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Everyone has doubts. I think it is because we all really wish we didn't have this disease. If you have the symptoms and there are any indications through lab work, you have it. Sorry.
If you aren't comfortable with the tests, get your new Doctor to retest you through Igenex. They are more accurate than the lab your doctor used. I had an ELISA done at the UofU followed by a neg WB years ago. If I knew then what I know now, maybe I would have recovered then and be one of those encouraging others to stay the course and get well instead of one of those worried about ever getting better at all.
Posts: 199 | From utah | Registered: Jan 2009
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Jasmin, the only doctors in Utah that won't tell you its in your head are the one or two that are Lyme literate. Everyone else thinks lyme is an eastern problem or they follow the IDSA and your cured in 4 weeks.
I even thought I was cured after 8 weeks of abx after I was first bitten. Then it all came back and worse.
Please get on a plan and stick with it. It might be a long time but if your doctor is Lyme literate, chances are really good for improvement.
Posts: 199 | From utah | Registered: Jan 2009
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I had a positive ELISA (two of them, actually) via Quest, with zero bands on the WB. After about a month or so on abx, I had one band (23) come back as positive.
Then plenty of bands once I was able to get the Igenex WB, though still CDC negative.
No idea why. But honestly, if it weren't for the positive ELISA's I don't think I would have seriously considered lyme, so I'm thankful for them.
Posts: 453 | From TX | Registered: Aug 2008
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