posted
I have Lyme disease as well as interstitial cystitis. Have been struggling to find a med for Lyme that does not further irrigate my bladder I am taking Bactrim for strep d in my bladder. After I began taking plaquenil 200mg / day and clarithromycin (1,000 mg per day) about a week ago, I have felt a surge of energy whereas before, fatigue has been a major issue with me. Clarithromycin hurts my bladder some and irritates my stomach to some degree... Whereas bicillin shots made me very fatigued but did not hurt my bladder.
Does the fact I feel so much energy mean the clarith. Is not working? It is working?
Anyone else with this experience?
Posts: 81 | From Birmingham, AL | Registered: Mar 2009
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posted
Do you have, or suspect you have Bartonella?
For some patients, Biaxin works wonders on their Bart.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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-------------------- Wildlife biologist working in tropics since 1997; tick bites in Nicaragua in March 2007, started getting sick May 2007; diagnosed with Lyme based on serological testing in Jan 2009; treatment starting Feb 2009. Wish me luck! Posts: 116 | From Seattle | Registered: Feb 2009
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posted
Biaxin was great for me. Took it for 18 months!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
It sounds *to me* (I'm not a doctor) like it is helping you. Hope it continues to work!
My guess is that the Biaxin is hitting Lyme, because it is a good drug for Lyme, and Bicillin is good for Lyme too. So maybe your reaction to Bicillin was a herx.
I herxed on Amox (which is related to Bicillin) for awhile and eventually started feeling better on it.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
I do have hemobartonella - the Fry bug which is supposed to react well with Biaxin. But I am not sure exactly what this Fry bug is all about.
Posts: 81 | From Birmingham, AL | Registered: Mar 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I'm glad you are feeling better on Biaxin.
I just started Biaxin and another med 2 weeks ago and I am having increased pain.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
A surge of energy after only a Week sounds like you might be clearing up a co-infection. Great! But be prepred for downturns, too. (Lyme herxing)
That combo works great for many, esp. ones w/ joint & arthritic issues. Hope you continue to improve!
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Have you seen any improvement in bladder symptoms?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Last night my bladder bothered me so took a half clarith. But today, have had no bladder pain and took the full 1000 mg dose. Still feel tons of energy. Never been a morning person... but wake up feeling ready to go! It may also be the hormones (testosterone, estrodiol etc.)
Have a phone consult with Dr. C tomorrow to discuss with him my treatment. Can't wait to see what he says. Not sure if I should be taking the bicillin and the biaxin. But something seems to be working. Yea!!! (Hope I don't jinx myself).
Thanks to everyone for your replys! It's great to get encouragement from such a wonderful group of folks!
Posts: 81 | From Birmingham, AL | Registered: Mar 2009
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posted
OH yes! Those additional hormones make a big difference! (esp testosterone)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Amanda, does that mean he thought that combo was better even including the IV drugs?
Which is fine with me because I realllly don't want to go on IV again. Did it once and hated it.
Posts: 4590 | From Midwest | Registered: Jun 2008
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