Please send cards, drawings and personal messages for inclusion in a ``We Love Dr. Jones'' Book
For those unable to attend please consider donating to the Dr. Jones legal defense fund in lieu of gifts.
Let's show Dr. Jones how much he truly means to all of us and send him a very special 80th birthday wish; the wish to continue treating children with Lyme disease.
Send donations to:
Pullman & Comley Trust Account-for Dr. Charles Jones
Mail to: Elliott Pollack c/o Pullman & Comley, LLC 90 State House Square Hartford, CT 06103-3702
Note "gift" in the memo field
Send cards and Pictures to:
Dr Charles Ray Jones Madison Towers 111 Park St. Suite F New Haven CT 06511
For more information please contact Kim: 203-426-3158, [email protected]
[ 05-13-2009, 09:27 PM: Message edited by: fatigued15 ]
Posts: 488 | From NY | Registered: Oct 2004
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bettyg
Unregistered
posted
fatigued, give dr. jones an extra hug and kiss from this iowan who has tremendous respect and admiration for CONTINUING TO FIGHT CONN. HEALTH DEPT. with these montly court hearings costing $100,000 per month!!
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posted
I will bettyg. We are thrilled to be able to go. We got a great price on a hotel room on priceline.
Posts: 488 | From NY | Registered: Oct 2004
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bettyg
Unregistered
posted
fatigued, please show date/time in subject line, and i'll help you keep it up on last week prior to dr. j's big day!!
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posted
Thanks bettyg. Great idea!
Posts: 488 | From NY | Registered: Oct 2004
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bettyg
Unregistered
posted
i noticed date & time 1st thing....way to go!!
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I am hoping all four of us will be well enough to go. We saw Dr. Jones today. I wish I knew what we could get him as a little, personal gift but the office staff just kept repeating "donate to the legal fund."
The only thing I know he likes is books, poetry....I just wish he could receive something for himself too.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
A reminder for all. The best gift for Dr. Jones would be your presence at this celebration. What an opportunity for us all to thank Dr. Jones who has done so much for the Lyme community
Posts: 488 | From NY | Registered: Oct 2004
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posted
I'm hoping to go with my family as well. It would be wonderful for Dr. Jones to see so many familiar faces and know how much he means to us.
But there will (hopefully!) be a lot of other people present who aren't on the board. What should we do so we can recognize each other? Green ribbon in the hair? Or maybe around our wrists? Or, better yet maybe carry a sign showing our lymenet names. What do you all think?
Posts: 214 | From where ticks flourish | Registered: Dec 2007
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posted
reminder to all
Posts: 488 | From NY | Registered: Oct 2004
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
God Bless this man. He has sure stood the test of time...and much more.
Happy Big 80th Dr. J.!
ping "We are more than containers for Lyme"
[ 05-28-2009, 01:49 PM: Message edited by: ping ]
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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bettyg
Unregistered
posted
dr. jones/guests may have something truly wonderful coming in next 4 days of gov. reli signing conn's. LYME DISEASE BILL TO PROTECT OUR LLMDS !!
senate signed off today; only gov. left!!
happy birthday big time dr. jones! xox
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bettyg
Unregistered
posted
1 week from TODAY is PARTY TIME..... time to celebrate and hopefully conn's. gov reli SIGNING CONN. LYME BILL affecting our llmds
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Newtown, CT, May 29, 2009 - Patient groups across
Connecticut and the nation were jubilant as the
Connecticut Senate passed the Lyme disease doctor
protection bill today, 36-0, following its
unanimous passage in the Connecticut House of
Representatives on April 30, 2009.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Is anyone going to Dr. Jones party?
Posts: 488 | From NY | Registered: Oct 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
He never came to mine!!! KIDDING. I hope lots of people show up. Best of luck everyone.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
^^^^^^
Posts: 488 | From NY | Registered: Oct 2004
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bettyg
Unregistered
posted
gosh i can't believe it, i've help keep this up and just remembered i've not sent a card or a letter yet! uffda may
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Oh I want to go so badly....being bedridden it is going to be a challenge. There is no way I can know until the day before at best. We are a family of four Lymies, both kids patients of Dr J, so I really want to go.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Tracy, Hope you feel OK to attend. We are a family with lyme too. My daughter was very ill and is doing so much better thanks to Dr. Jones. Better days are ahead.
