Topic: Sleep meds...what does your LLMD prescribe?
tickbattler
Unregistered
posted
My hubby is having a terrible time with insomnia...just curiuos to know what sleep meds your doc has prescribed and what you found was best for you?
If anyone goes to Dr. H in NY, can you tell me what he prescribes?
posted
I have been using Ambien, but sleep studies show for the last 3 years I have not gotten any Stage 3/4 Deep Sleep.
I am getting a new prescription for something called zyrem. It is a liquid and I am very excited about getting it.
I think if I ever got any sleep, I wouldn't be so tired all the time!!
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
My LLMD recommends:
5 HTP 100 mg 3x/day
L theanine 100 mg 3x/day
Sublingual melatonin 1-18 mg under tongue at bedtime....start with lowest dose and work up as needed.
Some people are affected by low doses of sublingual melatonin and it can work quickly. Take it while getting into bed to make sure you don't get dizzy and fall down.
I am taking 15 mg...I am not affected by low doses, although he says I may need to decrease my dose as I get healthier.
I have actually had decent sleep for the past 7 nights in a row, which is unbelievable to me.
I was taking gabapentin 300 mg in the evening before I ever saw my LLMD and he said I could continue it.
It is important to check for med/supplement interactions. It is dangerous to take these supplements with MAOI or SSRI antidepressants.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Of late this is not working as well as it did before, now I am adding a natural capsule that has a mixture of Chamomile, Hops, and Valerian, which is helping.
I probably need to change something but I'm not sure what. This combo worked great for the first year or so.
I tried to substitute the Restoril with Dalmane but it was less effective for me.
Can't take Melatonin, gives me nightmares, and Trazedone gives me heart palps.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
My son has severe sleep issues and I will say the BEST thing I have ever found for him is called Super Snooze, by Puritan's Pride. I haven't used it myself because it has Melatonin in it.
But for him, it puts him out in 30 minutes, and he has been on all kinds of prescriptions, Melatonin at high dose, etc. This stuff is magic for him.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Ambien was terrible for me. But I do like Trazadone (two 50 mg tabs). My LLMD says that Trazadone is good for lymies. But still I have trouble sleeping two days a week so I'm going to ask for something else thats stronger during my next visit.
Posts: 58 | From Silicon Valley | Registered: Sep 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
WOW!!! I see a lot of Ambien in there.... I had a real bad expierence with Ambien.
Was sleep walking on it....
I take Serequel and Valium....
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
Ambien worked for about 3 weeks, then quit working. I've been taking Lunesta for a while now, and it works like a charm. Expensive, but worth it so I can function in the day.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
5 htp amd melatonin
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Lyrica to fall asleep, melatonin to stay asleep. I went from sleeping 20 minutes at a time over a month time to sleeping 6 to 7 hours almost every night now. (Unless my bladder woke me) But it was a great improvment. Don't be afraid of Lyrica. It helps.
Posts: 199 | From utah | Registered: Jan 2009
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posted
I see the same LLMD and take Lunestra OR Zanax with 6 mg Melatonin and Passion Flower. Passion Flower is so relaxing and in many supplement combos for sleep. I also take an heral combo called Stress J too.
I switch around each night so I do not get use to any of it.
I tried many of the herbs first too and have tried all the sleep meds out there.
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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