Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Hello,
Once again I am hoping this board can give me some information.
My daughter tested positive for Lyme through Igenex last June. She was treated about 8 weeks.
November 2008, tested positive for Bartonella hensalae and Quintana.
We will finally be seeing the Best Pediatric Lyme specialist soon. She has symptoms and know she was not treated properly.
Out of the blue she will get these feelings of being hot, no fever, slight lightheaded. She
will say her head feels weird. It can come on anytime, like tonight. She ate her dinner, so I
know she wasn't hungry. She did have frozen yogurt for dessert, could yeast do this?
She isn't on any medicine for Lyme or co. She is on 10mg of anxiety med.
I get so worried. She will be doing ok.Then these weird symptoms will come over her.
Anyone else get these feelings?
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
My daughter did prior to starting treatment.
"Mommy look I am shaking"...yet she wasn't visibly.
She did much better on meds...even better treating babesia.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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bettyg
Unregistered
posted
CHILDREN'S LYME SYMPTOMS compiled by Geneal 6-07 From ``GENEAL'' June 2007
I have been doing some research regarding Lyme and signs/symptoms in small children.
I know many of you have small children that you may be concerned about. I believe my youngest child (4yrs old) may have gotten this disease from me.
For All Children
-dizziness -neck pain and stiffness in almost 90% -sore throats -swollen lymph nodes -excessive thirst, -Chest pains in at least 70%, some have palpatations -Sense of air hunger or shortness of breath, dry cough
-abdominal pain in about 50%, can mimic acute appendicitis -sometimes vomiting, heartburn -rashes that come and go, malar rashes, new psoriasis
-migratory arthralgias, joing pain in 50% to 100% -myalgias in over 80%, back ache, morning stiffness, pain at rest, muscle weakness
-frequent illnessses, dark circles under their eyes -intermittent red, hot pinnae of ears -sleep disturbance in over 80%
-Neurological symptoms are protean and can appear AT ANY TIME during the course of infection *hypersensitivity of skin, scalp and hair *Hypersensitivity to noise, light, smell *Alterations of taste *poor balance and coordination *Uncharacteristic behavior outbursts, mood disturbances, depression *social withdrawal *New onset phobias *Oppositional behaviors *Obsessive compulsive disorders *Deterioration in school performance in over 90% *Difficulty with concentration and attention in school with easily distractibility as well as "brain fog" in over 80% *New onset of ADD
*When measured with formal neuropsychiatric testing, children demonstrate defects in auditory and visual sequential processing
Less Commonly:
*Movement disorders-spaticity, ataxia, motor or vocal tics *Cranial neuropathies, e.g. Bell's Palsy or optic nerve neuritis *Peripheral neuropathies-numbness and tingling, distal parathesias, subtle weakness
Pre-Schoolers and toddlers
- Modd swings, sudden emotional outbursts - Irritabiity - Personality changes - Regression of motor and social skills (developmental milestones) - Changes in play behavior, tire easily, less active
- Trouble falling asleep, frequent awakenings - Nightmares, new phobias, recurrence of seperation anxiety - Diaper rash unresponsive to normal treatment - Frequent URI's, ear and throat infections, bronchitis, pneumonia
Congenital Lyme Disease
* Infants can be infected with Borrelia transpacentally in any stage of pregnancy and/or via mother's breast milk.
* The co-infections: Babesia, Bartonella, Mycoplasma and perhaps even the Ehrilichias can be transmitted transpacentally to the developing fetus.
* Gestational Borreliosis can be associated with repeated miscarriages, fetal death in utero, still births, hydrocephalus, cardiovascual anomalies,
intrauterine growth retardation, neonatal respiratory distress, and maternal toxemia of pregnancy.
* Infants either infected congenitally or from breast milk can have
- Floppiness with poor muscle tone - Irritability - Frequent fevers and illness early in life - Joint sensitivities and body pain - Skin sensitivity - Gastro esophageal reflux - Developmental delays -Learning disabilities and psychiatric problems
* Infants bitten very early in life will have many of the same symptoms - loss and decline in developmental milestones.
I found this to be a pretty inclusive list of signs/symptoms for small children, infants, and those suspected of congenital Lyme.
Sadly, my two children do exhibit many of these symptoms and both have positive bands for Lyme via Igenex diagnostic lab in PALO ALTO, CALIFORNIA. Geneal, 2007
posted
I had babesia and this is what cause the light headness for me. I would get this dizzy feeling, and at night would get very hot. I was on zithromax, mepron and artimisin for the treatment of lyme and babesia. I am in my 30's, so you would want to check with your DR if a child can take the above. I think the art combination really helped. I also took tinidizole, to break down the borellia cysts.
I have been off all abx know for 3 years.
Posts: 101 | From Houston, Tx | Registered: Jul 2003
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posted
my son has tested positive for lyme (back in Sept 2007) and has had a couple of relapses since then - including again now. Seeing all those symptoms - he has most of them and is now back on an abx treatment. I always say trust your instincts with your kids - you know what is "normal" and not for them - and sometimes the neurological signs can be scary for parents - yet your peditrician may look at you like you're nuts. Hang in there.
Posts: 5 | From CT | Registered: May 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Thank you Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
CTMomof3, Sorry you son is not feeling well again.
Hope he gets on the better health track very soon.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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