posted
I've been sick for a few years now and a few have suggested that I may have Lyme disease. I was sent a checklist for Babesia and Bartonella. I was able to check most of the boxes.
I am broke and can't afford the testing more or less an LLMD, so I started using a Rife machine that belongs to a guy just 20 min. away from where I live.
I am only using the Lyme frequencies from the CAFL list that was given to the gentleman who is helping me out by letting me use his Rife machine.
I just did my first treatment 2 days ago and ever since then I have felt very weak and tired, I'm having terrible headaches and trouble concentrating. I'm dizzy and having heart palpitations. I have this pain behind my eyes that makes me feel like I'm tired when I'm not even sure that I am.
I didn't have any of these symptoms before I used his machine, so I would guess this is a Herheimer reaction.
Would anyone consider this to be confirmation of the disease ? I have been searching for so long to find out what is wrong with me. I started with really bad depression and depersonalizing as my initial symptoms a few years back, but over the years I have developed other symptoms of just not feeling well (hard to explain). Then I started having Panic attacks out of nowhere and I would get these shortness of breath attacks when I wasn't even anxious, like I couldn't get enough air.
After lots of research and talking to others in some forums, it was suggested that I should look into Lyme disease. Again, I answered these checklists as if I wrote them myself.
So again, I ask you that if I am having these reactions from the Rife therapy, that again, was only set on Lyme disease frequencies, would this be confirmation of the disease and to keep treating.
I am broke from being out of work. I can't afford any testing or any Dr.'s at this point that charge cash.
I'm brand new here and just looking for some support.
Brad
Posts: 6 | From Canada | Registered: May 2009
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posted
It would be confirmation enough for me. Rife is great stuff!
Welcome to Lymenet, Brad!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I haven't used a Rife but it sounds like you hit the target.
You may want to look into info about binders. When you start to kill off the pathogens, they excrete toxins.
You need to take stuff that will absorb it & carry it out of your system.
Charcoal, clay, psylium & chlorella are all good to take. Some people respond better to one or the other or combinations. You can mix them with a little apple juice & water.
You can find them at some drugstores, vitamin stores or healthfood stores - they are not alot of money.
Good luck!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Also drink lots of water to flush it out. Sounds like Lyme is a distinct possibility.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
When we first bought out Rife machine, I treated myself with it for Lyme before using it on my wife.
I do not have Lyme and never react in any way to the frequencies. She had some pretty severe herxheimer reaction for the first few months.
There really is only a couple of bacteria that could possibly react to the Lyme frequencies. One is Lyme and the other is Syphilis. They are both spirochetes and are tough to kill.
I would be convinced it is Lyme, especially if other treatments for Lyme bring the same reaction.
You can improve considerably using this method by itself. You should supplement with Magnesium along with any Lyme treatment.
It will take as long as six months to start really improving. Until then it will just be miserable.
Dan
Posts: 2924 | From Minnesota | Registered: Aug 2006
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bettyg
Unregistered
posted
welcome brad!
i'll include some links on what to do when you have no money...broke after my welcome letter; best wishes! xox
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. ***********************
5-4-09; FINANCIAL BURDENS compiled by Melanie Reber & BettyG added member suggestions
posted
Thanks for all of the answers, and that great long post bettyg
Lots to take in and read.
Brad
Posts: 6 | From Canada | Registered: May 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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How LONG did you use the rife for lyme frequencies? And did you end with 10K as that should really help.
Perhaps less time, next time. And, it's so nice that someone offered to share.
You may already know this, but to be sure, you should not use it again for at least 12 days (or longer if you are still weak) . . . each frequency is supposed to be only for certain time, too, or shorter.
Be certain not to go over time or increase use as it can be damaging.
Do you have any funds for basic supplements? You need liver support and at least a good green powder that may help with metal detox.
NOW brand of Chorella is the least expensive - or Herb Pharm Cilantro tincture.
Milk Thistle (liver support)
Cordyceps (for adrenals)
A good multi-vitamin that has good B's
Fish oil
MAGNESIUM may be the best helper to bring down that herx - it's good for the liver and for your brain and over-excited nerve fibers and panic attacks (with lyme, they are not true panic attacks but from the infection, still it feels awful). Calcium and Zinc are also important.
Now, if you just don't have money for supplement, try to get organic foods. It's best to buy a little less organic if you can as then your body won't have to work harder to get out the chemicals used with conventional farming. Some veggies are not as important to buy organic but you'd have to search that.
Eat as many greens as you can - and as many other colored veggies as possible, too. If you can find some dark berries (Trader Joe's has a good price on frozen berries) . . . or tart apples, those are good, too.
Be sure to get enough protein as protein helps our livers, our hearts, our brains, our muscles, etc.
Good oils with olive oil and nuts, too.
Are you able to get Rosner's Lyme/Rife book or borrow it? THAT is essential reading.
As for HOPE, while it's always best to have an expert evaluation if you don't have that you don't have that. Many have gotten better with rife and attention to nutrition.
See if you can get a circle of friends to learn massage and trade. If should be able find a LMT (licensed massage therapist) who will come and teach a class or two to a small group. The spine should be avoided by anyone without specific licensing, but the LMT can show you all various techniques to aid in moving toxins through muscles - and also some relaxation massage.
Warm (not hot) baths in epson salts may be of help, too.
And be sure to drink plenty of WATER. Whatever other support measures you take, WATER is key.
Best of luck to you. Take really good care of yourself, now.
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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