posted
So I have this twitching in my foot...that is endless. I have tried Calcium, Magnesium, Potassium, and now I am tkaing B12. It does not stop. BUT..when I go for a walk, I get these SMALL FAST twitches all over really quick...bam..bam..bam. The woman taking the EMG test today said that was not a symptom she has heard of and ruled out ALS.
I wonder if other people with Lyme know what this is and what I am talking about, since the doctors don't seem to have a clue.
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Yes, twitching is a lyme symptom... do a search and you'll find tons of entries about twitching.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Yes, twitching/muscles spasms are all a symptom of Lyme and Coinfections as well.
If you do what disturbedme said and click on the SEARCH button(top right) and type in "twitching" you are sure to find A LOT of results!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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Leelee
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Member # 19112
posted
Definitely twitching and spasms are symptoms of mine. They have pretty much subsided (hopefully forever), and they occurred in my right arm and shoulder.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
Hmm.. Thanks for replying. I like this forum because people reply fast.
I have twitching in my foot. But I know that it can also be from my under active thyroid.
I know that it is a common symptom of Lyme... I am specifically interested in hearing if other people have the FAST twitches that ocur for me after walking. It is a very specific thing...and if you have it, you would know what I was talking about. It happens after activity and only after. I would like to hear if you have that, and what you did or do about it.
Just Julie
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Member # 1119
posted
I love you, (I love your screen name!)
I too love the fast replies on this site . . .I've been here (reading/lurking) since 2000. My muscles first began twitching (fast, all over body, like a pinball bouncing around) in May of 2000. May 5th, to be exact. I can remember that date so clearly, because, as a nurse, my mind went immediately to "is it ALS, MS, or some other weird disease?".
I got online and found lyme instead.
I read on this site for a year, before I joined, and I have been here ever since.
I was treated by a LLMD (famous one in San Francisco) for 4 yrs total, with oral antibiotics, continously. My LLMD never addressed my muscle twitching, only to acknowledge that I was concerned about it, and that was it!
My muscles have twitched, intermittently, but continuously, for 9 YEARS NOW.
Wow. I come here to read other's concerns about their own muscle twitching, hoping to find that someone out there has found a "cure" for this.
But, it hasn't happened. I've learned to live with them, but they are very disturbing! I have tried all the magnesium's, except IV and IM.
Lots and lots of us here with them. You're not alone!
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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nefferdun
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Member # 20157
posted
I too had muscle twitching which could be in any of my muscles and last sometimes for hours. With bartonella treatment it went away.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Bartonella is a coinfection..... Have you been tested for coinfections?
There is a laundry list of infections that come along with Lyme.....
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
yep, twitches not only in muscles like feet, toes, thighs, entire leg....all limbs actually. And, I get it with eyes. The corner of my eye will incessantly twitch at times. Other times it feels like my eyeball even twitches.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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Lymeorsomething
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Member # 16359
posted
Twitching is a prominent symptom of lyme, but other conditions can cause it as well, especially hypothyroidism...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
yes, I have this- I feel like an electrical wire fo haywire BJG Belva
Posts: 468 | From IL | Registered: Oct 2003
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I have hypothyroidism (though it's in optimal range now due to thyroid medication) and I've NEVER heard of twitching being a symptom of it.... though I could be wrong.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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quote:Originally posted by iloveyou: I am specifically interested in hearing if other people have the FAST twitches that ocur for me after walking. It is a very specific thing...and if you have it, you would know what I was talking about. It happens after activity and only after.
I think I know what you mean. I get this, mostly after walking, but sometimes after other activities too.
It feels like popcorn popping in my hamstrings. They don't feel the same as an eye twitch to me. They're hard and fast. Mine go all over the muscle, not just in one place...the reason I think of a bunch of corn kernels popping.
-------------------- Never doubt in darkness what the daylight proves to you. Posts: 418 | From Utah | Registered: Apr 2009
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posted
Jasmin! YES! That is it exactly! Popcorn! Good explanation! WHAT THE HECK IS IT? If I can figure out what that is, I know I can be well on the way to getting healed. Have you asked your doctor what it could be? Someone else above said they had it too! Maybe it is a vitamin deficiency? Or is it some bacteria in the nerves?
posted
Yes..they happen for me in the lower body...in my hamstrings and all over my legs. It does NOT happen on my upper body which is SOOOOOO weird. Someone HAS to know what this is!!!!!
posted
I don't know what causes it, and I haven't asked my doctor about it. Today I went to the doctor for the first time. I hope you find your answers!
-------------------- Never doubt in darkness what the daylight proves to you. Posts: 418 | From Utah | Registered: Apr 2009
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posted
Yep... get the full body twitching as well. Comes and goes like all my symptoms. Twitching is a sx of lyme.
I also get the fast twitching in lower body after exercise. I've heard this is due to inadequate fluid intake and electrolyte imbalance. Try drinking more water or gatorade while walking or exercising. I noticed it did help.
posted
God, I drink so much water! I guess I need to get my electrolytes checked. Thanks a lot. It is interesting to hear that others also are having this that have Lyme, although I have not yet been diagnosed with it. Makes me wonder if this is the reason my life is a living hell! Blessings...
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I hope you find your answers!
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