We will be there. Leaving tomorrow.
Posts: 488 | From NY | Registered: Oct 2004
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posted
I was just downstairs and realized my message could be interpreted differently than I meant it to be. We are all in various states of sickness and if we can make it that is great and if we can't, we all know that we each support what this man does for everyone's children. I go in support of those of you too sick or with children who are too sick to travel. Wishing everyone better health.
Posts: 441 | From USA | Registered: Jul 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Thanks everyone; one conflict is that my 19 year old has a dirt bike race about an hour and a half away; so if we go it will only be with one child and I really wanted it make it a family event.
Also we would then (or at least my husband) would not be able to attend Ryan's race...I'm going to try and talk him out of the race but I highly doubt I'll be successful.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
had to make sure this got on here; they go hand in hand together!! this is what this bill is all about ....
dr. charles ray jones 3rd year in health dept. hearings!!
CONGRATS ALL CONN. MEMBERS; THANKS FOR A JOB WELL DONE!! [group hug] [kiss]
now, i can't read this at all, and i want to understand the FINAL WORDAGE APPROVED/SIGNED BY GOV. DELL, so i'm breaking it up for me/others like me...severe neuros. [Smile] betty
quote:Originally posted by Tracy9:
Connecticut Seal
Substitute House Bill No. 6200
Public Act No. 09-128
AN ACT CONCERNING THE USE OF LONG-TERM ANTIBIOTICS FOR THE TREATMENT OF LYME DISEASE.
Be it enacted by the Senate and House of Representatives in General Assembly convened:
Section 1. (NEW) (Effective July 1, 2009)
(a) As used in this section,
(1) "long-term antibiotic therapy" means the administration of oral, intramuscular or intravenous antibiotics, singly or in combination, for periods of time in excess of four weeks; and
(2) "Lyme disease" means the clinical diagnosis by a physician, licensed in accordance with chapter 370 of the general statutes, of the presence in a patient of signs or symptoms compatible with acute infection with borrelia burgdorferi;
or with late stage or persistent or chronic infection with borrelia burgdorferi,
or with complications related to such an infection;
or such other strains of borrelia that,
on and after July 1, 2009, are recognized by the National Centers for Disease Control and Prevention as a cause of Lyme disease.
Lyme disease includes an infection that meets the surveillance criteria set forth by the National Centers for Disease Control and Prevention, and other acute and chronic manifestations of such an infection
as determined by a physician, licensed in accordance with the provisions of chapter 370 of the general statutes,
pursuant to a clinical diagnosis that is based on knowledge obtained through medical history and physical examination alone,
or in conjunction with testing that provides supportive data for such clinical diagnosis.
(b) On and after July 1, 2009, a licensed physician may prescribe, administer or dispense long-term antibiotic therapy to a patient for a therapeutic purpose that eliminates such infection or controls a patient's symptoms upon making a clinical diagnosis that such patient has Lyme disease or displays symptoms consistent with a clinical diagnosis of Lyme disease,
provided such clinical diagnosis and treatment are documented in the patient's medical record by such licensed physician.
Notwithstanding the provisions of sections 20-8a and 20-13e of the general statutes, on and after said date,
the Department of Public Health shall not initiate a disciplinary action against a licensed physician and such physician shall not be subject to disciplinary action by the Connecticut Medical Examining Board solely for prescribing, administering or dispensing long-term antibiotic therapy to a patient clinically diagnosed with Lyme disease,
provided such clinical diagnosis and treatment has been documented in the patient's medical record by such licensed physician.
(c) Nothing in this section shall prevent the Connecticut Medical Examining Board from taking disciplinary action for other reasons against a licensed physician, pursuant to section 19a-17 of the general statutes, or from entering into a consent order with such physician pursuant to subsection (c) of section 4-177 of the general statutes.
