Topic: What do you guys make on Dr. S. Theory of Mold as opposed to Chronic Lyme ?
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
A friend of mine emailed me this morning and told me she had just seen Dr. S on the Eastern Shore in MD and was left with a diagnosis of mold.
She was put on Cholenesterase <--spelling
but referred me to the doctors link on mold, and when I went there, it talks about all the symptoms we have or most report.
The site says "If you, or a loved one suffers from multiple symptoms that never go away, or if you are told you have Fibromyalgia, Chronic Fatigue Syndrome or Chronic Lyme Disease, you might need to learn from Chapter Four".
I havn't read the book or even know about the work up this Dr. does, but he is well known and has done some work with Dr. S in Florida.
Dr. S. in Florida is very big on Lyme, so I'm not sure how he would be in on the "mold" thing.
I do believe mold can cause health problems. In my case, I Herx on Lyme frequencies from Rife and really starting to feel better these days, so I'm just curious as to what everyones take is on this theory.
Personally, I have told this friend of mine forever to look into Lyme, but because her symptoms are mostly mania and some other psychological stuff, she won't even look into it.
Thanks in advance,
Lymetwister
Posts: 1227 | From District of Columbia | Registered: Mar 2009
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
That sounds pretty sketchy to me, to put it mildly.
I don't hold much regard for Dr S in FL either, but I will withhold further comment.
Mold can cause toxic conditions, like many other toxins. It can be a concurrent problem with Lyme, definitely, but it should not rule out Lyme in the evaluation when it is discovered.
Lyme and coinfections can cause your body to be less able to rid itself of toxins as well, which can be a complicating factor.
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Maybe this is the reason so many people test negative for lyme, yet present with lyme symptoms, yet never get better. Maybe it really is a mold problem.
Everything makes all of this so complicated to figure out.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
QUESTRAN(Cholestyramine) is the drug my friend was put on to treat her mold.
I spelled it wrong up top in my opening post.
Does this drug really clear neurotoxins better than some of the other stuff we are all using?
Lymetwister
Posts: 1227 | From District of Columbia | Registered: Mar 2009
| IP: Logged |
jt345
Unregistered
posted
All it does is bind toxin in the lower intestine. If the toxin is alollowed too get into the fat that is obsolvered into the the body ,it is also in the fat that sourounds the mylin around the nerve endings.
Toxin iritates the nerves and blocks electrial pulsses that influnence the neriu brain problems.
As You can see I have not taken it for a long time. It worked by far the best for me.
As for mold,well I wouldn't go there. Is the guy a MD ? I have not heard of Him so I can not comment. But one thing I am sure of is I have chronic lyme. In the past few years I have seen alot of natural healer type Guys trying too pass lyme off as someother illness or condition(mold).
Well maybe,but I would not spend money on it until I saw some kind of rational prof.
I am not saying that naturel med. is wrong or bad,but where do We get most of our meds from? The sky? Just be careful. I have seen alot of snakeoil salesmen come out saying they can cure lyme in My time.
posted
Dr. S in MD (and who is a MD) doesn't say mold is more pathogenic than lyme or vice versa. He very much acknowledges the seriousness of either or both, depending on your genetics. The HLA-DR is the crux of his diagnosis & treatment approach..it's all customized to your ability to detoxify pathogens and/or mold.
I and many others that have done this test have the "dreaded genome" (which once again, a terrible terrible name and he should get chastised for injecting paranoia & despair into patients..whether or not he is right) which means we need to detoxify mold with questran and/or all the binders we can possibly get our hands on along with treating borrelia and sometimes MARCoNs (MRSA detectable via nasal culture). I personally didn't test well for questran so I went with natural binders. I suggest many of us wouldn't test well for questran since it's a drug...the natural binders have worked fine for me. He does endorse the use of antibiotics for lyme.
If you are interested in his work, read "Mold Warriors," with the caveat that if you do follow his testing recommendations and find you have the worst genetics, it's not a death sentence.. it just means recovery will require more work. His protocol is on pgs 536-538
Posts: 713 | From Los Angeles | Registered: Oct 2007
| IP: Logged |
posted
Doing Dr. S's testing is how I figured out I had Lyme. I tested as genetically susceptible to both post-lyme disease and mold illness. Turns out I had exposure to both. I think his theory is genius, and the Cholestyramine helped my MCS a lot and made life a lot more bearable. It's not the end all and the be all though. I agree that the name "dreaded genome" is horrible.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I saw Dr. S. a few years ago and have mixed impressions. I'll just share my take on this.
It's important to remember that Dr. S, while exceedingly brilliant in many regards about neurotoxins, is too quick to use the "post-lyme" label for cases of chronic lyme that still need to be treated with anti-spirochetal methods.
On the other hand, he is absolutely correct that some treatments cannot be tolerated or will even work for patients with certain genotypes. I was found to have that genotype and he told me that I would have lyme for the rest of my life.
Now, he may be correct and the best way is to use neurotoxin elimination. However, I think that I also needed better actual anti-lyme treatment (and tx for the coinfections I tested + for, too).
--
If your friend gets QUESTRAN be sure it is without aspartame. Aspartame is neurotoxic in itself but some versions of Questran contain it.
-
If mold is a problem, that can be very serious, indeed. If a person has lyme, that can be equally as damaging.
If a person has both, both need to be addressed as well as coinfections, other tick-borne diseases. But, as you say, this person is not likely to explore treatment for lyme.
The Questran would not be enough to treat lyme (if it is part of this picture), but it may help clear the fog so that a more detailed assessment could be explored.
Dr. S. has done a brilliant job regarding his work with neurotoxins and how to work with all that. I think it's an important piece to getting well. However, many are sensitive to Questran so there are some other ways.
Be sure you friend drinks LOTS of water or she could get an impacted colon (my father had to have surgery due to not drinking enough water when taking this).
---
You may be able to see Dr. S in some videos on You Tube. He has been quite generous in sharing his thoughts and discoveries about his work.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic