Topic: Druuumroooool Pleeeease!! Dealing with my kazillionth relapse :)
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
So, after a long break from all things Lyme I'm back. I started feeling really good a while back and it lasted a glorious 5 months or so. While feeling good I decided to take a break from the Lyme sites. After living and breathing nothing but Lyme for going on 4 years now I felt I needed a break...my mind and body needed to focus on other things.
This one hit with a bang. I was wonderful on Wed but by Wed night my joints started aching. Within an hour I was having air hunger. I thought, "Oh great" and just went to bed. Woke up yesterday morning and oh my God, I felt like I was going to die!
Freezing cold all over, horrible brain fog, anxiety, and the worst air hunger I can remember in a long time. Also felt so sick and lightheaded that I was having a hard time just walking or standing. I laid on the couch all day and had a MASSIVE pity party for myself complete with lots of tears and tissues, lol.
BUT, today is a new day and I'm ready for the fight!!! I WILL get back to where I was. I know I can do this because I've done it before.
That being said, I sure did miss you all! No, I'm not being sarcastic, I really did!! However, I did not miss being sick
Aaah well. Thanks for listening!
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
I'm glad that you had some good months.You will get back there epecially with that determination!
Posts: 262 | From ohio | Registered: Jul 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I hope you get back to good health once again soon Gosh, this site is SO depressing hearing things like this. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
I'm sorry you relapsed lauren, but glad you had those several months of reprieve. But you are right, the odds are very much in your favor that you will reach remission again, since you already have before. You have the right attitude, that's for sure!
May I ask how you reached remission this last time? How long did you keep treating after the last symptom(s) disappeared?
YOu need to make sure babesia and/or bart are not the main issue. Don't rely on tests.
hope you are feeling better SOON!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
....all those symptoms sound just like babs to me...do you have any artemesinin??
Also, I thought the rife was working for you....I scored a secondhand rife and no one was as surprised as me when I reacted to it....I expected nothing.
Maybe we'll see you at the chat room again???
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Thanks so much for the encouragement and well wishes ya'll.
Seek, no doubt it is depressing but I do want to say to any newbies that may read this that yes, I have had several relapses/setbacks but each setback is easier than the one before. Shorter in duration and easier to beat back into submission with treatment. My hope is that one day I will have my FINAL relapse/setback.
Nenet, I got there on boatloads of abx (mainly Zith and Flagyl) and antimalarials (Mepron and Malarone), as well as rifing. I've told many people that the Rife really helped me turn the corner.
TuTu, yeah I've been on several rounds of babs treatment. My last was about 3 months ago.
Charlie, I do strongly think this is Babs and not Lyme. The rife has worked marvelously for Lyme. I haven't rifed for babs but I'm going to as soon as my husband gets back in town. I'm a baby - don't want any hellacious babs herx while he isn't around to take care of me
How cool that you finally tried the rife!!! I told you there's something to it! Keep using it and in a couple of months you'll likely feel better than ever. Yeah, I'll come visit in chat again soon...I've missed you guys!
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Lauren -- how about bart? you been treated for that?
Where did you get your Rife?
Also, I have heard from many that setbacks are to be expected and not to get discouraged. You have the right attitude, so no problem!
Posts: 3528 | From US | Registered: Apr 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
It's all a process... We just have to keep up with this as a lifestyle (unfortunately).
We don't know how long these things can go into remission for or when they will come back.
Hopefully, if we keep trying, we get get it under some sort of control.
Take care!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Thanks for answering my question about your regimen Lauren.
How long did you treat past the last symptom disappearing?
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
CD, the Zith seemed to take care of the Bart for me, which was good b/c I didn't tolerate the quinolones very well. I'll PM you the info on the rife.
Sparkle, it definately is a process...it's very important to know your bodies limits and boundaries and stay within those limits. I've had to learn that the hard way.
Nenet I continued on meds for a couple of months after but continued to Rife.
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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Shosty
Unregistered
posted
Any chance this could be from the sun? It sounds like you may have seasonal symptoms-?
I had a bunch of tests, including an ANA and a biopsy after sun exposure, and what I thought was a Lyme relapse was an autoimmune reaction to the sun (they call it lupus, but, whatever).
Took me a few years and a few relapses to figure this out.
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hey You!
I was wondering whrer you were off to! I kind of figured that you were doing well and livin it up with that cute Beau guy
You're tough Girl, you'll get through this, just like last time. I missed your sassy self but not happy to have you back......well maybe, but for selfish reasons.
Take care Lauren, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Sorry for your relapse. It's quite depressing - my wife was in remission for about 9 months and relapsed this past March.
I do feel that babs, or some similar parasite, is usually the culprit in people who relapse.
Hope you reach the next remission fast, and stay there.
Posts: 655 | From USA | Registered: Sep 2007
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Shosty, actually the sun makes me feel better so don't think that's an issue but thanks for bringing it up. I know several Lymies that can't tolerate the sun...amazing how different we all are.
Feelfit Awww!! I WAS living it up with that cute Beau guy, lol. I probably lived it up a little too much, which is part of my problem now! I always get to feeling good and I try and act like I'm invinceable.
Tincup! BIG BABOON? Ha! Now I know what you really think about me!
Yani, I think you're quite right about babs being the culprit in most relapses. Sure seems true for me...
Lauren
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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Awww!! I WAS living it up with that cute Beau guy, lol. I probably lived it up a little too much, which is part of my problem now! I always get to feeling good and I try and act like I'm invinceable.
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