Subject to the limitation set forth in subsection (b) of this section, for purposes of this section, the Connecticut Medical Examining Board may take disciplinary action against a licensed physician if there is any violation of the provisions of section 20-13c of the general statutes.
this is outstanding! i'll email this out to all on my lyme list so we can ALL CELEBRATE YOUR VICTORY, AND HOPE WE CAN ACCOMPLISH THE SAME THING NEXT SESSION OF STATE LEGISLATURE.
now, we've got to work harder yet on HR 1179 in congress; getting more to co-sponsor our lyme bill!!
give dr. jones an extra hug/kiss from me on his birthday will you folks? thanks [Smile]
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Tracy9
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posted
I can tell by today there is no way I'll make it tomorrow. I'm still fighting this sinus infection and am sapped of any energy I might have. Can't move out of bed, for days on end now.
I wish I could be there. It sucks to have to miss out on so many things. My son would have LOVED to be there more than anything.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
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Member # 7521
posted
I can tell by today there is no way I'll make it tomorrow. I'm still fighting this sinus infection and am sapped of any energy I might have. Can't move out of bed, for days on end now.
I wish I could be there. It sucks to have to miss out on so many things. My son would have LOVED to be there more than anything.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
finally just got my BD card ready & put out in mailbox for mailman to pick up .... better late than never!
but i mentioned conn.'s LYME BILL PASSING & HOPING THE VENDETTA AGAINST HIM ENDS NOW! ------------------------------------------------------------------------
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bettyg
Unregistered
posted
HAPPY 80TH BIRTHDAY TODAY DR. JONES
Each day your office staff is busy answering phones. We know you hear many kids moans as you feel their bones. If they are good, they might get an ice cream cone!
Shame on the IDSA & CONN. HEALTH DEPT. for throwing all those stones !!
an original by BettyG
Dr. Jones, here's to MANY healthy and happy days, months, and years to come!! We idolize you for treating all the sick lyme and co-infection kids in USA and internationally!!
May God end all these hearings since the Conn. LYME BILL was passed on June 5, 2009; what a birthday gift for YOU and all other Conn. llmds
Could someone print this off and give to Dr. Jones for me since I just made it up? thanks!
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Melanie Reber
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Member # 3707
posted
Happy Birthday Dr. Jones!!! We all love you. Posts: 7052 | From Colorado | Registered: Mar 2003
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Can anyone tell us how it was? Or post up some pictures on www.lymefriends.com?
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
It was a beautiful day and how nice to see Dr. Jones. He was there the entire time! People waited in line to say hello. Unfortunately, my lymebrain forgot my camera so maybe someone else will be able to post some pictures. He is just so good with the kids! My kids went right up to him and gave him a hug and talked to him. He puts them at immediate ease. They've been well for a few years, so they haven't been to see him in a while. My youngest is 5, but the last time she saw him she was 2.5 or so. I'm not sure she even remembered going to see him. Pat S. from the LDA has some kind words to say and ofcourse I cried. Everyone sang Happy Birthday to him! I'm sure others will have more to add. Thanks to everyone who organized this! And don't forget...... For those unable to attend please consider donating to the Dr. Jones legal defense fund in lieu of gifts.
Let's show Dr. Jones how much he truly means to all of us and send him a very special 80th birthday wish; the wish to continue treating children with Lyme disease.
Send donations to:
Pullman & Comley Trust Account-for Dr. Charles Jones
Mail to: Elliott Pollack c/o Pullman & Comley, LLC 90 State House Square Hartford, CT 06103-3702
Note "gift" in the memo field
Send cards and Pictures to:
Dr Charles Ray Jones Madison Towers 111 Park St. Suite F New Haven CT 06511
posted
We just got home from Dr. JOnes party. I will try to post some pics tomorrow if I can figure out how to do it. We are tired from the long drive.
Posts: 488 | From NY | Registered: Oct 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
You can post them very easily on www.lymefriends.com, many here are members there as well.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Happy birthday Dr. Jones! Would have been there if it were possible. Thanks so much for all you do, don't think I could ever thank you enough. I especially thank you for helping my little boy. I just know he is finally on the road to recovey.....
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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bettyg
Unregistered
posted
fatigued, i hope you post them HERE on lymenet. -------------------------------------------------------------------
i don't go to the other board and many here don't; 1 board keeps me busy enough swamped....
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