Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I did this when I was really flaring.
I would wake with them hurting and numb at the
same time. I do not call it carpel tunnel but a
syndrome like. I believe it is caused by the same
syndrome that causes all the other nerve
malfunctions in Bb. Such as loss of gait,
dizziness, abnormal heart rhythms, etc. etc.
Nerve malfunctions caused by several etiologies
like electrolytes, demyelinization, and
inflammation caused by Bb.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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-------------------- All comments are for informational purposes only and should not be construed as medical advice - please consult a physician before following any advice. Posts: 37 | From Massachusetts | Registered: Feb 2009
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posted
Glad to see I'm not the only one! I ONLY have it when I'm flaring or symptomatic. What causes this? Is it from inflamation or just irritated nerves? I was told by a dr I don't have CTS, but I swear that that is what it is like.
posted
I had the problems with my hands falling asleep at night probably a year before finally diagnosed with CTS...
What causes my hands to go numb is that when I am sleeping, I tuck my hands into my body and overly bend my wrists (palm down towards the arm)
This compresses the carpal nerve I believe, causing these problems...
-------------------- All comments are for informational purposes only and should not be construed as medical advice - please consult a physician before following any advice. Posts: 37 | From Massachusetts | Registered: Feb 2009
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posted
My arms and hands fall asleep often. Not once, but TWICE, I have woke up in the middle of the night yelling, "Where's my arm?!? I can't find my arm!!!"
-------------------- Never doubt in darkness what the daylight proves to you. Posts: 418 | From Utah | Registered: Apr 2009
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posted
Carpell TS effects thumb and first two fingers. Mine has always been last two fingers.
Cubital tunnel syndrome is small and ring finger. I have had this as one of my first symptoms 4 years ago. It happens once a month now at most. It used to be my whole arm but now its down to two fingers.
I used to wake up after a night out drinking with numb arms. Booze for me is a no no until I am well.
I believe its direct infection of the nerve by lyme Bart or whatever ails you.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
Massage and/or chiropractic can help. In my experience, when the numbness affects the entire arm and hand, it's related to misalignments and muscle imbalances in the neck and upper back.
Sometimes posture contributes as we hunch forward and compress the nerves that ennervate the arms.
Last week my massage therapist found a bunch of trigger points around my shoulder blades.
I do corner and doorway stretches to help open up my chest muscles and connective tissues, do self-massage in the neck and chest to relieve muscle tightness, and try not to sit with my chest caved in and head forward. Plus heat on my neck and upper back to relieve muscle spasms and overstretched muscles.
It does help. Last week I woke up every hour with numbness and tingling. Lately I get to sleep for a couple of hours at a time.
Take care, Nutmeg
Posts: 386 | From WA state | Registered: May 2005
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posted
I had a massage a couple months ago (actually got flared literally a day after). She said my neck, shoulder, and chest muscles were really tight. I know I need to see a chiopractor. I saw one a few years ago and the xrays showed a few pinched nerves and my hips are unaligned. I think something is out in my back too. Sometimes completely out of the blue my back hurts really bad and I feel like I can't move in any direction without causing serious pain. I had this a few days ago. I was in the car. When I went to get out I could barely move. Lasted a few days. My hubby popped my back and it popped so bad.
However I just had a spine xray and Cspine mri and they didn't note anything being abnormal.
posted
I have had this problem in the past, not CTS, but similar in that a certain nerve(s) is being compressed to point of loss feeling and possibly circulation.
Research the Brachial Plexus, it sounds like your symptoms are caused by pressure/impingement/injury to that area (shoulder area). Can be flared up simply by sleeping on your side (esp. during periods of inflammation, e.g. the kind that happen during herxeimer reactions, or any serious immune response really)
From Wiki: "Symptoms may include a limp or paralyzed arm, lack of muscle control in the arm, hand, or wrist, and lack of feeling or sensation in the arm or hand."
Wiki Main Page (brachial plexus): (lots of medical jargon and images):
posted
Wanted to reiterate that this can certainly happen during flare-ups in lyme treatment reactions, and may not be present at all at other times. A direct result of inflammation - not caused firsthand by the lyme itself.
Posts: 26 | From Napa, Ca | Registered: Apr 2009
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posted
I haven't been officially dx'd with lyme yet. Just trying to get answers and find an LLMD. So I'm not in any sort of treatment at the moment. But this condition is def caused or agrivated by whatever I got going on. I've ONLY had it when having my "flares". When I'm feeling well it doesn't happen. Very strange.
posted
I have this happen all the time and I hate it. If I sleep with my elbows bent, my whole lower arm falls asleep. Occasionally I will wake up scared because my entire lower arm/hands will be completely numb, like it is not there.
This has been going on for several years.
Posts: 443 | From The Wild West | Registered: Jan 2002
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I used to get this but now it's more neuropathy (?), a kind of almost-numbness in my R arm and hand.....spreading up to my face! Freaky.
Posts: 3528 | From US | Registered: Apr 2007
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posted
I have this too. I get it mostly when my symptoms are really acting up. I mostly get it in the last two fingers on each hand.
It will wake me from my sleep and I'll have to shake it out to get the feeling back. I really hate it also!
It is better then it used to be. When I was really sick a few years ago my entire body would constantly feel like it was falling asleep. I had to always be moving my arms and legs to keep from going numb.
Does anyone knows what causes this? I would also like to know. It feels like very poor circulation to me.
I used to get this. It started with my left hand, progressed to both hands, then my arms, then included my legs. If you're suffering from this and are not being treated, I think you can expect this to become progressively worse to the point that one day you will wake up and not be able to feel anything or move any part of your body. Trust me, if you get to this point, you will start to realize that death isn't too far away if you dont' get treatment.
This is what happened to me, and what made me start looking for an answer myself online. I'd been under the care of a neurologist, internal medicine doc for months and no one could figure out what was wrong with me. Googling my symptom is what led me to this and other sites that suggested Lyme as the problem. Only when I told my Drs, they said "We don't have Lyme disease around here." So I had to find an LLMD to get any kind of action.
Fortunately, after starting treatment, this symptom started going away. After 4 years of treatment it's mostly gone, but still sticks it's head up once in a while, so I know it's still around.
Start getting treatment as soon as possible, i.e., antibiotics, herbal, rife or whatever you can manage. If you keep letting it go, it will only get worse.
Patti
Posts: 975 | From California | Registered: Apr 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I have found that is important to used a good quality neck pillow AND wear my wrist braces when I sleep.
Taking magnesium and fish oil before bed is also very helpful.
Massage to work out pressure muscles tension is good as is cranial-sacral therapy. Look up the site for the UPLEDGER INSTITUTE and find a doctor. This is a gentle approach. Never let anyone do a fast "snap and crack" or "twist and shout" on you.
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