I and I'm not allowed to eat the following: sugar wheat dairy alcohol caffeine preservatives artificial sweeteners bread potatoes, etc.
I've survived, and lost 60 pounds. However, does anyone know if this is something I'll have to do for life?
I don't mind eating healty, but would like to enjoy a slice of pizza or a beer again one day.
My doctor really isn't giving me much information. She told me if I was at a wedding I could have a small glass of red wine. if I went out to dinner to skip bread and dessert.
I was on antibiotics for 6 months, and have only been on natural supplements for the past 3.
Do people with Lyme ever go into remission?
[ 05-11-2009, 08:49 AM: Message edited by: nikoru123 ]
Posts: 11 | From Philadelphia, PA | Registered: May 2009
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
same here
have to eat this way or else get very sick, docs know nothing of why, its sad really
Posts: 2905 | From New England | Registered: Sep 2004
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bettyg
Unregistered
posted
welcome nik!
there are GLUTEN-FREE PIZZAS; i've not eaten any YET; but our local HYVEE GROCERY STORES CARRY THEM.
they have alot of gluten-free items.
i'm allergic to: gluten/wheat and casein...all milk, cheeses, egg whites, and garlic!
i gave up milk products, egg whites, and garlic and rarely have bread, but i have my once/wk. pizza!
i can tell when i ate the wrong things, diarrhea right away.
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
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posted
I discovered that during my treatment for LD, that I was getting dizzy/woozy/brain-foggy frequently, skin was tingling and got wierd skin rashes. We did some stool testing to check for Candida (and other things), and discovered that I had a big case of Candida along with intestinal inflammation, and antibodies to dairy and soy (no wheat, thank God).
The doc was theorizing that due to the inflammation, dairy and soy molecules were entering the blood through my damaged intestines and 1) provoking a antibody response, and 2) the casein protein appears to tends to attach itself to the opiate receptors in the brain - resulting in brain fog, wooziness, general inability to concentrate, bad short-term memory.
Some researchers have noted this same thing with "autistic" kids and they seem to get better off of dairy.
Regular allergy skin tests showed no reaction to soy or dairy, though it was admitted that the mucosal membranes can react differently than skin tests.
To this day, if I consume any form of dairy, I literally get high, and it can last for a week or more until it fades away. Soy still gives me tingly skin, with some rashes. Try eating w/o soy - it's in a huge number of foods. Restaurant eating is near-impossible. Posts: 131 | From PA | Registered: Aug 2007
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blaze
Unregistered
posted
I'm not sure what's wrong with me, but I do better when I eat certain cheeses than when I eat yogurt? Yogurt kills me. It's not like I feel worse and then better either - I get progressively worse whenever I eat yogurt.
Is it possible to have an overgrowth of good bacteria? Or alternatively, could mold be keeping certain bugs at bay?
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posted
Thank you everyone for the information and links.
I did not realize that I should not be eating grapes, per the report by Dr. Burrascano.
I was eating them every day. also, an apple every day on an empty stomach.
It may be time to look for a new dr, she does not seem to be providing me with enough information.
Posts: 11 | From Philadelphia, PA | Registered: May 2009
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posted
well...if you otherwise like your dr, maybe what you need is not a new one but a naturopath in addition.
Some here do use 2 different drs for different parts of the management.
There must be a lyme-aware naturopath somewhere near you, Philly's a big city.
Posts: 228 | From Mass. | Registered: Feb 2009
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
unless you have a gluten issue, I would say sprouted grain breads are fine. I just had a sprouted grain peanut butter sandwich!
I eats loads of red skin potatoes. I alo eat some dairy, like cheese and yogurt. I have not had candida issues at all.
I just avoid most processed foods, refined foods, and all sugar.
My doc says one or two cups of organic coffee in the morning is fine.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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