, and he even says in the preface that he used to be in business and wrote the book only after having been the patient guineia pig himself. So he isn't trying to replace an LLMD, just share his own road.
Posts: 641 | From Nevada | Registered: May 2009
| IP: Logged |
posted
I would imagine that most if not all abx that work on the cell wall would trigger the L form (cell wall deficient) transformation in the bacteria. I am not sure why that advice would not apply to all those abx as well - including ceftriaxone (Rocephin). I would agree that using a cell wall drug with a protein inhibitor would be recommended.
As to the development of resistance, I have doubts about that - genetically Bb is not a sophisticated bacteria, but it can stay nearly dormant for long periods and abx work best while the bacteria is most active.
Posts: 263 | From Capital Region, NY, USA | Registered: Jun 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic