posted
My Dr. left me a message today that my Lyme antibody test was negative "so you don't have lyme disease".
Needless to say I'm going to start pursing other options, like finding an LLMD and ordering the Igenex kit.
I was so annoyed to hear him say that. You guys are right--they really don't know much about t his.
Posts: 9 | From NY | Registered: May 2009
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julielynne4
Unregistered
posted
Mine was negative back in October, too...and I knew I had lyme...I since found a great LLMD and got tested through Igenex and now I am in treatment. Good luck!
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i've been reading all over the site that many members' ELISA tests keep coming back negative -
yet, mine have always come back positive, since way-back-when.
whenever i'm tested (at least 3-4 times in the last 2 years that i definitely remember) doc says that i came back positive, but since it always comes back positive, there's nothing to worry about.
what's the scoop with that?
is there a false negative with the ELISA?
Posts: 34 | From Airmont NY | Registered: May 2009
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posted
I had my first false negative ELISA in 1990. Finally dx'd 1/09! I have heard that about 50% of people with Lyme will get a false negative with the ELISA.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
quote:Originally posted by fighter:
is there a false negative with the ELISA?
Unfortunately a false negative is a routine finding with the ELISA test.
I got a negative on ELISA a couple of times, a negative on the Western Blot my PCP ordered for me and one month later I tested positive with Igenex.
The Igenex Western Blot is the most accurate of all the blood tests for Lyme.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
quote:Originally posted by Juliel833: My Dr. left me a message today that my Lyme antibody test was negative "so you don't have lyme disease".
Needless to say I'm going to start pursing other options, like finding an LLMD and ordering the Igenex kit.
I was so annoyed to hear him say that. You guys are right--they really don't know much about t his.
Julie, I think that if you have symptoms you are on the right track by finding an LLMD.
Chances are your LLMD will have everything necessary to send your blood to Igenex so you might not have to order the kit yourself.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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why, when i'm positive on every ELISA, does my regular doc say it's nothing to worry about?
Posts: 34 | From Airmont NY | Registered: May 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
quote:Originally posted by fighter: woops! i meant a false POSITIVE.
is there a false positive with the ELISA?
why, when i'm positive on every ELISA, does my regular doc say it's nothing to worry about?
Oh, yes, a person can get a false positive, but that' s not nearly as common as a false negative I don't think. I think doctors are supposed to follow-up a positive ELISA test with a Western Blot.
I would be highly suspicious of a doctor who tells you not to worry.
Almost nobody gets a positive ELISA result, much less a false positive, but I guess it can happen.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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